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Sisällön tarjoaa Ronda F Jefferson. Ronda F Jefferson tai sen podcast-alustan kumppani lataa ja toimittaa kaiken podcast-sisällön, mukaan lukien jaksot, grafiikat ja podcast-kuvaukset. Jos uskot jonkun käyttävän tekijänoikeudella suojattua teostasi ilman lupaasi, voit seurata tässä https://fi.player.fm/legal kuvattua prosessia.
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People want to feel supported and safe at work – and inspired to innovate. What can people working at large corporations do to create this kind of environment? Saskia Mureau is the Director of Customer Digital at the Port of Rotterdam where she is harnessing digital systems to reduce emissions. She is passionate about creating inclusive workplaces where psychological safety and collaboration drive meaningful change. In this episode, Kamila sits down with Suchi to talk about why she chose to work at large corporations rather than startups. Saskia also reflects on her personal experiences, including navigating IVF while at work, and discusses how organizations can foster environments where employees feel empowered to bring their whole selves to work. Links: Saskia Mureau on Linkedin WHO infertility research BCG 2024 report on psychological safety in the workplace Suchi Srinivasan on LinkedIn Kamila Rakhimova on LinkedIn About In Her Ellement: In Her Ellement highlights the women and allies leading the charge in digital, business, and technology innovation. Through engaging conversations, the podcast explores their journeys—celebrating successes and acknowledging the balance between work and family. Most importantly, it asks: when was the moment you realized you hadn’t just arrived—you were truly in your element? About The Hosts: Suchi Srinivasan is an expert in AI and digital transformation. Originally from India, her career includes roles at trailblazing organizations like Bell Labs and Microsoft. In 2011, she co-founded the Cleanweb Hackathon, a global initiative driving IT-powered climate solutions with over 10,000 members across 25+ countries. She also advises Women in Cloud, aiming to create $1B in economic opportunities for women entrepreneurs by 2030. Kamila Rakhimova is a fintech leader whose journey took her from Tajikistan to the U.S., where she built a career on her own terms. Leveraging her English proficiency and international relations expertise, she discovered the power of microfinance and moved to the U.S., eventually leading Amazon's Alexa Fund to support underrepresented founders. Subscribe to In Her Ellement on your podcast app of choice to hear meaningful conversations with women in digital, business, and technology.…
See the Invisible: Living with an Invisible or Rare Disease
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Sisällön tarjoaa Ronda F Jefferson. Ronda F Jefferson tai sen podcast-alustan kumppani lataa ja toimittaa kaiken podcast-sisällön, mukaan lukien jaksot, grafiikat ja podcast-kuvaukset. Jos uskot jonkun käyttävän tekijänoikeudella suojattua teostasi ilman lupaasi, voit seurata tässä https://fi.player.fm/legal kuvattua prosessia.
I want to share information about living with and dealing with a chronic or invisible disease. This is made even more difficult if the disease is rare. I'll share my story and also invite some guests to share their viewpoints and experiences. There are hundreds of different types of diseases out there that are invisible and can the sufferer feel more alone. I'm hoping to help the patient, families and other support systems better communicate and empathize with each other. ***Disclaimer - This podcast is not meant to take the place of any medical or insurance advice. Support this podcast: SeetheInvisible2020.com – Dare to be seen!
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54 jaksoa
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Manage series 2923408
Sisällön tarjoaa Ronda F Jefferson. Ronda F Jefferson tai sen podcast-alustan kumppani lataa ja toimittaa kaiken podcast-sisällön, mukaan lukien jaksot, grafiikat ja podcast-kuvaukset. Jos uskot jonkun käyttävän tekijänoikeudella suojattua teostasi ilman lupaasi, voit seurata tässä https://fi.player.fm/legal kuvattua prosessia.
I want to share information about living with and dealing with a chronic or invisible disease. This is made even more difficult if the disease is rare. I'll share my story and also invite some guests to share their viewpoints and experiences. There are hundreds of different types of diseases out there that are invisible and can the sufferer feel more alone. I'm hoping to help the patient, families and other support systems better communicate and empathize with each other. ***Disclaimer - This podcast is not meant to take the place of any medical or insurance advice. Support this podcast: SeetheInvisible2020.com – Dare to be seen!
