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The Talk Epilepsy Podcast brought to you by Epilepsy Scotland helps provide information and support for people living with epilepsy.
Epilepsy and its effects on the Nervous System
Just personal stories and experiences of me living with epilepsy. There will be some vulgarity at times because well epilepsy sucks ass. Cover art photo provided by John O'Nolan on Unsplash: https://unsplash.com/@johnonolan
As part of the I AM A VOICE for Epilepsy Awareness™ campaign, the Voice Epilepsy™ podcast series introduces a variety of topics related to epilepsy, including medications, treatment, law, employment, surgery, mental health, stress, and stigma, among many others. Whether you are a person living with epilepsy or you have a personal or professional interest in epilepsy, the Voice Epilepsy™ podcast series is for you! You can find the Voice Epilepsy™ podcast series on iTunes, Google Play, Spotify ...
Welcome to The Epilepsy Spectrum, your short and sweet stop for all things epilepsy! Listen every Sunday for new topics, stories or interviews all about epilepsy!
All things Epilepsy, by people with Epilepsy, for everyone. We here to help you answer your questions about seizures and Epilepsy so you can adapt to diagnosis as quickly as possible.
The Tuesday Epilepsy Club is hosted by Franziska Thomas author of bestselling 'Fits and Starts: A Memoir of Living With Epilepsy'. Season 1 will include topics like 'Living with Epilepsy' and 'Surviving Medication', as well surprise guest podcasters from around the world.Find out everything you need to know about Epilepsy in this lively, humorous podcast on Tuesday's at 9am. Franziska has more than 30 fits a day and designed a series great for those suffering from Epilepsy, as well an honest ...
What is medicinal marijuana? Where is it legal? How can it help with certain diseases or disorders such as epilepsy? Cover art photo provided by Esteban Lopez on Unsplash: https://unsplash.com/@exxteban
Epilepsy Advocate Radio is one of the many resources offered by Epilepsy Advocate—a community of people and their families living with epilepsy. Epilepsy Advocate Radio provides inspirational stories and commentary from people living with epilepsy in a series of individual interviews, led by Epilepsy Advocate Chris Maxwell. The second season of Epilepsy Advocate Radio will focus on an important theme, “OK is Not Good Enough!” meaning that people living with epilepsy should feel like they are ...
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"Life with Epilepsy, is living without seizures possible?"
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"Life with Epilepsy, is living without seizures possible?"
Dr. Gregory Krauss & Matt Duffield
Hear from XCOPRI® patient, Matt Duffield on his long journey with epilepsy and how advocating for yourself and never giving up hope led him to finding the right treatment option for him. He is joined by his neurologist, Dr. Gregory Krauss to share a perspective on his role in Matt’s treatment journey and overall education on epilepsy. This podcast episode is sponsored by SK Life Science, Inc.For Important Safety Information, visit https://www.xcopri.com/. Please see full Prescribing Informat ...
Epilepsy Talk Radio is a service of epilepsy.com sponsored by the Epilepsy Foundation. Listen here for interviews with leading research and healthcare professionals about epilepsy-related topics. The Epilepsy Foundation, a national non-profit with 48 affiliated organizations throughout the United States, has led the fight against seizures since 1968. The Foundation is an unwavering ally for individuals and families impacted by epilepsy and seizures. The mission of the Epilepsy Foundation is ...
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Accepting The Unacceptable, Parenting Autism, Epilepsy, Special Needs
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Accepting The Unacceptable, Parenting Autism, Epilepsy, Special Needs
Jody Warshawsky
This show is for anyone who is raising a child with neurological differences. Raising a child with autism and epilepsy like my daughter Remy, I have learned quite a few lessons about the special needs world and the evolution of growth as a mom. In this show, we discuss all of it. Parenting, marriage, the autism world, epilepsy world and everything in between. Welcome, I am so glad you stopped by
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neuroscienceCME - Epilepsy in the New Millennium: Emerging Treatments and Guidelines for Effective Diagnosis and Disease Management
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neuroscienceCME - Epilepsy in the New Millennium: Emerging Treatments and Guidelines for Effective Diagnosis and Disease Management
CME Outfitters
Does having a seizure mean epilepsy, or is it an isolated neurological event? Failure to recognize diagnostic uncertainty between the epilepsies and non-epileptic events may be a factor in high rates of misdiagnosis. Many patients who have been misdiagnosed as having epilepsy have had previous EEGs interpreted as epileptiform that contributed to the misdiagnosis of epilepsy. Patients are often faced with the need to tolerate complex cocktails of medications over long periods of time causing ...
