Everything You Know About Disability Is Wrong podcast

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Lisätty one vuosi sitten

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We Have The Receipts

1
Battle Camp: Final 5 Episodes with Dana Moon + Interview with the Winner! 1:03:29

2 päivää sitten1:03:29

Toista Myöhemmin

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Tykätty

1:03:29

Finally, we find out who is unbeatable, unhateable, and unbreakable in the final five episodes of Battle Camp Season One. Host Chris Burns is joined by the multi-talented comedian Dana Moon to relive the cockroach mac & cheese, Trey’s drag debut, and the final wheel spin. The Season One Winner joins Chris to debrief on strategy and dish on game play. Leave us a voice message at www.speakpipe.com/WeHaveTheReceipts Text us at (929) 487-3621 DM Chris @FatCarrieBradshaw on Instagram Follow We Have The Receipts wherever you listen, so you never miss an episode. Listen to more from Netflix Podcasts.…

Everything You Know About Disability Is Wrong

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Everything You Know About Disability is Wrong is a podcast for the disability community by the disability community, hosted by two disabled women. But if you’re not disabled, listen in to learn about real issues, celebrations, and conversations disabled people are having in their communities. Powered by Easterseals.

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#Society #Relationship #Erin and Lily

Everything You Know About Disability Is Wrong

updated 22 päivää sitten

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39 jaksoa

#Society #Relationship #Erin and Lily

Kaikki jaksot

1
Kids Need Neurodivergent Characters: Kyla and Jedidiah Mora on Acceptance & Understanding 1:05:49

22 päivää sitten1:05:49

1:05:49

Kyla and Jedidiah Mora are a neurodivergent couple, writers, and advocates. They are the authors of “Today My Brain Is a Dinosaur,” a popular children’s book that helps kids understand autism, ADHD, and different ways of thinking. Their journey started with their own diagnoses of autism and ADHD as adults. After years of confusion and challenges, they found clarity, self-acceptance, and a desire to help others feel less alone. Kyla is a high school teacher and journalist who is passionate about education and storytelling. Jedidiah works in the water industry and has a strong interest in mechanical engineering. Together, they combine their skills and personal experiences to create stories that celebrate neurodivergent kids and families. Through their writing, they aim to break down stigma and spark conversations. Key Moments 00:00 Intro and Audio Descriptions 06:53 Own Voices, Own Stories Award for Disabled Authors 12:33 Internalizing Blame; Autism, ADHD, and Trauma 21:50 Autism and Learning to Be Your True Self 26:49 Embracing Hyperfocus in a Positive Way 28:21 Job Challenges and Personal Struggles 44:44 Unique Traits of Autistic Girls 59:09 Understanding and Accepting Connect with Kyla Mora Twitter: https://x.com/kylapmora Website: https://cherrylakepublishing.com/shop/show/54094 Jedidiah Mora Website: https://cherrylakepublishing.com/shop/show/54094…

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From Wall Street to Changemaker: Tiffany Yu’s Story of Purpose and Possibility 1:08:22

6 weeks sitten1:08:22

1:08:22

Tiffany Yu is a disability advocate, entrepreneur, and author of The Anti-Ableist Manifesto . She started her career at Goldman Sachs before becoming a leader in disability inclusion. After acquiring a disability as a child, she struggled with loneliness and self-doubt. Over time, she turned her experiences into advocacy and founded Diversability, a community that celebrates disability pride and fights stigma. She works to break barriers, share personal stories, and create more inclusive spaces. Through her efforts, she shows that disability is diverse and that working together can create real change. Key Moments 7:00 Overcoming Isolation and Disability 14:13 Collective Advocacy in Action 22:00 Disability Language Made Simple 23:25 Safe Spaces 35:34 Beyond Assumptions: Tiffany’s Story 49:16 Mental Health 01:02:22 Reaching Young Readers Connect with Tiffany Yu Twitter: https://x.com/imtiffanyyu Website: http://tiffanyyu.com/ The Anti-Ableist Manifesto: https://www.tiffanyyu.com/book…

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Exploring the World Through Sensory Experiences with Dr. Hoby Wedler 58:43

8 weeks sitten58:43

58:43

Experiencing the world isn’t just about sight, it's about tasting, touching, hearing, and smelling, too. Using all our senses helps us connect more deeply to the world around us. Dr. Hoby Wedler is a chemist, entrepreneur, and advocate for inclusivity. He holds a Ph.D. in physical organic chemistry from UC Davis and founded the Wedland Group to explore how our senses shape emotions and connections. He creates unique food and drink experiences that help people appreciate the little things in life. He also works to break stereotypes about disability, inspiring others to reach their full potential. Dr. Wedler is also the founder and CEO of Hobie and Company (Hobie and Co online), part of Wedland Group. His company offers amazing blindfolded tasting experiences that help people explore their nonvisual senses. He shares his passion for sensory experiences on TikTok, where he has around 200,000 followers. Lastly, he runs Emotitec (emotitec.com), a company based in Italy. Key Moments 09:14 Embracing Unseen Experiences 16:17 Empowerment Through Disability 19:19 Redefining Independence 28:24 Diversity Fuels Success 34:43 Supporting Blind Children 39:47 Parents Presuming Competence 52:36 Sensory Experiences Founder Connect with Dr. Hoby Wedler LinkedIn: https://www.linkedin.com/in/hobywedler CEO at Wedland Group: https://wendland.efsadvisors.com/ President at EMOTITECH: https://emotitech.com/…

