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Sisällön tarjoaa Natalie Diaz. Natalie Diaz tai sen podcast-alustan kumppani lataa ja toimittaa kaiken podcast-sisällön, mukaan lukien jaksot, grafiikat ja podcast-kuvaukset. Jos uskot jonkun käyttävän tekijänoikeudella suojattua teostasi ilman lupaasi, voit seurata tässä https://fi.player.fm/legal kuvattua prosessia.
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My Son Has IPEX Syndrome and Needs a Lifesaving Transplant | Twin Mom Allison Creech

1:05:35
 
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Manage episode 304486528 series 2301213
Sisällön tarjoaa Natalie Diaz. Natalie Diaz tai sen podcast-alustan kumppani lataa ja toimittaa kaiken podcast-sisällön, mukaan lukien jaksot, grafiikat ja podcast-kuvaukset. Jos uskot jonkun käyttävän tekijänoikeudella suojattua teostasi ilman lupaasi, voit seurata tässä https://fi.player.fm/legal kuvattua prosessia.

Nat chats with Allison Creech, mom of twin boys plus an older singleton boy, who is dealing with her son Micah's terminal diagnosis of IPEX Syndrome which will require a bone marrow transplant. Allison shares her feelings around this diagnosis, how she is managing her three boys, and how her faith is helping to get her through this time.

IPEX is a genetic disease of immune dysregulation in which patients can present early in life with diarrhea, diabetes, and eczema. It is extremely rare, affecting 1 in every 1.6 million people. Patients with IPEX have abnormalities in the FOXP3 gene, which controls the production of regulatory T cells, a type of immune cell. Without a normal FOXP3 gene, other immune cells attack the body’s healthy tissues.

You can follow Micah's story here on Facebook.

Visit BeTheMatch.org to join the bone marrow registry.

For more information on IPEX, click here.

PLEASE review our podcast! We'd love to hear what you think!

Want to hear about specific podcast topics? Email us!

CONTACT US

Download the Twiniversity App: For twin pregnancy tracking and twins baby tracking! Download here

VISIT Twiniversity.com for tons of free twin tips!

FOLLOW us on Facebook, Instagram, Pinterest, YouTube, and Twitter.

SUBSCRIBE to our email newsletter!

Take a class! Twiniversity offers online expecting twins classes (both on-demand and live), a breastfeeding twins class, a twins after singletons class, and a baby safety class including CPR, first aid, car seat safety, and childproofing. Click here to check out our online classes.

Twiniversity Memberships: Includes Zoom Twin Club

Subscribe to the Twiniversity Email Newsletter!

Expecting twins? Twiniversity has you COVERED with online classes on:

  • Breastfeeding Twins
  • Twins After Singletons
  • Baby Safety (CPR, First Aid, Car Seat Safety, Childproofing)

Click here to sign up for a class!

Follow us on:

  continue reading

198 jaksoa

Artwork
iconJaa
 
Manage episode 304486528 series 2301213
Sisällön tarjoaa Natalie Diaz. Natalie Diaz tai sen podcast-alustan kumppani lataa ja toimittaa kaiken podcast-sisällön, mukaan lukien jaksot, grafiikat ja podcast-kuvaukset. Jos uskot jonkun käyttävän tekijänoikeudella suojattua teostasi ilman lupaasi, voit seurata tässä https://fi.player.fm/legal kuvattua prosessia.

Nat chats with Allison Creech, mom of twin boys plus an older singleton boy, who is dealing with her son Micah's terminal diagnosis of IPEX Syndrome which will require a bone marrow transplant. Allison shares her feelings around this diagnosis, how she is managing her three boys, and how her faith is helping to get her through this time.

IPEX is a genetic disease of immune dysregulation in which patients can present early in life with diarrhea, diabetes, and eczema. It is extremely rare, affecting 1 in every 1.6 million people. Patients with IPEX have abnormalities in the FOXP3 gene, which controls the production of regulatory T cells, a type of immune cell. Without a normal FOXP3 gene, other immune cells attack the body’s healthy tissues.

You can follow Micah's story here on Facebook.

Visit BeTheMatch.org to join the bone marrow registry.

For more information on IPEX, click here.

PLEASE review our podcast! We'd love to hear what you think!

Want to hear about specific podcast topics? Email us!

CONTACT US

Download the Twiniversity App: For twin pregnancy tracking and twins baby tracking! Download here

VISIT Twiniversity.com for tons of free twin tips!

FOLLOW us on Facebook, Instagram, Pinterest, YouTube, and Twitter.

SUBSCRIBE to our email newsletter!

Take a class! Twiniversity offers online expecting twins classes (both on-demand and live), a breastfeeding twins class, a twins after singletons class, and a baby safety class including CPR, first aid, car seat safety, and childproofing. Click here to check out our online classes.

Twiniversity Memberships: Includes Zoom Twin Club

Subscribe to the Twiniversity Email Newsletter!

Expecting twins? Twiniversity has you COVERED with online classes on:

  • Breastfeeding Twins
  • Twins After Singletons
  • Baby Safety (CPR, First Aid, Car Seat Safety, Childproofing)

Click here to sign up for a class!

Follow us on:

  continue reading

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