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Talk Epilepsy Podcast
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10 Frequently Asked Questions about epilepsy
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In this episode, we talk to Epilepsy Scotland’s Helpline and Information Officer Uschi about the 10 most frequently asked questions about epilepsy that we receive via our freephone Helpline.
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Talk Epilepsy Podcast
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Mental health and epilepsy
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In this episode, we talk to SNP MSP Alasdair Allan about how he felt when he was diagnosed with epilepsy and the mental health issues that people with epilepsy can face. We also talk to Epilepsy Scotland’s Wellbeing Manager, Vicki Burns about how an epilepsy diagnosis can impact a person’s mental health and the help and support that can be provided…
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"Life with Epilepsy, is living without seizures possible?"
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"Life with Epilepsy, is living without seizures possible?"
24:54
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24:54
Episode 1: Hear from XCOPRI® patient, Matt Duffield on his long journey with epilepsy and how advocating for yourself and never giving up hope led him to finding the right treatment option for him. He is joined by his neurologist, Dr. Gregory Krauss to share a perspective on his role in Matt’s treatment journey and overall education on epilepsy. Th…
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Talk Epilepsy Podcast
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#BecauseOfEpilepsyScotland Niamh’s story
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Our Youth Group member Niamh shares how she felt when she was diagnosed with epilepsy and how being apart of the Epilepsy Scotland Youth Group has helped her. Please help us continue to be there for people like Niamh by donating to our Christmas Appeal by texting BECAUSE to 70085 to donate £3.
In this episode, we talk to Ben who was diagnosed with epilepsy when he was 14 years old. Ben shares his experiences of having tonic-clonic seizures. The challenges he has faced and how he went a period of being seven years seizure free and how he felt when he started to have seizures again.
Changing Medication has to be be one of the hardest things things to do. As I sit here, the first week of half term, my vision blurred for the second full day in a row I wonder what can be done. I don't want to live like this. I don't want my children to live like this, but there are no other medications I can take. I'm stuck between a rock and a h…
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The Tuesday Epilepsy Club
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Memory...And so it doesn't continue
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What if it didn't continue? What if you couldn't remember all the things you were supposed to? The following podcast is a light hearted look at what awaits someone who takes Anti Epileptic Drugs (AED's). Why light hearted? Because in these situations, your humour is often all you have. Especially if you start the day every morning with an almost 'b…
The loss of memory is an ongoing dilemma for people with Epilepsy. Some medications are known to cause confusion and memory loss, but added to this, the condition itself causes the brain function to deteriorate over time. It's logical. What's easy for you, becomes virtually impossible for me. Continually falling on your head, banging your head or s…
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The Tuesday Epilepsy Club
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Odds and Ends: Living with Memory loss and Epilepsy Part 2
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What would it be like to live without Epilepsy? As I write this I haven't had a Tonic Clonic fit for six months. I'm still having regular Partial fits, my head gets fuzzy-I wander around in circles. I get off the bus, but don't remember why, I look confused enough to have people come up to me, ask me if I'm ok. 'I don't know. I don't remember. Mayb…
It's not easy living with Epilepsy; it's definitely not easy living with mood changes. In this episode Franziska talks about her experiences over the years and how she has learnt to cope with the ups and downs of fits- from medication side effects to the seizures themselves and everything in between. Mood changes involve every one in your life and …
The final episode of a three-part episode series called 'Living with Epilepsy: The Student Experience'. Here, Monica Sgouros volunteered to share her experiences of organising epilepsy friendly club nights.
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Talk Epilepsy Podcast
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#StudentSeptember Episode 2 - Epilepsy, Mental Health, and Support
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The second episode of a three-part episode series called 'Living with Epilepsy: The Student Experience'. Here, Jacob Goss, a student with epilepsy, volunteered to speak with us about his experience of university.
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Talk Epilepsy Podcast
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#StudentSeptember Episode 1 - Epilepsy, Cognition, and Learning
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The first episode of a three-part episode series called 'Living with Epilepsy: The Student Experience'. Here, Louise Shambrook, volunteered to speak with us about her experiences of epilepsy and learning.