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Entrepreneurship, Education, and Knowing Your Value with Onyinye Udokporo 1:04:38

11 weeks sitten1:04:38

1:04:38

"Just because you can’t see it, doesn’t mean it’s not real." Onyinye Udokporo, CEO and founder of Enrich Learning, dives into a conversation that’s both eye-opening and deeply personal, exploring the differences between UK and US disability cultures. From how each country approaches accessibility and support to the ways people talk about neurodivergence, it’s clear that culture shapes the disability experience in ways we don’t always realize. A big theme in this discussion is the power of language—how the words we use can either create understanding or reinforce barriers. Onyinye shares why being intentional with language isn’t just about being polite; it’s about making the world more inclusive and accessible for everyone. This conversation is a reminder that small shifts in how we speak and think about disability can make a huge difference. Key Moments 00:37:03 Initial Rejection 00:38:53 Mother’s Screening 00:44:50 Shared Experience 00:45:30 Cultural & Generational Factors 10:15 Neurodivergence vs. Mental Health 30:00 Empowering Language 45:15 Authentic Conversations 55:00 Cultural Pressures 1:05:00 Dyslexia Advocacy 1:30:00 Access Through Tutoring 1:35:00 Reclaiming “Inspiring” Connect with Onyinye Udokporo LinkedIn: linkedin.com/in/onyinyeudokporo Personal Website: onyinyeudokporo.com Company Website: enrichlearning.co.uk…

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The Power of Gaming: Richard Jacobs on Community, Competition, and Personal Empowerment 1:03:22

17 weeks sitten1:03:22

1:03:22

Richard Jacobs is a dedicated gamer and member of the esports team QuadGods. He discusses his journey of resilience, the pivotal role gaming plays in his life, and the misconceptions he faces as a disabled individual. Richard shares about the power of community and how his streaming “family” has allowed him to harness his competitive spirit and embrace his emotions. Key Moments 13:32 - Inspiration and belonging. 21:57 - Supports family through streaming. 31:24 - Prefers controller over keyboard/mouse. 43:23 - Handles losses calmly; focuses on perseverance. 59:44 - Builds deep community connection. Connect with Richard Jacobs Instagram: https://www.instagram.com/breadwinner1007/ Website: https://quadgods.com/the-players…

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The Advocacy Power of Humor: Steven Verdile and The Squeaky Wheel 55:55

21 weeks sitten55:55

55:55

Humor can educate and challenge, but it must highlight issues without mocking the disability community. In this episode, we explore how satire can play into advocacy and ask, “What exactly makes good satire?”. Steven Verdile, Founder of Squeaky Wheel Media, shares his insights on the critical intersection of disability and content creation. Steven discusses the significance of focusing on specific issues, particularly those impacting the disabled community, and the protective measures taken to ensure writers' safety. Key Moments 06:27 Humor exposes accessibility challenges. 08:41 Accessible platforms empower disabled writers. 23:11 Disability experiences and representation vary. 38:13 Humor addresses disability policy. 49:07 Steven’s school experience. Connect with Steven Verdile LinkedIn: https://www.linkedin.com/in/steven-verdile Website: https://thesqueakywheel.org/ Squeaky Wheel Instagram: https://www.instagram.com/thesqkywheel/?hl=en…

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Annie Segarra on Medical Gaslighting and EDS: Her Fight for Change 1:04:48

22 weeks sitten1:04:48

1:04:48

Navigating a medical system that dismisses your pain ignites a fire to advocate for others who are overlooked. Annie Segarra is an activist and content creator dedicated to disability rights, body positivity, and social justice. Annie opens up about her deeply personal experience living with Ehlers-Danlos Syndrome (EDS), discussing the emotional and physical toll of navigating a medical system that often dismisses or misdiagnoses those with chronic illnesses. She shares her frustrations with being gaslit by medical professionals and the resilience it has taken to continue advocating for herself. Key Moments 2:54Accessibility in spaces 18:27 Living with EDS 31:28 Experiencing medical gaslighting 52:45 Advocating for inclusive training and support Connect with Annie Segarra LinkedIn: https://www.linkedin.com/in/anniesegarra Website: https://invisibleproject.org/annie-segarra/…

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Just Between Us: All I Want is Real Portrayals in Film 25:58

