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Mit liv med GPP - en sjælden form for psoriasis

Boehringer Ingelheim Danmark A/S

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53-årige Steen har levet med generaliseret pustuløs psoriasis, også kaldet GPP, hele sit liv, og det har i perioder betydet lange indlæggelser og skolegang på hospitalet. Hør om livet med GPP i ny podcastserie i tre afsnit, hvor Steen giver et personligt indblik i, hvordan det er at vokse op med en sjælden, alvorlig hudlidelse.
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PsO Let’s Talk Psoriasis

PsO Let’s Talk Psoriasis

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Janssen Ireland has produced a video and podcast series to support and empower people living with psoriasis as they await access to vital healthcare services. Hosted by broadcaster, Dr Ciara Kelly, PsO Let’s Talk Psoriasis is the first series of its kind designed to bridge the gap in support for people awaiting specialist care, by providing access to expert guidance from leading Irish dermatologists to help people manage their psoriasis. PsO Let’s Talk Psoriasis features a range of guests in ...
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Stay up to date on the latest advancements in the management of one of the most common types of skin diseases with our exclusive podcast series, On the Frontlines of Psoriasis. Tune in to hear from leading dermatology experts as they explore key diagnosis and treatment strategies in addition to the ongoing research that’s reshaping our understanding of this common and chronic disease.
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Host: Raj Chovatiya, MD, PhD Guest: Tina Bhutani, MD, MAS Oftentimes patients with skin of color are diagnosed with psoriasis at a later stage than Caucasian patients. There are also disparities in access to treatment and education. According to a recent study, some patients with skin of color were less willing to use certain medications to treat t…
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Host: Charles Turck, PharmD, BCPS, BCCCP Guest: Taylor Dickerson, MD According to a recent study, patients with skin of color waited three times longer to be formally diagnosed with psoriasis and were almost four times more likely to be biopsied compared to non-Hispanic patients. And as a result, these patients were more likely to present with seve…
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Host: Raj Chovatiya, MD, PhD Guest: Steven R. Feldman, MD, PhD According to recent studies, only about 50 percent of psoriasis patients are adherent to topical medications by the end of an eight-week treatment period. This can have a significant impact on a patient’s overall quality of life and outcomes, which is why Dr. Raj Chovatiya speaks with D…
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Host: Raj Chovatiya, MD, PhD Guest: Jason E. Hawkes, MD, MS, FAAD There are a few key points that dermatologists need to keep at the forefront of conversations to help bridge education gaps around psoriasis. One is to try and eliminate burdens that are deterring practitioners in dermatology from using highly effective and very safe medications. To …
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Guest: Shari Lipner, MD A recent study was conducted looking at initial therapies for newly diagnosed psoriasis patients by race. Prior studies have shown differences by race in terms of emerging treatments for different dermatological diseases, which have also shown differential biologic treatments based on race. To learn about the findings and ho…
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Steen fortæller om, hvordan han havde det som barn med GPP, generaliseret pustuløs psoriasis. Han har haft den sjældne hudsygdom siden han var 2 år og giver et personligt indblik i, hvordan det er at vokse op med en alvorlig hudlidelse i perioder med lange indlæggelser og skolegang på hospitalet. Steen er i dag i 50'erne. Du kan møde ham her og bli…
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GPP påvirker ikke Steen meget, men nogle ting ville han ønske var anderledes: ”Det er måske lige at tage munden for fuld, hvis man ligger ude i Det Indiske Ocean og får et psoriasisudbrud”. I tredje og sidste afsnit af ’Mit liv med GPP – en sjælden form for psoriasis’ fortæller Steen, hvad det betyder at leve med en sygdom, der ud af det blå kan bl…
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”Det gør ondt. Det er lidt ligesom at have en forbrænding. En andengradsforbrænding. Og så har jeg høj feber i en periode." Det er nogle af de ord, som Steen sætter på en opblussen af den sjældne hudsygdom GPP. Hør hans ærlige fortælling i andet afsnit af podcastserien 'Mit liv med GPP - en sjælden form for psoriasis'. Vil du vide mere om sygdommen…
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Host: Matthew S. Keller MD Host: Monica Schwartzman, MD, MS Getting the proper treatment for patients with psoriasis and psoriatic arthritis can be life-changing. So how can clinicians help patients find the right medication? To discuss this topic together, Dr. Matthew Keller is joined by fellow ReachMD host, Dr. Monica Schwartzman, who is also a R…
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Our fourth and final episode in the Beyond Expectations: PsO Let’s Talk Psoriasis series looks at psoriatic arthritis which affects 30% of people living with psoriasis but is notoriously difficult to diagnose. Hosted by broadcaster Dr Ciara Kelly, our experts Prof. Doug Veale, Consultant Rheumatologist at St Vincent’s University Hospital and Grainn…
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Psoriasis does not discriminate and affects children as well as adults. In this third episode of Beyond Expectations: PsO Let’s Talk Psoriasis, we will address some of the biggest concerns of parents of children living with psoriasis. Broadcaster Dr Ciara Kelly is joined by Dr Maeve McAleer, Consultant Dermatologist at St. James’s Hospital, Fiona L…
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Learning to live with psoriasis presents its own unique challenges, especially during the period while people await access to specialist care. Episode two in our four-part Beyond Expectations: PsO Let’s Talk Psoriasis series focuses on common challenges faced by people living with psoriasis day-to-day. Prof. Caitriona Ryan, Consultant Dermatologist…
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Receiving a psoriasis diagnosis can be daunting but it's actually the first step towards managing the condition. The first episode of the four-part Beyond Expectations: PsO Let’s Talk Psoriasis series explains in simple terms what exactly psoriasis is, what causes it, and what a typical treatment journey might look like. Hosted by broadcaster, Dr C…
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Host: Matt Birnholz, MD Guest: Mark G. Lebwohl, MD Here to give us insight into the strategies he uses to personalize therapeutic approaches for his patients with severe psoriasis is Dr. Mark Lebwohl, professor and chairman of the Department of Dermatology at The Mount Sinai School of Medicine.
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