Parhaat Sclerosi Podcastit (2024)

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Ask Jack- Fermented foods | S6E23 44:06

2d ago44:06

44:06

Welcome to Living Well with MS, the podcast that empowers you to take control of your health and wellbeing. We are pleased to welcome Jack McNulty as our guest! Jack is a professional cook and a longtime follower of the Overcoming MS Program. In this episode, he answers questions from the community about fermented foods. Watch this episode on YouTu…

1
#087: Understanding and managing Neuromyelitis Optica (NMOSD). Latest Advances in treatment with Dr. Luis Alfonso Zarco 32:06

2d ago32:06

32:06

Neuromyelitis Optica Spectrum Disorder (NMOSD) need to be diagnosed and treated fast with highly effective therapies for a good prognosis. You can read the transcript of the interview here: https://ms-perspektive.com/87-luis-alfonso-zarco Living with neuromyelitis optica spectrum disorder (NMOSD) can be challenging. But the more you understand abou…

1
#086: Navigating Menopause with MS – Key insights on symptom progression, aging, and personalized care (ECTRIMS Special) 22:42

9d ago22:42

22:42

Find out how the menopause affects MS. What new research reveals about progression, symptom management, biological aging and quality of life. You can read the full article here: https://ms-perspektive.com/86-ectrims-menopause If you’re living with MS and approaching menopause, you might wonder how this life stage could impact your MS journey. Menop…

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Disease Modifying Therapies with Neurologist Dr. Aaron Boster | S6E22 58:21

16d ago58:21

58:21

Welcome to Living Well with MS, the podcast that empowers you to take control of your health and wellbeing. Today we’re thrilled to welcome back Dr Aaron Boster as our guest! Dr Boster is a board-certified Neurologist specialising in Multiple Sclerosis. He is a frequent guest on Living Well with MS and in this episode he’s here to talk about Medica…

1
#085: ECTRIMS Special on innovative MS rehabilitation for better quality of life 17:58

16d ago17:58

17:58

New approaches to MS Rehabilitation: From Telerehab to Ocean Sailing and individualized trainings plans for improved wellness. You can read the complete article here: https://ms-perspektive.com/085-ectrims-rehab Rehabilitation for multiple sclerosis (MS) is rapidly evolving, with exciting new approaches tailored to the unique needs of people with p…

1
084: Vascular dysfunction and Multiple Sclerosis. How Your vessels Could Shape Your MS Journey with Dr. Jonathan Pansieri 48:01

23d ago48:01

48:01

Dr. Jonathan Pansieri explains how vascular dysfunction could worsen multiple sclerosis and become a target for future treatment approaches. You can read all questions and answers here: https://ms-perspektive.com/84-Vascular-dysfunction When it comes to multiple sclerosis (MS), you probably know that the immune system plays a role in attacking the …

1
Webinar Highlights: Reducing stress through meditation and mindfulness with Dr Phil Startin | S6E21 32:23

1M ago32:23

32:23

Welcome to Living Well with MS, the podcast that empowers you to take control of your health and wellbeing. Today we’re sharing the highlights from our webinar with the incredible Dr Phil Startin! Phil is an Overcoming MS facilitator who lives with progressive MS. He’s an expert in meditation and mindfulness and teaches Mindfulness Based Stress Red…

1
#083: ECTRIMS Special on De-escalation and discontinuation of therapies for MS – What does it mean and how can it work? 33:08

1M ago33:08

33:08

When can we consider de-escalation or even discontinuation of a high-efficient immunotherapy for MS without risking a disease worsening? You can read the full article on my blog: https://ms-perspektive.com/83-deescalation Hello and welcome to another summary of ECTRIMS 2024, this time on the topic of de-escalation and discontinuation of therapy. Th…

1
#082: Living with neuromyelitis optica (NMO) in Denmark with Leda Bresnov 39:30

1M ago39:30

39:30

Leda Bresnov shares her diagnosis, coping strategies, and insights on living with neuromyelitis optica (NMO) in Denmark. You can read all questions and answers on my blog: https://ms-perspektive.com/82-leda Meet NMO patient Leda Bresnov, a strong and inspiring woman who is originally from Brazil and has been living in Denmark since 1991. Leda, a wi…

1
Meditation with Overcoming MS facilitator Yvette Sargood | S6E20 40:08

1M ago40:08

40:08

Welcome to Living Well with MS, the podcast that empowers you to take control of your health and wellbeing. Today we’re thrilled to welcome Yvette Sargood as our guest! Yvette is an Overcoming MS facilitator and a meditation teacher who lives with MS and follows the Overcoming MS program. In this fascinating episode, Yvette talks to Geoff about med…