22 weeks sitten25:58

25:58

Your co-hosts Lily Newton and Erin Hawley return with a candid "Just Between Us" segment on this episode of Everything You Know. They discuss the importance of authentic storytelling in media, using recent casting choices in "Wicked" and Disney adaptations as a jumping-off point. The hosts explore why representation isn’t enough without real inclusion and the need for self-accommodation to destigmatize accessibility. Lily and Erin also reflect on highlights from the past year, sharing their "All I Want" asks for better support. Key Moments 00:00 Authentic casting matters 03:44 Frustration with film clichés 11:38 Tart cherry juice helps sleep 14:20 Joining Easterseals' campaign 17:14 Destigmatize accessibility Connect with Lily Newton LinkedIn: https://www.linkedin.com/in/lily-newton-3b0b5b229 Website: https://www.easterseals.com/ Connect with Erin Hawley LinkedIn: https://www.linkedin.com/in/erinhawley2 Website: https://www.easterseals.com/…

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Advocacy and Identity: Madison Tevlin’s Creative Journey 52:20

24 weeks sitten52:20

52:20

Advocacy is not just about raising awareness; it’s about creating real change. Madison Tevlin is an actor, Host, Model, and Advocate. She is known for her impactful work in the "Assume That I Can" campaign for World Down Syndrome Day and her role in "Champions" alongside Woody Harrelson. Madison shares her wonderful journey and passion for music and storytelling. Madison talks about her upcoming podcast, "21 Questions," featuring stars like Paris Hilton and Nelly Furtado. Madison opens up about the challenges of breaking stereotypes associated with Down syndrome and emphasizes the importance of community support in her life. Key Moments 00:00 Multi-faceted journey 06:24 Music and family enhance wellness 17:53 Opening up about Down syndrome 22:19 Perfect fit for the roles 27:26 Redefining Stereotypes Through Storytelling 45:25 Education integration fosters community Connect with Madison Tevlin Instagram: https://www.instagram.com/madisontevlin/?hl=en Website: https://www.madisontevlin.com/…

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Pamela Schuller on Mastering the Balance between Vulnerability, Comedy, and Advocacy | Episode 15 1:02:55

26 weeks sitten1:02:55

1:02:55

Humor is a bridge to understanding; it transforms conversations about disability into moments of connection. Pamela Schuller is a passionate disability advocate and stand-up comedian. Pamela shares her journey with Tourette syndrome and how humor has helped her tackle tough conversations about disabilities. Pamela opens up about finding the right balance between vulnerability and oversharing, the challenges of accommodating disabilities in public spaces, and her unexpected shift from stand-up to storytelling. Pamela discusses the impact of her experiences on her mission to create more inclusive environments. Key Moments 08:05 Challenging stereotypes. 14:27 Humor fosters resilience. 17:37 Goals: laughter and inclusivity. 30:53 Accepting emotions reduces judgment. 43:45 Tourette's and performance. Connect with Pamela Schuller LinkedIn: https://www.linkedin.com/in/pamelaschuller Website: https://pamelacomedy.com/…

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Creative Ideas, Personal Brands, and the Workplace with Rachel Lowenstein | Episode 14 1:15:34

30 weeks sitten1:15:34

1:15:34

Rachel Lowenstein, Founder and Culture Expert at Rachel Lowenstein Consulting and Divergent Convergent, joins Lily Newton and Erin Hawley on the show. Rachel talks about why neuro-inclusion is a crucial part of workplace accessibility and how her work with Divergent Convergent is making a difference. Rachel also opens up about her own experiences with finding her true identity, avoiding burnout, and shifting from a corporate job to running her own business. In this episode, Rachel shares her thoughts on creating inclusive work environments, the challenges of traditional corporate settings, and the importance of community support. Key Moments 13:41 Impact of Inclusive Marketing 26:34 Building Authentic Friendships 35:47 Mentor’s Advice: Pay It Forward 47:35 Remote Work and Inclusion Connect with Rachel Lowenstein LinkedIn: https://www.linkedin.com/in/rachel-lowenstein-49431a38 Instagram: https://www.instagram.com/rachelissan/?hl=en Divergent Convergent: https://parsnip-tetra-f2ny.squarespace.com/…

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Finding Balance and Owning Your Story with Jennifer Gasner | Episode 13 1:06:45

31 weeks sitten1:06:45

1:06:45

"The journey of self-acceptance is ongoing and deeply personal." Jennifer Gasner, author of *My Unexpected Life: Finding Balance Beyond My Diagnosis*, shares her journey of self-acceptance and understanding of her own identity. She explores the importance of supportive workplaces, the power of tell your own story, and addressing misconceptions about disability. Jennifer also highlights her personal growth in accepting help and fostering inclusivity. Her story is a powerful testament to self-acceptance, resilience, and the push for a more inclusive world, providing guidance for anyone navigating their own journey. Timestamps 0:00 Jennifer Gasner’s Story 10:45 Finding Balance 20:30 Embracing Change 30:00 Breaking Barriers 45:15 Everyday Triumphs 55:00 Redefining Strength 1:05:00 Looking Forward Connect with Jennifer Gasner LinkedIn: https://www.linkedin.com/in/jennifer-gasner-4b1aaa50/ Website: https://jennifergasner.com/ My Unexpected Life by Jennifer Gasner: https://www.amazon.com/My-Unexpected-Life-Finding-Diagnosis/dp/B0CCCPG1ZJ…