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×1 The Importance of Diverse Representation in Clinical Trials 1:08:24
1:08:24
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1:08:24On this episode, I will be speaking with Erica Courtenay-Mann, an advocate for patients with Sarcoidosis. She gives talks regarding what it's like to live with chronic illnesses & she is involved in the Women of Color Committee and the ACTe Now! Patient Committee. She is a strong voice to raise awareness about the importance of clinical trials, especially in communities that are underrepresented. With each step taken towards more inclusive clinical trials and the data gained from them, we grow closer to a better understanding of how “snowflake" diseases progress. Links for further information: https://www.stopsarcoidosis.org/ Mayo Clinic - Information on Clinical Trials and Sarcoidosis Research Congress Enacts Legislation Requiring Guidance on Clinical Research Diversity and Modernization | Ropes & Gray LLP Contact Info - Podcast: See the Invisible: Living with an Invisible or Rare Disease Contact: Email: Seetheinvisible2020@gmail.com Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter Facebook: SeetheInvisible2020 | Facebook Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos YouTube: SeeTheInvisible - YouTube…
1 Cerebral Cavernous Malformations & The Breaking Barriers Initiative - Interview with Dr. Vegas Brown 57:01
In this episode, I will be talking to Dr. Vegas Brown about Cerebral Cavernous Malformations and the Breaking Barriers for Black Health Empowerment initiative to help address the disparities that still plague the Healthcare System, especially for black Americans that have a rare disease. Photo Credit - Integra LifeSciences Angioma Alliance - https://www.alliancetocure.org/ Breaking Barriers - https://www.blackccm.org/ HUED - https://huedco.com/ Cavernous malformations - Symptoms and causes - Mayo Clinic - https://www.mayoclinic.org/diseases-conditions/cavernous-malformations/symptoms-causes/syc-20360941 Cavernous malformation and the Breaking Barriers Initiative - https://rarerevolutionmagazine.com/cavernous-malformation-and-the-breaking-barriers-initiative/ Contact Info: Email: Seetheinvisible2020@gmail.com Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter Facebook: SeetheInvisible2020 | Facebook Website: SeetheInvisible2020.com – Dare to be seen! Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos…
1 Sarcoidosis: Disparities in Healthcare & the Importance of Diversity in Clinical Trials 1:09:22
1:09:22
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1:09:22Photo Credit - pulmonaryhypertensionnews.com In this episode, I will be interviewing Dr. Divya Patel. She works closely with Sarcoidosis patients and the work that she and so many other doctors do is important for recognition of this terrible disease. I have seen this disease first-hand. Ten years ago, my sister died from complications from one of the forms of sarcoidosis. It is extremely important that clinical trials are performed in order to advance the treatment of not only sarcoidosis, but all rare diseases. Just as important is to make sure that all people are represented. Black people are significantly underrepresented in clinical trials, not only in the U.S. but in many other countries. We will be discussing what these trials are and why it is so important to have all people represented. "Dr. Patel is a Clinical Associate Professor of Pulmonology and Director of the Sarcoidosis and ILD Programs at the University of Florida. The focus of her career is to improve the care of patients who are critically ill and have chronic pulmonary conditions such as sarcoidosis and interstitial disease. She has a special interest in understanding how sarcoidosis affects patients from underrepresented backgrounds and the obstacles they face in accessing care. Having completed specialized training, she participates in clinical research with the aim to improve the quality of life of patients." Important Resources: http://www.stopsarcoidosis.org/ACTNow (Survey) http://www.stopsarcoidosis.org. https://www.lung.org/lung-health-diseases/lung-disease-lookup/sarcoidosis https://www.nhlbi.nih.gov/health/sarcoidosis www.rarediseases.org…