1
#081: Navigating Treatment and Support for MS, NMOSD, and MOGAD in Montenegro with Dr. Sanja Gluscevic 45:29

1M ago45:29

45:29

Dr. Sanja V. Gluscevic, a neurologist from Montenegro, specializes in MS, NMOSD and MOGAD, and is dedicated to patient care and advocacy. You can read all questions and answers on my blog: https://ms-perspektive.com/81-sanja-gluscevic Today I would like to introduce you to Dr. Sanja V. Gluscevic, a renowned neurologist who specializes in multiple s…

1
Mind Over MS: Strategies for Staying Positive 38:31

2M ago38:31

38:31

Facing the first symptoms and a new multiple sclerosis diagnosis can be terrifying, leaving you with a flood of questions about your future. How do you navigate your career, relationships, and whether to start a family? The uncertainty can be overwhelming, but you don’t have to go it alone. Support from loved ones and connections with others living…

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#080: B-Cell Depletion – Ocrelizumab (Ocrevus), Ofatumumab (Kesimpta, Bonspri), Rituximab (Mabthera, Rituxan), Ublituximab (Briumvi) for active RRMS and SPMS, and early PPMS 30:40

2M ago30:40

30:40

Learn more about b-cell depletion, including Ocrevus, Kesimpta, Bonspri, Mabthera, Rituxan, and Briumvi, used for active RRMS, SPMS, and PPMS. You can read the full article on my blog: https://ms-perspektive.com/080-b-cell-depletion B-cell depletion therapies such as ocrelizumab (Ocrevus), ofatumumab (Kesimpta, Bonspri), rituximab (Mabthera, Rituxa…

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Special: ECTRIMS 2024 - Personalized MS treatments, genetic risk factors and the benefits of early, effective therapies for women and children 19:51

2M ago19:51

19:51

Personalized treatments, genetic risk factors, gender differences and the advantages of early, highly effective therapies. You can read the full article here: https://ms-perspektive.com/ectrims-2024-ww1 This year, ECTRIMS 2024 in Copenhagen, Denmark, will once again bring together leading experts in multiple sclerosis (MS) from around the world. Th…

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Webinar Highlights: Your opportunity to speak to a Neurologist about Living Well with MS with Dr Aaron Boster | S6E19 48:10

2M ago48:10

48:10

Welcome to Living Well with MS, the podcast that empowers you to take control of your health and wellbeing. Today we’re sharing the highlights from our ‘Ask Aaron’ webinar, recorded in front of a global audience, with the incredible Dr Aaron Boster. Dr Boster is a board-certified neurologist who specialises in MS, and we’re delighted to have him an…

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#079: How your gut microbiome could influence Multiple Sclerosis with Prof. Dr. Natalia Szejko 44:52

2M ago44:52

44:52

Dr. Natalia Szejko reveals latest research on gut microbiome for MS, MOGAD, and NMOSD, offering new hope for managing these conditions. You can read all the questions and answers in the corresponding blog article: https://ms-perspektive.com/079-natalia-szejko Welcome to today’s episode. Whether you have MS, MOGAD (myelin oligodendrocyte glycoprotei…

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#078: Cladribine (Mavenclad, Leustat, Litak) for highly active MS 24:37

2M ago24:37

24:37

Cladribine (Mavenclad, Leustat, Litak) is an induction therapy the supresses the immun system and is used for highly active MS. You can read the complete article at: https://ms-perspektive.com/078-cladribine Cladribine (Mavenclad, Leustat, Litak) is an immunotherapy from the field of immunosuppressants that is used to treat highly active multiple s…

1
Diagnosing Multiple Sclerosis 35:25

2M ago35:25

35:25

In this era of highly effective treatments, early intervention for multiple sclerosis can be life changing. However, the wide range of initial symptoms often leads to many people being undiagnosed or misdiagnosed, leaving them without the proper care for years. In this podcast episode, we'll discuss the early signs of MS and the key tests, such as …

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The latest research in exercise for MS with Dr Robert Motl | S6E18 38:21

2M ago38:21

38:21

Welcome to Living Well with MS, the podcast that empowers you to take control of your health and wellbeing. Today we’re thrilled to welcome Dr Robert Motl as our guest! Dr Motl is a professor of kinesiology, nutrition and rehabilitation sciences at the University of Illinois at Chicago. He’s a top researcher in the field of exercise and physical ac…