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Amplifying Autistic Voices: Lauren Melissa Ellzey on writing, Autistic representation, and self-advocacy | Episode 12 1:02:16

34 weeks sitten1:02:16

1:02:16

Author and Activist, Lauren Melissa, shares a powerful story of resilience and creativity. Diagnosed with autism in her twenties, Lauren Melissa turned the challenges of the COVID-19 pandemic into an opportunity, hand-writing a novel that was later accepted by Bold Strokes Books. Based in New York City, she passionately advocates for the representation of queer, BIPOC, and disabled individuals in fiction, bringing to life diverse, multiracial, neurodivergent, and queer characters. Her journey is a powerful testament to the strength found at the intersections of identity and creativity. Timestamps 08:27 Getting Into Writing 16:03 Having Relatable Characters in Fiction 21:16 Portraying Neurodiversity in Fiction 25:09 Getting Published As An Independent Publisher 33:34 Advocacy on Autism, Race, and Queerness 44:12 Social Expectations, Codependence, and Autistic Identity Connect with Lauren Melissa Ellzey LinkedIn: https://www.linkedin.com/in/laurenmellzey Website: https://laurenmelissaellzey.com/…

2 years sitten1:02

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Everything You Know About Disability Is Wrong

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Redefining Accessibility: Jenna Bainbridge’s Impact on Theater and Disability Representation | Episode 10 1:05:01

40 weeks sitten1:05:01

1:05:01

In this episode, hosts Erin and Lily interview Jenna Bainbridge, an actress, singer, and accessibility advocate. Jenna shares her journey as the first wheelchair user to perform in a new musical on Broadway, debuting in the award-winning "Suffs." She discusses her career and daily life as an ambulatory wheelchair user, challenging misconceptions and emphasizing the importance of accessibility and personal freedom. Jenna explains how her wheelchair enhances her ability to navigate New York City, offering independence in an often inaccessible environment. She highlights the spectrum of capabilities and needs, breaking down binary views of disability. Her role in "Suffs" underscores the power of collective activism and the importance of every action in contributing to a larger movement. The episode also touches on Jenna's work with Consultability, a consulting company she co-founded to make theater spaces more accessible. Her experiences offer a rich discussion on the intersections of art, disability, and advocacy, providing listeners with a deeper understanding of inclusivity's importance in all areas of life. Timestamps 00:00 Wheelchair allows freedom and less exhaustion. 09:19 Embracing wheelchair use for everyday comfort. 12:06 Navigating public perception of disability is exhausting. 21:02 Disability euphemisms conceal the reality of aging. 26:21 Masculinity and ableism 31:51 Susan B. Anthony's advocacy, protests, and power. 35:09 Messy government, ableist viewpoints, organizing for change. 43:06 Inclusion in SUFFs provides representation for disabilities. 48:18 Theater accessibility efforts focus on practical solutions. 52:19 Budget pushback about accessibility improvements. 59:55 Theater creates close friendships and community quickly. 01:01:42 Interview wrap-up Connect with Jenna Bainbridge Instagram: https://www.instagram.com/bainbridgejenna/?hl=en Website: https://www.jennabainbridge.com/ Suff the Musical: https://suffsmusical.com/…

Everything You Know About Disability Is Wrong

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Just Between Us: Disability Pride Month 33:22

41 weeks sitten33:22

33:22

Your co-hosts Erin & Lily have a special segment today called “Just Between Us!” Today’s episode is all about the importance of Disability Pride Month. They share their thoughts on why it's crucial to celebrate being disabled and not just focus on ableism. Erin & Lily also discuss how pride in their identities as disabled people and as friends empowers them. We hope you enjoy today’s real (and unfiltered) episode. Happy Disability Pride Month! Timestamps 04:06 Claiming pride in queer and disabled identity. 06:46 I understand the need to educate, but... 13:14 Navigating disability pride in online content. 14:12 Discussion on sharing disabled experiences and challenges. 18:06 Experience of cultural recognition. 21:38 Embracing disability pride, simplifying routines for ease. 28:25 Being proud of oneself fights ableism. Connect with Lily Newton LinkedIn: https://www.linkedin.com/in/lily-newton-3b0b5b229 Website: https://www.easterseals.com/ Connect with Erin Hawley LinkedIn: https://www.linkedin.com/in/erinhawley2 Website: https://www.easterseals.com/…

Everything You Know About Disability Is Wrong

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Amanda McGrory’s Insights on Adaptive Sports and Community on EYK | Episode 9 1:03:27