Moderna Sues Pfizer & a collaborator of the Pfizer vaccine for patent infringement using MRNA technology which Moderna held patents for. Moderna had allowed other companies to use their technology during the pandemic, but is looking for "royalties" to state it simply for sales of the vaccine from a certain date, except for sales made to the US government and to some less wealthy countries. Sources: Moderna Sues Pfizer and BioNTech Over Covid Vaccine Technology - The New York Times Moderna files patent infringement lawsuits against Pfizer and BioNTech over mRNA Covid-19 vaccines | CNN The Orphan Drug Act: Restoring the Mission to Rare Diseases : American Journal of Clinical Oncology . The Orphan Drug Act: Implementation and Impact (OEI-09-00-00380 Moderna posts billions in profit from COVID-19 vaccine but won’t share technology | Doctors Without Borders Countries urge drug companies to share vaccine know-how | AP News https://www.bmj.com/content/377/bmj.o1086 What are the difference between patent and generic medicine? Drug Patent Life: How Long Do Drug Patents Last? – DrugPatentWatch - Make Better Decisions . From evergreening to thicketing: exploring the manipulation of pharma patents Contact Info: Contact: Email: Seetheinvisible2020@gmail.com Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter Facebook: SeetheInvisible2020 | Facebook Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos Photo Credit SpencerBDavis1 https://pixabay.com/images/id-6165772/…
I've learned a few more things about insurance and how things are handled regarding the Affordable Care Act, prices that providers charge, and how this can lead to bias, whether conscious or unconscious. Contact Info: Contact: Email: Seetheinvisible2020@gmail.com Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter Facebook: SeetheInvisible2020 | Facebook Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos YouTube: SeeTheInvisible - YouTube Sources: https://www.listennotes.com/da/podcasts/see-the-invisible/healthcare-disparities-09VdwJcNRz8/ https://www.kff.org/racial-equity-and-health-policy/issue-brief/disparities-in-health-and-health-care-5-key-question-and-answers/ https://www.kff.org/racial-equity-and-health-policy/issue-brief/health-coverage-by-race-and-ethnicity/ https://www.ama-assn.org/delivering-care/patient-support-advocacy/reducing-disparities-health-care https://cdn.americanprogress.org/content/uploads/2020/05/06130714/HealthRace-factsheet.pdf?_ga=2.43335271.359077268.1632144410-1466257282.1632144410 http://www.healthcompassmilwaukee.org/tiles/index/display?alias=inequity https://www.cdc.gov/nchs/hus/spotlight/2019-heart-disease-disparities.htm…
I will provide updates as well as some new insight to some parts of the healthcare system as I have unfortunately experienced them over the past few months. The disparities seem to be getting worse, and to me, I think it is impossible to even fathom the long-term impacts that these severe shortcomings have on patients and future generations. Contact Info: Contact: Email: Seetheinvisible2020@gmail.com Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter Facebook: SeetheInvisible2020 | Facebook Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos YouTube: SeeTheInvisible - YouTube Sources: https://www.listennotes.com/da/podcasts/see-the-invisible/healthcare-disparities-09VdwJcNRz8/ https://www.kff.org/racial-equity-and-health-policy/issue-brief/disparities-in-health-and-health-care-5-key-question-and-answers/ https://www.kff.org/racial-equity-and-health-policy/issue-brief/health-coverage-by-race-and-ethnicity/ https://www.ama-assn.org/delivering-care/patient-support-advocacy/reducing-disparities-health-care https://cdn.americanprogress.org/content/uploads/2020/05/06130714/HealthRace-factsheet.pdf?_ga=2.43335271.359077268.1632144410-1466257282.1632144410 http://www.healthcompassmilwaukee.org/tiles/index/display?alias=inequity https://www.cdc.gov/nchs/hus/spotlight/2019-heart-disease-disparities.htm…
Hi everyone. I know it's been awhile since I've done a new episode, but I'll be back shortly. I hope to have an episode out in the next two weeks. Hope everyone has been well. Talk to you soon.