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#077: Tailoring MS Treatment. The Impact of Mood Disorders on Patient Care with Dr. Emine Rabia Koç 37:47

2M ago37:47

37:47

Explore Dr. Emine Rabia Koç's insights on blending emotional and physical health for a holistic approach to MS treatment. You can find the written version as blog article here: https://ms-perspektive.com/77-emine-rabia-koc Today I speak with Dr. Emine Rabia Koç about the important intersection between mood disorders and patient care in multiple scl…

1
#076: Alemtuzumab (Lemtrada, Campath) for highly active relapsing MS 27:06

3M ago27:06

27:06

Alemtuzumab (Lemtrada, Campath) is a DMT to treat highly active MS and has long-lasting effects and potential severe side effects. You can read the full article on my blog: https://ms-perspektive.com/076-alemtuzumab This time the focus is on alemtuzumab (Lemtrada, Campath). It is one of the highly effective immunotherapies and, in a subgroup of pat…

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Webinar Highlights: Resilience following Overcoming MS with Dr Rachael Hunter | S6E17 20:03

3M ago20:03

20:03

Welcome to Living Well with MS, the podcast that empowers you to take control of your health and wellbeing. Today we’re sharing the highlights from our webinar on ‘Resilience following Overcoming MS’ with the fantastic Dr Rachael Hunter. Rachael is a clinical psychologist and senior lecturer in clinical and health psychology at Swansea University. …

1
#075: Decoding the EDSS Score. How It's Measured and What It Means 7:41

3M ago7:41

7:41

The EDSS score helps neurologists to measure the progression of MS as it measures limitations in functional systems. You can find the full article at: https://ms-perspektive.com/75-edss The Expanded Disability Status Scale (EDSS) is a key tool used by neurologists to measure how Multiple Sclerosis (MS) affects your body. Understanding the EDSS can …

1
MS & The Spinal Cord 39:50

3M ago39:50

39:50

The spinal cord serves as the main communication highway between the brain and body. Did you know that 80% of people with multiple sclerosis have spinal cord lesions on MRI? These lesions can disrupt specific neural pathways, leading to common MS symptoms like numbness, weakness, impaired coordination, balance issues, bladder problems, constipation…

1
#074: S1P Modulators - Fingolimod (Gilenya), Ozanimod (Zeposia), Ponesimod (Ponvory), Siponimod (Mayzent) for active RRMS & SPMS 31:10

3M ago31:10

31:10

Learn more about the S1P Modulators, known by the brand names Gilenya, Zeposia, Ponvory, Mayzent and their usage against active RRMS & SPMS. You can find the complete text to read on my blog: https://ms-perspektive.com/074-s1p-modulators Today it’s all about the group of S1P modulators, which includes fingolimod (Gilenya), ozanimod (Zeposia), pones…

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Nutritional Therapy with Bristol Ambassador Jenna Cox | S6E16 44:07

3M ago44:07

44:07

Welcome to Living Well with MS, where we are pleased to welcome Jenna Cox as our guest! Jenna is a nutritional therapist who lives with MS and is an Ambassador for the Bristol, UK Circle. In this episode, she talks about dairy alternatives, calcium and bone density on a plant-based diet and probiotics for the gut microbiome. Topics and Timestamps: …

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#073: “Haciendo Lo Invisible, Visible”. Crys's Journey of Invisible Battles and Visible Triumphs as Latina with MS in the US 52:57

3M ago52:57

52:57

Crys was diagnosed with MS at the age of 11. She talks about her experiences as a first-generation Latina and her mission on social media. You can find all questions and answers on my blog: https://ms-perspektive.com/073-crys Today I’m talking to Crys about her life with multiple sclerosis as a first generation Latina. Crys was diagnosed at age ele…

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Webinar Highlights: Overcoming MS with ‘talkhealth’ and Dr Jonathan White | S6E15 45:22

4M ago45:22

45:22

In this episode, we’re sharing highlights from a ‘talkhealth’ webinar: ‘TH+ Expert Webinar with Dr Jonathan White: Overcoming MS’. In the webinar, Overcoming MS medical advisor, Dr Jonathan White speaks about the evidence and benefits of the Program, his personal MS journey and making healthy changes for life. ‘talkhealth’ is a patient-centric onli…