42 weeks sitten1:03:27

1:03:27

Amanda McGrory, a four-time Paralympian and seven-time Paralympic medalist shares her journey as an elite athlete. She addresses the pervasive stereotypes and misconceptions surrounding disabled athletes and how they are often misrepresented in the media. Throughout the conversation, the importance of authentic representation in media and sports is highlighted, focusing on the significance of community support. She discusses her struggles with eating disorders and finding community through adaptive sports. Amanda discusses the critical need for authentic representation in sports and media, highlighting how real portrayals can create a more inclusive society. Her insights reveal that being a disabled athlete is just one facet of her multifaceted identity. Amanda advocates for a broader recognition of the everyday achievements of people with disabilities without sensationalism. Erin, Lily, and Amanda discuss disability pride and the power of community. Amanda shares about the lack of control she felt as a child and how that led to her struggles with eating. They talk about the power of finding community with other disabled people and how finding adaptive sports brought Amanda the community that led her to her own healing and sense of pride in her identity. Timestamps 08:53 Amanda’s athletic career trajectory. 12:19 Athletes and inspiration are both complex issues. 19:21 Realizing potential through disability and the inspiration narrative. 24:55 The harm of overcoming narratives, Disability Pride Month. 31:14 Amanda’s unexpected career in broadcasting. 34:12 Lived experience is crucial for understanding disability. 39:15 Amanda’s experience struggling with eating, finding support, and control. 48:57 Airline staff often disregard the needs of disabled passengers. 54:37 The importance of disability history. 57:16 University of Illinois Galesburg campus program summary. 01:02:18 Emphasizing the importance of accessibility, University of Illinois Accessibility Connect with Amanda McGrory LinkedIn: https://www.linkedin.com/in/amanda-mcgrory Instagram: https://www.instagram.com/alittlechipped/?hl=en Website: http://www.amandamcgrory.com/…

Everything You Know About Disability Is Wrong

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Learning Self-Love: Chelsea Bear Discusses Disability Pride Month on EYK | Episode 8 53:27

44 weeks sitten53:27

53:27

In this episode, Chelsea Bear, a content creator and disability advocate, shares her experiences and challenges as a lifestyle influencer. Chelsea highlights the importance of embracing her disability wholeheartedly and the sense of community and validation it brings. She discusses how Disability Pride Month encourages individuals to own their disabilities proudly, even on tough days. The co-hosts Erin and Lily resonate with Chelsea's experiences, sharing their struggles and triumphs in accepting their disabilities, while emphasizing the transformative power of community and shared experiences. The episode showcases Chelsea's impactful transition from a public relations professional to a dynamic social media advocate. Her authentic and organic approach to content creation, driven by personal stories and unfiltered passion, sets her apart. Chelsea candidly discusses the pressures of being a disability advocate and the balance between addressing systemic issues and sharing her narrative. Timestamps 00:00 Intros and Audio Descriptions 03:39 Addressing assumptions about living with physical disability. 08:24 PR career taught communication and brand values. 11:45 Creating social content to connect and share. 15:41 Pressure to advocate for disabilities in lifestyle. 17:29 Learning journey, advocacy, spread awareness, disability, daily impact. 20:34 Discussion on disability experience and authenticity concern. 24:25 Welcoming community addressing accessibility and disabilities. 29:20 Accepting disability empowers connection and self-worth. 30:50 Taking ownership of identity leads to pride. 36:38 Social media expanded my disability community connections. 38:29 Social media can connect and empower people. 42:37 Learning to navigate health challenges with openness. 45:53 Medical schools need to be more inclusive. 49:56 Embracing disability transformed my life positively. Connect with Chelsea Bear LinkedIn: https://www.linkedin.com/in/chelseabear/ Instagram: https://www.instagram.com/realchelseabear/?hl=en Website: https://chelseabear.com/…

Everything You Know About Disability Is Wrong

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Adventures Around the World: Cory Lee on Accessible Travel and Advocacy on EYK | Episode 7 57:34