First, thank you all for your patience. My family and I had Covid. Thanksgiving was spent in quarantine and I'm still not 100% (but really, I haven't been 100% in years) but I'm slowly getting there. Also, I will be moving the podcast to a new host. I currently pay monthly for this host, but I'm finding that is not really feasible to continue. I will be moving it to a no-charge host. I will keep it on this host until at least 12/24 but then will move it. It should not cause any issues in the long term. Possibly during a 24 hour period there may be some lag in updating from one host to the other, but the new host (supposedly) is supposed to be able to keep the same feed for the podcast. The only thing that would change is if you did try to access the Podbean Website directly If you use a podcast app, not should change, hopefully. So this episode will continue the series on inequities in Healthcare. As the new year approaches, and many people needing to change insurance for one reason or another, and deductibles resetting even if you are keeping the same insurance, many of us will face difficulties in navigating our healthcare over the next few months at least. Contact Info: Contact: Email: Seetheinvisible2020@gmail.com Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter Facebook: SeetheInvisible2020 | Facebook Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos YouTube: SeeTheInvisible - YouTube Sources: https://www.listennotes.com/da/podcasts/see-the-invisible/healthcare-disparities-09VdwJcNRz8/ https://www.kff.org/racial-equity-and-health-policy/issue-brief/disparities-in-health-and-health-care-5-key-question-and-answers/ https://www.kff.org/racial-equity-and-health-policy/issue-brief/health-coverage-by-race-and-ethnicity/ https://www.ama-assn.org/delivering-care/patient-support-advocacy/reducing-disparities-health-care https://cdn.americanprogress.org/content/uploads/2020/05/06130714/HealthRace-factsheet.pdf?_ga=2.43335271.359077268.1632144410-1466257282.1632144410 http://www.healthcompassmilwaukee.org/tiles/index/display?alias=inequity https://www.cdc.gov/nchs/hus/spotlight/2019-heart-disease-disparities.htm…
We continue to review healthcare disparities and inequalities within our healthcare system and look at reasons why they may exist and what we can do to try to erase them. Contact Info: Contact: Email: Seetheinvisible2020@gmail.com Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter Facebook: SeetheInvisible2020 | Facebook Website: SeetheInvisible2020.com – Dare to be seen! Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos YouTube: SeeTheInvisible - YouTube Sources: https://www.listennotes.com/da/podcasts/see-the-invisible/healthcare-disparities-09VdwJcNRz8/ https://www.kff.org/racial-equity-and-health-policy/issue-brief/disparities-in-health-and-health-care-5-key-question-and-answers/ https://www.kff.org/racial-equity-and-health-policy/issue-brief/health-coverage-by-race-and-ethnicity/ https://www.ama-assn.org/delivering-care/patient-support-advocacy/reducing-disparities-health-care https://cdn.americanprogress.org/content/uploads/2020/05/06130714/HealthRace-factsheet.pdf?_ga=2.43335271.359077268.1632144410-1466257282.1632144410 http://www.healthcompassmilwaukee.org/tiles/index/display?alias=inequity https://www.cdc.gov/nchs/hus/spotlight/2019-heart-disease-disparities.htm…
Part 2 of our series on addressing healthcare disparities: We will review what baselines are and how they can impact clinical trials, as well as begin to discuss why it is important that clinical trials include people of all backgrounds. Contact: Email: Seetheinvisible2020@gmail.com Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter Facebook: SeetheInvisible2020 | Facebook Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos YouTube: SeeTheInvisible - YouTube https://www.aafa.org/ https://pharpoint.com/resources/the-history-of-clinical-trials/ https://acrpnet.org/2020/08/10/representation-in-clinical-trials-a-review-on-reaching-underrepresented-populations-in-research/ https://cdn.americanprogress.org/content/uploads/2020/05/06130714/HealthRace-factsheet.pdf?_ga=2.43335271.359077268.1632144410-1466257282.1632144410 https://health.gov/healthypeople/objectives-and-data/about-objectives https://www.cdc.gov/nchs/hus/spotlight/2019-heart-disease-disparities.htm https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3149409/ https://www.kff.org/racial-equity-and-health-policy/issue-brief/disparities-in-health-and-health-care-5-key-question-and-answers/ https://scopeblog.stanford.edu/2015/01/27/why-establishing-a-health-baseline-is-a-critical-starting-point-for-achieving-future-health-goals/ https://pharmaceutical-journal.com/article/feature/why-we-need-to-talk-about-sex-and-clinical-trials https://www.ama-assn.org/delivering-care/patient-support-advocacy/reducing-disparities-health-care…