1
#072: Natalizumab (Tysabri, Tyruko) for active relapsing remitting MS 22:13

4M ago22:13

22:13

Natalizumab (Tysabri, Tyruko) is approved as disease-modifying therapy (DMT) for active RRMS with a rapidly evolving severe MS. You can read the complete article on my blog: https://ms-perspektive.com/072-natalizumab Today we are talking about natalizumab, which is known under the trade names Tysabri and Tyruko. The immunotherapy is used for active…

1
Following and supporting Overcoming MS as a couple | S6E14 27:39

4M ago27:39

27:39

Welcome to Living Well with MS, where we are pleased to welcome Jane and Ian Airey-Regardsoe as our guests! Jane is a member of the Southwest, UK Circle and her husband, Ian is cycling to France as a fundraising challenge, supported by Jane, to benefit Overcoming MS. They chat about adopting the Overcoming MS Program as a couple, their fundraising …

1
#071: Insights into MS treatment in Colombia with neurologist Dr. Adriana Casallas Vanegas 41:39

4M ago41:39

41:39

Dr. Adriana Casallas V. provides insights into the treatment and care of MS patients in Colombia including improvements and challenges. You can find all questions and answers to read through on my blog: https://ms-perspektive.com/71-adriana-casallas MS has long been known as an orphan disease in Colombia, but the increasing number of newly diagnose…

1
#070: Teriflunomide (Aubagio) for relapsing remitting MS 19:06

4M ago19:06

19:06

Teriflunomide (Aubagio) is approved as disease-modifying therapy for mild to moderate RRMS from 10 years of age. You can find the full article to read on my blog: https://ms-perspektive.com/70-teriflunomide This time it’s about teriflunomide, which is known under the trade name Aubagio. The immunotherapy is used for mild to moderate courses of rela…

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#069: Beyond Boundaries. Advocacy, Research, and Recognition in MS with Rachel Horne 1:00:18

4M ago1:00:18

1:00:18

MS patient and advocate Rachel Horne sponsors a prize for women in MS research and campaigns for more diversity in clinical trials. You can read all questions and answers on my blog: https://ms-perspektive.com/69-rachel-horne Rachel Horne was diagnosed with multiple sclerosis at the age of 43, when she felt fit and healthy. She established the Rach…

1
#068: Interferon-beta (Avonex, Betaferon, Extavia, Plegridy, Rebif, …) for CIS, RRMS & SPMS 21:52

5M ago21:52

21:52

Interferon-beta (Avonex, Betaferon, Extavia, Plegrid,y Rebif) is used as a disease-modifying therapy for mild to moderate RRMS, CIS & SPMS. You can find the full article to read on my blog: https://ms-perspektive.com/068-interferons In today’s article, I present interferon-beta, which include several active substances and are known as Avonex, Betaf…

1
Highly Sensitive People and MS with Psychotherapeutic Counsellor Rachel Burn | S6E13 32:17

5M ago32:17

32:17

Welcome to Living Well with MS, where we are pleased to welcome Rachel Burn as our guest! Rachel is a Psychotherapeutic Counsellor and follows the Overcoming MS Program. In this episode, Rachel talks to Geoff about who should work with a therapist, how to choose a therapist, how to unpack our emotions and how to know if you’re a highly sensitive pe…

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#067: MS Speech Therapy Insights. Enhancing Communication and Swallowing 16:19

5M ago16:19

16:19

Discover how speech therapists can address often overlooked MS-related swallowing and communication disorders for timely intervention. You can find the written version to read on my blog: https://ms-perspektive.com/67-speech-therapy Swallowing and speech disorders usually play a subordinate role in the perception of patients. However, problems with…

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Accessible Live Music with Bee Grzegorzek from Attitude is Everything | S6E12 48:43

5M ago48:43

48:43

Welcome to Living Well with MS, where we are pleased to welcome Bee Grzegorzek (she/they) as our guest! Bee is the Inclusive Communities Manager for UK-based charity, Attitude is Everything, which connects disabled people with music and live event industries to improve access together. They talk to Geoff about making a festival safe and enjoyable, …

1
#066: Pioneering Paths. Empowering Young Minds in MS & NMO Research with Dr. Sara Samadzadeh 49:08

5M ago49:08

49:08

Dr. Sara Samadzadeh contributes to research in the field of NMOSD and MS by creating networks between young researchers worldwide. You can find all questions and answers as well as all links on the blog article: https://ms-perspektive.com/066-sara-samadzadeh Multiple sclerosis and NMOSD have made tremendous advances in treatment due to research con…

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