46 weeks sitten57:34

57:34

In this episode, Cory shares his experiences exploring the world as a wheelchair user, from group trips to international destinations to navigating the challenges of air travel accessibility. Learn about Cory’s blog, Curb Free with Cory Lee, and its company non-profit, The Curb Free Foundation, which funds dream trips for wheelchair users. Discover practical tips on accessible travel planning, insights on preparing for travel obstacles, and the importance of building a strong community for people with disabilities. Cory also talks about his children's books that feature characters with disabilities, aiming to educate and promote inclusivity among young readers. Don't miss hearing Cory's positive travel experiences and the joy of accessible tourism. Timestamps 00:00 Cory’s work includes a children's book and foundation. 03:34 Public disregard for me becomes increasingly unsettling. 09:24 Excited traveler faces job rejection, plans trip. 10:41 Lack of travel info inspired Curb Free with Cory Lee blog 14:34 Launched the Curb Free Foundation in 2022. 17:41 Promote travel to more accessible destinations. 23:04 Book promotes wheelchair travel and representation for children. 24:24 Children's books shape perception and combat ableist stereotypes. 29:40 Wheelchair broke, duct taped, urged DOT report. 32:24 Air travel for wheelchair users is improving. 34:17 Switzerland trip with incredible accessibility experiences. 38:15 Wheelchair user plans trips 6-12 months ahead. 40:14 Double-sided Velcro and Able Sling improve transfers. 45:12 Community brings joy and understanding to members. 47:18 Advocate for visibility and living full lives. 51:30 Travel insurance with preexisting conditions saves money. Connect with Cory Lee LinkedIn: https://www.linkedin.com/in/cory-lee/ Instagram: https://www.instagram.com/curbfreecorylee/?hl=en Website: https://curbfreewithcorylee.com/…

Everything You Know About Disability Is Wrong

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Redefining Queer Spaces: Spencer West | Episode 6 59:16

47 weeks sitten59:16

59:16

In today’s episode, we have Spencer West! From discussing the challenges of accessing queer spaces and nightlife to setting boundaries as a disabled content creator, this conversation sheds light on pivotal issues affecting the LGBTQ+ and disabled communities. Spencer shares his personal experiences, advocacy work, and the role of social media in promoting awareness. Don't miss this engaging episode with Spencer West! Timestamps 00:00 Spencer West: Keynote speaker, activist, trailblazer, author. 06:00 Navigating intersectional identities and privacy boundaries on TikTok. 12:47 The importance of sharing disabled experiences in media. 16:24 Relate stories to others, especially healthcare workers. 17:17 Sharing personal stories, lessons, and avoiding inspiration porn. 20:41 Learning boundaries from an older mentor, embracing self. 26:46 Struggles with queer identity in nightlife venues. 28:16 Toronto has organizations creating accessible spaces. 36:03 Creating regular content as a revenue stream. 38:04 Grateful for age and experience in authenticity. 43:23 Learning about disability justice, confronting internalized ableism. 46:02 RuPaul's reminder: love yourself, love others. 48:56 Recognition of mutual support in personal relationships. 51:34 Privilege of walking, trouble with wheelchair damage. 54:49 Agreement on disability visibility through social media. 57:35 Celebrate LGBTQ+ and disability pride this month. Connect with Spencer West Instagram: https://www.instagram.com/spencer2thewest/?hl=en TikTok: https://www.tiktok.com/@spencer2thewest?lang=en…

Everything You Know About Disability Is Wrong

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Model, Actor, and CEO: A Conversation with Lolo Spencer | Episode 5 59:31

48 weeks sitten59:31

59:31

In this episode, hosts Lily Newton and Erin Hawley sit down with actor, model, content creator, and CEO of the lifestyle brand Live Solo, Lolo Spencer. Known for her advocacy work and trailblazing efforts in changing the narrative around disability, Lolo shares her incredible journey and vision for a more inclusive world. We also explore the broader implications of representation in Hollywood and the importance of community building, with Lolo emphasizing the need for disabled actors to be cast in diverse roles. Tune in and be part of the movement towards a more inclusive society! Timestamps 00:00 Lolo Spencer, actor and disability advocate, succeeds. 03:26 Misconceptions about ambulatory wheelchair users' disabilities. 07:51 Difficulty accessing doctor's office due to age. 10:48 Feeling judged for being young and able. 14:03 Friends collaborate, enjoy and resonate with humor. 18:28 Importance of clear communication for disability accommodations. 19:38 Production must fully support disabled talent's needs. 25:47 Enhancing audience experience through laughter and enjoyment. 26:34 Season's exciting trailer, surprisingly, accessible to all. 30:46 Creating community through inclusive lifestyle brand blog. 34:34 Bringing community together through events and activities. 38:19 US healthcare detrimental; bias against black women. 40:51 Questioning the healthcare system's dismissiveness towards accessibility. 45:15 Lily searching for EDS diagnosis and medical diversity. 47:18 Collaboration of traditional and alternative medicine beneficial. 50:55 Community ties into information sharing and health. 55:08 Attitude towards disability needs to change. 57:25 Lolo praised for support and collaboration efforts. Connect with Lolo Spencer Instagram: https://www.instagram.com/itslololove/ Visit Live Solo: https://www.livesolo.…

Everything You Know About Disability Is Wrong

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The Laughing Edge: Changing expectations through comedy with Tina Friml on EYK | Episode 4 1:09:46