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Voice Epilepsy
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Voice Epilepsy Episode 26: Driving and Epilepsy
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In this episode of the Voice Epilepsy™ podcast, BC Epilepsy Society staff members, Sonia Ali and Christine Jamieson discuss driving and epilepsy, including how a person living with epilepsy can obtain their driver’s license in the province of British Columbia, as well as some transportation tips for people living with epilepsy who may be unable to …
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Voice Epilepsy
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Voice Epilepsy Episode 25: Discussion on the Seizing Hope Documentary with Dr. Judy Illes from Neuroethics Canada
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In this episode of the Voice Epilepsy™ podcast, BC Epilepsy Society Executive Director, Deirdre Syms, is joined by Dr. Judy Illes to discuss Seizing Hope - High Tech Journeys in Pediatric Epilepsy, a mini-documentary by Neuroethics Canada. Seizing Hope is a mini-documentary that aims to ask the question “Can new technology bring hope to children wh…
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Voice Epilepsy
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Voice Epilepsy Episode 24: Interview with Niomi Ndirangu, Miss Kansas’ Outstanding Teen 2022
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In this episode of the Voice Epilepsy™ podcast, BC Epilepsy Society Executive Director, Deirdre Syms is joined by Niomi Ndirangu, who is the 2022 winner of the Miss Kansas’ Outstanding Teen pageant and is a person living with epilepsy. Listen to this podcast to hear Niomi discuss her win and how she made history as the first African American Miss K…
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Voice Epilepsy
In this episode of the Voice Epilepsy™ podcast, Sharareh Saremi, an Advocate at Disability Alliance BC, joins us to discuss the Registered Disability Savings Plan (RDSP). If you would like to learn more about the provincial and federal disability benefits available to people living with epilepsy in BC, visit the Disability Alliance BC website at ww…
In this episode of the Voice Epilepsy™ podcast, Sharareh Saremi, an Advocate at Disability Alliance BC, joins us to discuss the Disability Tax Credit (DTC). If you would like to learn more about the provincial and federal disability benefits available to people living with epilepsy in BC, visit the Disability Alliance BC website at www.disabilityal…
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Voice Epilepsy
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Voice Epilepsy Episode 21: Information on Canada Pension Plan Disability (CPP-D) Benefits
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In this episode of the Voice Epilepsy™ podcast, Sharareh Saremi, an Advocate at Disability Alliance BC, joins us to discuss Canada Pension Plan Disability (CPP-D). If you would like to learn more about the provincial and federal disability benefits available to people living with epilepsy in BC, visit the Disability Alliance BC website at www.disab…
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Voice Epilepsy
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Voice Epilepsy Episode 20: Information on the Persons With Disabilities (PWD) Designation
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In this episode of the Voice Epilepsy™ podcast, Sharareh Saremi, an Advocate at Disability Alliance BC, joins us to discuss the Persons With Disabilities (PWD) Designation. If you would like to learn more about the provincial and federal disability benefits available to people living with epilepsy in BC, visit the Disability Alliance BC website at …
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Voice Epilepsy
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Voice Epilepsy Episode 19: UBC Interprofessional Health Mentors Program Seeks BC Epilepsy Patient Participation
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In this episode of the Voice Epilepsy™ podcast, BC Epilepsy Society Executive Director, Deirdre Syms is joined by the Director of the UBC Interprofessional Health Mentors Program, Dr. Angela Towle, PhD, and long-standing Health Mentor, Lelainia Lloyd to discuss the UBC Interprofessional Health Mentors Program. The UBC Interprofessional Health Mento…
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Voice Epilepsy
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Voice Epilepsy Episode 18: Adult Epilepsy Surgery
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For some adults living with epilepsy, epilepsy surgery may be a potential option for seizure control. Our podcast on adult epilepsy surgery, entitled “An Overview of Adult Epilepsy Surgery” features the expertise of Dr. Chantelle Hrazdil, MD, FRCPC, who is a pediatric epileptologist at Vancouver General Hospital. Listen to this podcast to learn abo…
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Voice Epilepsy
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Voice Epilepsy Episode 17: Pediatric Epilepsy Surgery
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For some children and youth living with epilepsy, epilepsy surgery may be a potential option for seizure control. Our podcast on pediatric epilepsy surgery, entitled “Epilepsy Surgery in Children and Youth: The Benefits of Early Surgery”, features the expertise of Dr. Mary Connolly, MB, BCh, BAO, FRCP(C), FRCP(I), FRCP(Edin) who is a pediatric epil…
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Voice Epilepsy
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Voice Epilepsy Episode 16: Service Dogs for People with Epilepsy
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In this episode of the Voice Epilepsy™ podcast, BC Epilepsy Society staff members, Sonia Ali and Christine Jamieson discuss service dogs for people with epilepsy, which are known as Seizure Response Dogs. Listen to this podcast to learn more about what a Seizure Response Dog is and does, as well as information on owning, training, certifying, and o…
In this episode, we chat to comedian Jake Lambert about his experiences of living with epilepsy and his new Edinburgh Fringe show where he will be talking about his epilepsy. We also talk to Leon Legge about how he manages his epilepsy as well as playing professional sport as part of our #ExcelWithEpilepsy campaign.…
Preparing for an interview can be hard when you have Epilepsy especially as nerves make fits worse.Kirjoittanut Franziska Thomas
Finding work with Epilepsy is not easy. Aside from the seizures themselves there is the medication side effects and exhaustion, but you are not alone.Kirjoittanut Franziska Thomas
In this special Purple Day episode, we talk to our volunteers Dave and Amy who share their experiences of living with epilepsy and how important awareness days like Purple Day are to help promote awareness of epilepsy.