This episode will begin the series on address healthcare disparities and accessibility. This will be a multi-part series as there is a wealth of items that need to be addressed, and in this case, wealth is not good. This episode will review key points and information for understanding what the next episodes hold and why addressing these now is not only important, it is imperative. Contact: Email: Seetheinvisible2020@gmail.com Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter Facebook: SeetheInvisible2020 | Facebook Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos YouTube: SeeTheInvisible - YouTube https://www.aafa.org/ https://www.healthypeople.gov/2020/about/foundation-health-measures/Disparities https://www.americanprogress.org/issues/race/reports/2020/05/07/484742/health-disparities-race-ethnicity/ https://www.nature.com/articles/s41746-020-0290-y#Sec14 Image: https://pixabay.com/users/openclipart-vectors-30363/?utm_source=link-attribution&utm_medium=referral&utm_campaign=image&utm_content=147925…
Part 2. We are exploring back to school safety tips - even though some of the tips don’t necessarily apply to illnesses, they are good reminders on what we need to be aware of as our most precious resources begin another academic year. This episode will concentrate on keeping our kids healthy Contact: Email: Seetheinvisible2020@gmail.com Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter Facebook: SeetheInvisible2020 | Facebook Website: SeetheInvisible2020.com – Dare to be seen! Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos YouTube: SeeTheInvisible - YouTube Source: https://www.uhhospitals.org/Healthy-at-UH/articles/2014/03/9-tips-for-keeping-kids-germ-free-at-school https://sites.ed.gov/roadmap/parent-checklist/#school https://healthblog.uofmhealth.org/childrens-health/making-back-to-school-decisions-for-families-underlying-health-conditions https://www.cdc.gov/coronavirus/2019-ncov/community/schools-childcare/k-12-guidance.html…
Part 2. We are exploring back to school safety tips - even though some of the tips don’t necessarily apply to illnesses, they are good reminders on what we need to be aware of as our most precious resources begin another academic year. This episode will concentrate on transportation tips. Contact: Email: Seetheinvisible2020@gmail.com Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter Facebook: SeetheInvisible2020 | Facebook Website: SeetheInvisible2020.com – Dare to be seen! Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos YouTube: SeeTheInvisible - YouTube Sources: https://www.healthychildren.org/English/ages-stages/gradeschool/school/Pages/Back-to-School-Tips.aspx https://www.healthychildren.org/English/safety-prevention/on-the-go/Pages/Where-We-Stand-Seat-Belts-on-the-School-Bus.aspx https://www.nsc.org/home-safety/seasonal-safety/back-to-school https://dsp.delaware.gov/2021/08/24/127396/ https://www.metrofamilymagazine.com/top-10-tips-for-school-safety/…
We are exploring back to school safety tips - even though some of the tips don’t necessarily apply to illnesses, they are good reminders on what we need to be aware of as our most precious resources begin another academic year. This episode will concentrate on keeping our kids healthy Contact: Email: Seetheinvisible2020@gmail.com Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter Facebook: SeetheInvisible2020 | Facebook Website: SeetheInvisible2020.com – Dare to be seen! Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos YouTube: SeeTheInvisible - YouTube Source: https://www.uhhospitals.org/Healthy-at-UH/articles/2014/03/9-tips-for-keeping-kids-germ-free-at-school…
We are exploring back to school safety tips - even though some of the tips don’t necessarily apply to illnesses, they are good reminders on what we need to be aware of as our most precious resources begin another academic year. This episode will concentrate on transportation tips. Contact: Email: Seetheinvisible2020@gmail.com Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter Facebook: SeetheInvisible2020 | Facebook Website: SeetheInvisible2020.com – Dare to be seen! Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos YouTube: SeeTheInvisible - YouTube Sources: https://www.nsc.org/home-safety/seasonal-safety/back-to-school https://dsp.delaware.gov/2021/08/24/127396/ https://www.metrofamilymagazine.com/top-10-tips-for-school-safety/…
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