50 weeks sitten1:09:46

1:09:46

In today's episode, Erin and Lily are joined by Tina Friml, a New York-based comedian who shares her unique experiences navigating the comedy scene. We'll explore the misconceptions about disabilities, the role of humor and radical self-acceptance, and turning casual ableism into comedy gold. From the sometimes illogical things Tina can and cannot do, to her decision to only perform in ADA accessible venues, this episode is packed with insights. Get ready to tune in, laugh, and learn as we welcome you to another episode of Everything You Know About Disability is Wrong. Let's get started! Timestamps 00:00 Disabled with mild cerebral palsy needing accommodations. 09:39 Challenges of being labeled and misunderstood. 10:56 Navigating disability and others' perceptions and actions. 19:37 Comedy often exploits societal expectations for jokes. 25:25 Some struggle to understand disabilities, affecting interactions. 29:18 Prioritizing ADA accessibility at event venues promoted. 34:04 Struggling to find accessible venues in various cities. 43:59 Unexpectedly positive experience appearing on Jimmy Fallon. 50:27 Easterseals podcast highlights equity, access, and accommodation. 51:41 Traveling alone, finding increasing airport accommodations. 01:00:45 Comedy community support, challenges of being underestimated. 01:02:22 Disability can be both a benefit and drawback. Connect with Tina Friml: Instagram: https://www.instagram.com/tinafriml/?hl=en…

Everything You Know About Disability Is Wrong

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Rawan Tuffaha Unveils the Artistic Journey of ASD Band on Everything You Know | Episode 3 54:19

52 weeks sitten54:19

54:19

In today's episode, your hosts Lily Newton and Erin Hawley have a heartfelt conversation with our guest, Rawan Tuffaha. Rawan is the lead singer of the ASD Band, a group composed entirely of autistic musicians, which shines a light on talent within the autistic community. Besides her music career, Rawan is an advocate for autism acceptance and disability employment, challenging misconceptions and pushing for more inclusive practices. Join us as we delve into Rawan's journey, from forming the ASD Band to her academic pursuits at Metal Works Institute, her experiences with the documentary about her band, and her thoughts on the misconceptions people often have about individuals on the autism spectrum. We'll also hear about her challenging yet rewarding experiences managing school, autism, and her music career, including her exciting upcoming album, "Almost Flawless." This episode is not only an exploration of Rawan's personal and professional life but also a broader discussion of the challenges faced by individuals with disabilities as they transition into adulthood, particularly in accessing employment and continuing to receive support. Stay tuned as we celebrate the exceptional contributions of individuals like Rawan and discuss how organizations like Easterseals are paving the way for full access, equity, and inclusion for people with disabilities and their families. Timestamps 00:00 Podcast featuring Rawan Tuffaha, lead of ASD Band. 04:10 Documentary creation, album release amidst COVID-19 impact. 08:18 Performed with Roger Hodgson, formed a band and overcame setbacks. 11:23 Started playing the toy piano and learned by ear. 14:41 Honest, raw music conveying autistic experience powerfully. 19:44 Gratitude for positive influences and values learned. 22:28 Struggle with identity and trust in popularity. 25:32 Teenagers realize the importance of loyal, caring friends. 29:47 Passion for the Jonas Brothers, autism acceptance. 31:58 Struggling with travel plans, rehearsals, and charity. 35:04 Understanding the travel process with help from family. 38:26 Autism diagnosis at 1, received varied support. 40:57 Seeking support in university, aiming for success. 46:00 Struggles finding a job as an autistic person. Need for inclusion and understanding. 49:51 Multitasking autism advocate defies stereotypes with grace. Connect with Rawan Tuffaha Instagram: https://www.instagram.com/rawansinger/?ref=tablehopper.com…

Everything You Know About Disability Is Wrong

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Navigating Independence and Relationships: Subodh and Aarti's Journey on EYK 1:10:59