Self Esteem is one of the biggest battles people with Epilepsy fight. Listen to Fran's podcast for tips on how to improve your self esteem today!Kirjoittanut Franziska Thomas
How would you describe your Epilepsy to others if asked? Would you sound confident? Concerned? Listen to some tips from Fran.Kirjoittanut Franziska Thomas
Caring for someone with Epilepsy is rewarding, but make no mistake it can be hard for both sides. Fran has been living with Refractory Epilepsy for over 25 years and still has melt downs!Kirjoittanut Franziska Thomas
In this episode we talk to Ross Bennet a former Detective Superintendent with Police Scotland and Michael Sturrock who works in politics as Head of Communications & Outreach. We discuss their experiences of living and managing their epilepsy, support received from their employers and what employers need to do to support people with epilepsy.…
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Talk Epilepsy Podcast
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Jenifer’s epilepsy story
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Jenifer was diagnosed with epilepsy when she was just 10 years old. Here she shares how she felt when she was first diagnosed, challenges she has faced and what she feels needs to be done to highlight invisible disabilities such as epilepsy.
Megan was diagnosed with epilepsy in June 2021. Here she shares how she felt when she was first diagnosed and her experiences of living with epilepsy.
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The Tuesday Epilepsy Club
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Raising Kids When You Have Epilepsy
12:40
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12:40
The Tuesday Epilepsy Club is hosted by Franziska Thomas author of bestselling 'Fits and Starts: A Memoir of Living With Epilepsy'. Season 1 will include topics like 'Stigma' and 'Surviving Medication', and 'Raising Kids when you have Epilepsy'. Listen to this podcast to discover the funny side of bringing up kids whilst trying to stay conscious! Th…
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The Tuesday Epilepsy Club
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Does the stigma of Epilepsy affect your life?
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12:06
The Tuesday Epilepsy Club is hosted by Franziska Thomas author of bestselling 'Fits and Starts: A Memoir of Living With Epilepsy'. Season 1 will include topics like 'Stigma' and 'Surviving Medication', as well surprise guest podcasters. People with Epilepsy endure the stigma of their condition every day. For some it's more obvious, for others it's …
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The Tuesday Epilepsy Club
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Guest Podcast singer song-writer Steph McGaraidh
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14:45
The Tuesday Epilepsy Club is hosted by Franziska Thomas author of bestselling 'Fits and Starts: A Memoir of Living With Epilepsy'. Season 1 will include topics like 'Living with Epilepsy' and 'Surviving Medication', as well surprise guest podcasters. Steph is the singer song-writer of the fabulous soundtrack to 'Fits&Starts' Audiobook. The Audioboo…
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The Tuesday Epilepsy Club
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Surviving Medication And Then Some
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13:15
The Tuesday Epilepsy Club is hosted by Franziska Thomas author of bestselling 'Fits and Starts: A Memoir of Living With Epilepsy'. Season 1 will include topics like 'Living with Epilepsy' and 'Surviving Medication', as well surprise guest podcasters from around the world. Find out everything you need to know about Epilepsy in this lively, humorous …
The Tuesday Epilepsy Club is hosted by Franziska Thomas author of bestselling 'Fits and Starts: A Memoir of Living With Epilepsy'. Season 1 will include topics like 'Living with Epilepsy' and 'Surviving Medication', as well surprise guest podcasters from around the world. Find out everything you need to know about Epilepsy in this lively, humorous …
Throughout September, Epilepsy Scotland is working to increase awareness of epilepsy amongst students and further education institutions. Our #StudentSeptember campaign aims to help students with epilepsy to adapt to further education as easily as possible, support them throughout their time there, and increase the understanding of epilepsy amongst…
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Voice Epilepsy
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Voice Epilepsy Episode 15: Interview with Chuck Carmen, Executive Director of the Epilepsy Association and Founder of EpilepsyU and EpilepsyStore
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Chuck Carmen joins us on the Voice Epilepsy™ podcast as host Kim Davidson, the CEO & Executive Director of the BC Epilepsy Society and the Founder of the I AM A VOICE for Epilepsy Awareness™ campaign, interviews Chuck Carmen, the Executive Director of the Epilepsy Association and the founder of EpilepsyU and the EpilepsyStore to discuss all of the …
In this episode we talked about the impact that the Covid pandemic has had on people’s epilepsy, epilepsy services and how services will look like post pandemic.
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Voice Epilepsy
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Voice Epilepsy Episode 14: University of Victoria Study Seeks BC Family Participation
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In this episode of the Voice Epilepsy™ podcast, host Kim Davidson, is joined by Registered Psychologist and PhD level Pediatric Neuropsychologist, Dr. Sarah J. Macoun to discuss the Dino Island research intervention from the University of Victoria (UVic) Dino Island is a cognitive intervention designed to improve attention and executive function ab…
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Voice Epilepsy
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Voice Epilepsy Episode 13: Canada-Wide Neurodevelopmental Study Seeks BC Family Participation
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In this episode of the Voice Epilepsy™ podcast, host Kim Davidson, is joined by Psychologist, Dr. Patrick McGrath and Research Assistant, Chaya Seale from the IWK Health Centre to discuss the Strongest Families Neurodevelopmental Study (part of the CHILD-BRIGHT Network). The Strongest Families Neurodevelopmental Program, “Parents Empowering Neurodi…
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The Brain Ablaze Epilepsy Podcast
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051: Personal Independence
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In this episode, the host of our podcast, David Clifford, talks about Personal Independence. He describes how we can maintain it while also staying safe. Though losing one’s driver’s license is frustrating, personal independence is just more than having the privilege to drive. A level-four Epilepsy Center has all the things that people need to lear…
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Voice Epilepsy
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Voice Epilepsy Episode 12 Interview with Cassidy Megan, Founder of Purple Day®
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"I have many heroes and here is a special one … tens of millions worldwide know her! She's been honoured by the Queen, NASA and dignitaries from around the world … modest, humble, kind and Canadian. She is Cassidy Megan, Founder of International Purple Day® for Epilepsy Awareness." -Kim Davidson, Voice Epilepsy™ Podcast Host Cassidy Megan joins us …
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The Brain Ablaze Epilepsy Podcast
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050: RNS (featuring Michael McKenna)
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In this episode, we describe Responsive Neurostimulation for Seizures (or RNS) and the RNS System created by NeuroPace Inc. Mike McKenna from NeuroPace Inc. generously comes on the show to describe his own experience with The RNS System. Though RNS sounds a lot like VNS, the two technologies are quite different. Does the RNS System Work? The NeuroP…
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The Brain Ablaze Epilepsy Podcast
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049: Epilepsy for Beginners
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This episode includes the basics of Epilepsy. Have you ever asked yourself, if I had the chance to give advice what would I say? In this episode, the host of our Epilepsy podcast, David Clifford, goes back in time to 1991 to give his former-self advice about Epilepsy and seizures. Are You New to Epilepsy? You should know that it affects a little mo…
The EEG (or Electroencephalography) has become the quintessential tool for Neurologists (or Epileptologists) to determine what is going on in our heads. It measures the tiny electrical changes in our brain. Neurologists arrange the data in a montage so it can be inspected. A trained Neurologist can use the EEG data to determine the origination of o…
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The Brain Ablaze Epilepsy Podcast
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047: Fundraising (Featuring Josh Green)
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Have you ever thought about creating a fundraising event for your local Epilepsy Awareness charity? You should! We invite Josh Green (Twitter @JoshGreen321) from Epilepsy Foundation Eastern Pennsylvania to tell us about their NOLA-Themed-Virtual-Gala on March 5-7, 2021. He also provides some handy tips so you can get your own virtual gala ready for…