1 year sitten1:10:59

1:10:59

Navigating Independence and Relationships: Subodh and Aarti's Journey on EYK | Season 3, Episode 2 Welcome to a special episode of Everything You Know, presented by Easterseals. Today, we've got a truly enlightening conversation lined up with our guests, Subodh Garg and his sister, Aarti Garg. Subodh, a charismatic individual diagnosed with autism at the age of 3, shares his journey towards independence, his exceptional memory, and his experiences with dating and social interactions. Aarti, who plays a crucial role in managing Subodh’s social engagements and safety online, provides insight into their sibling dynamics and the support systems that help Subodh navigate his challenges and aspirations. In this episode, we delve into the importance of the diverse representation of autism in media, the critical role of technology in improving communication skills, and the universal struggles with dating and social skills. Subodh also discusses his participation in the show Love on the Spectrum, his employment goals in accounting, and his passion for travel. Join hosts Erin Hawley and Lily Newton as they explore these topics and more, offering a broader perspective on neurodiversity and the common human desires for love and connection. Stay tuned as we challenge the misconceptions about autism and celebrate the diverse capabilities and aspirations of individuals on the spectrum. Timestamps 0:00 - Introduction to today's episode with hosts Erin Hawley and Lily Newton, featuring guests Subodh and Aarti Garg. 2:45 - Subodh Garg discusses his journey towards independence and his aspirations in accounting. 5:20 - Exploring the sibling dynamics between Subodh and Aarti Garg, including the misconceptions about their relationship. 7:40 - Aarti Garg talks about her role as a manager rather than a caretaker in Subodh's life. 10:15 - Challenges of making and maintaining friendships as adults, emphasized by Subodh's experiences. 13:30 - Subodh's take on his participation in Love on the Spectrum and developing his dating skills. 18:29 - The impact of "Love on the Spectrum" on Subodh’s life, as discussed by Aarti. 21:10 - Conversation about the universal struggle with dating and social skills. 24:05 - Subodh and community building: From online dating to maintaining connections with the show's cast. 27:50 - The transportation hurdles and Subodh's use of Access, a paratransit service. 30:16 - Subodh’s employment ventures at Teledelis and Insight, and his educational goals. 33:45 - Lily Newton and Aarti Garg critique the representation of disability in mainstream media and specific TV shows. 37:12 - The role of digital content in Subodh’s life, including his Instagram engagement and travel posts. 40:40 - Detailing the disability readathon initiative and its significance, shared by Erin Hawley. 43:28 - Reflections on maintaining friendships amidst life changes and busy schedules. 45:35 - Subodh’s exceptional memory skills and affinity for recalling specific dates and personal milestones. 49:20 - Deep dive into Subodh's past therapies, ongoing supportive services, and aspirations for travel. 52:15 - Discussion on the broader spectrum of autism and the personal ambitions of individuals with autism. 55:00 - Closing thoughts, upcoming initiatives, and a thank you to Subodh and Aarti Garg for their participation. 57:10 - Call to action for disability advocacy and an invitation to listen in to future episodes presented by Easterseals. Connect with Subodh Garg Instagram: https://www.instagram.com/traveling_subodh/?hl=en Connect with Aarti Garg Instagram: https://www.instagram.com/aartipaarty/?hl=en…

Everything You Know About Disability Is Wrong

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Gaelynn Lea - Everything You Know About Disability is Wrong Podcast | Season 3, Episode 1 1:14:23

1 year sitten1:14:23

1:14:23

Join our hosts, Lily Newton and Erin Hawley, as they sit down with the riveting Gaelynn Lea, whose voice and violin strings resonate with the force of change, challenging our perceptions of ability and accessibility. Imagine being told that your dream career is not designed for someone like you. Now picture breaking that mold and redefining what is possible. Gaelynn Lea did just that. Born with a physical disability, Gaelynn transformed the way the violin is played, gripping it like a cello. With this twist, she orchestrated her way to stardom after winning NPR's Tiny Desk concert. But her journey is more than a story of musical success it's a powerful narrative of breaking barriers and rewriting the stanzas of inclusivity. Tune in, and you may just find that the key to unlocking true inclusivity and happiness lies within the stories that defy silence and demand to be heard. Key Moments 10:39 Disability is more than just assumptions. 12:18 Name experiences, avoid overgeneralizing, and amplify underrepresented voices. 27:01 Rant on marriage inequality and divorce advice. 30:49 Advocating for disabled rights and innovation. 35:18 Teachers adapt instruments without needing deep disability knowledge. 43:41 Importance of owning your work and feelings. 46:09 Discovering hidden desires through writing memoirs. 54:48 Recognize the knowledge gap, educate, and make events accessible. 56:47 Advocate for accessibility and supporting accessible businesses. 01:01:52 Inappropriate discussion led to realization and job. 01:09:53 Disabled community excels; companies should embrace inclusion. Connect with Gaelynn Lea Instagram: https://www.instagram.com/gaelynnlea/ Website: https://violinscratches.com/…

Everything You Know About Disability Is Wrong

1
Jameela Jamil 57:02

1 year sitten57:02

57:02

In this exciting episode, Jameela Jamil, actress, activist, and television host, shares how she began to understand her own disability while navigating the entertainment industry. We're working through shame, making our own rules, and creating inclusive spaces together to break barriers. Are you in?

Everything You Know About Disability Is Wrong

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Lachi 56:25

1 year sitten56:25

56:25

Erin and Lily are joined by award-winning recording artist, Youtuber and disability advocate Lachi. Lachi talks about her DEI work in the music industry and the nuances of ableism as it relates to trauma, class, race, and gender.

Everything You Know About Disability Is Wrong

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Collette Divitto 55:40

1 year sitten55:40

55:40

Collette Divitto, founder and CEO of Collettey’s Cookies, turned her love for baking into a successful business where half of the staff has a disability. She joins hosts Erin and Lily to chat about her successes, life as an entrepreneur, and the stigma many disabled people face while building their careers.…

Everything You Know About Disability Is Wrong

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Jillian Mercado 1:05:42

1 year sitten1:05:42

1:05:42

As a fashion model, actress, and disability rights advocate, Jillian has a lot going on! Throughout her career, she has encountered comments from strangers about her disability. Learn about how she became inspired by those experiences to create safe, inclusive spaces on social media.

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