Parhaat Susan Hendrix My Story Living Podcastit (2024)

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Looking Ahead: 2025 and Navigating Change 8:52

24d ago8:52

8:52

My Story Living with Lupus is back with an insightful episode looking ahead to 2025! Join us as we discuss the potential changes in healthcare policies and how they might impact the lupus community. We’ll share tips for navigating these shifts and staying empowered. Plus, we’ll introduce Project 2025, a new initiative focused on healthcare. Whether…

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Work and Lupus-Balancing Career and Health 8:31

5M ago8:31

8:31

Welcome to My Story Living with Lupus," the podcast dedicated to bringing hope, support, and vital information to those affected by lupus. In this episode, we delve into the challenges and triumphs of balancing a career while managing lupus. Join us as we explore practical strategies for achieving work-life balance, navigating employment challenges…

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The Breakdown of Health and Health Care in Communities of Color 34:57

10M ago34:57

34:57

In this two-part episode, I talk about the breakdown of health in underserved communities of color. What really causes the high rate of obesity, hypertension, and heart disease.

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It's All About Health Equality And Health Equity 1:54

10M ago1:54

1:54

Join me on March 1, 2024, to learn more about health equality and health equity. It's time to eliminate health disparities. And it's time for you to become your own best advocate.

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Male Sex, Neuropsychiatric Damage Associated With Increased Risk for NPSLE Flare 25:16

1+ y ago25:16

25:16

In this episode you will hear what neuropsychiatric is, the damage it causes and those who are at risk the most. You will also hear about what signs and symptoms to look for.

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Cancer Risk With Sjogrens Syndrome 19:24

1+ y ago19:24

19:24

In this episode I tell you why I’ve been MIA due to one of my underlying conditions Sjogrens Syndrome and Lymphoma

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The 411 on Collagen and Autoimmune Illness 38:20

2y ago38:20

38:20

In this episode you will hear about collagen is it really effective for those with autoimmune illnesses. You will also hear about Racial-Ethnic Diversity and how the U.S. should expect a rise in lupus cases. Lastly you will hear about how older patients with lupus lack follow-up care after a hospitalization. References Cleveland Clinic MedPageToday…

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Who' At The Helm When It Comes To Your Health 23:18

2y ago23:18

23:18

If you are not in control of your health who is? This episode is all about the importance of taking control of your health and stop allowing others to make decisions for you. Reference CDC World Health Organization To be a gust on My Story Living with Lupus Podcast email: mystorylivingwithlupus@gmail.com in the subject area state guest and tell us …

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Vitamin & Mineral Deficiencies Associated With Lupus/Lupus In Men 32:35

2y ago32:35

32:35

In this episode I will talk about vitamin and mineral deficiencies associated with lupus. Also I will discuss lupus in men which is rarely talked about.

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Breast Cancer Awareness with Tasha Brown 32:31

2y ago32:31

32:31

In this episode you will hear the story of Tasha Brown Breast Cancer Activist, Stage 3 Breast Cancer survivor, Stage IV MBC. Wife, Mother and Grandmother . She advocates for African American Women to go and get checked for this silent killer. She gives me motivation to continue on brining awareness to chronic illnesses. You can contact Tasha via so…

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It All About The Remix a Conversation With Dr. Patricia Dhar 51:48

2y ago51:48

51:48

In this episode it's about the remix with Dr. Patricia Dhar, you will also hear about what I've been up to and a look into the future of My Story Living with Lupus Podcast.

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Glitazone Drug May Cut Lupus Heart Risk 48:46

2+ y ago48:46

48:46

In this episode you will hear about how Glitazone Drug May Cut Lupus Heart Risk. Glitazone (Actos) has been widely used by diabetics. We all believe that Americans should have a right to healthcare, but do we really have it, we are a country that will preach to other countries about preserving human rights, but we don't talk the talk nor walk the w…

1
What's The 411 On The 988? 42:58

2+ y ago42:58

42:58

In this episode I talk about the 988 Crisis Lifeline and how much health disparities actually will cost the United States by 2040. You will also hear about how a small device helped me make through the worst lupus flare that I have ever had. Resources MedPage Today Calmpak - www.calmpak.org Visit my TeePublic Store - T-Shirts by My Story - TeePubli…

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The Healing Power of I Don't Know 41:06

2+ y ago41:06

41:06

In this episode you will hear about the healing power of I Don't Know, basically why it's so hard for physicians to just come out and say that they don't know what is going on regarding your health. Also new approve first systemic treatment for alopecia. Go on over and visit my TeePublic store at: https://www.teepublic.com/stores/my-story?page=6&re…

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Racial and Ethnic Bias in Pulse Oximetry and Clinical Outcomes 47:51

2+ y ago47:51

47:51

In this episode you will hear what researchers say about racial bias in pulse oximetry and how it delays clinical outcomes for patients of color. You will also hear the TYK2 Inhibitor shows promise in Lupus. Resource MedPage Today Please visit my TeePublic Store all you have to do is click the link below. TeePublic Link: : https://www.teepublic.com…

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Lupus, Sexuality and Intimacy 1:02:15

2+ y ago1:02:15

1:02:15

In this episode I talk about having open communication with your wife, girlfriend or partner about lupus and sex. You will also hear about Monkeypox case reported in the U.S. and lastly one in four Medicare patients being harmed during hospital stay. Resource MedPage Today National Institute of Health Check out my store at: https://www.teepublic.co…

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Researcher Tom Paladino/ Scalar Light 56:34

2+ y ago56:34

56:34

In this episode you will find out about Scalar Light Healing from Researcher Tom Paladino, share your thoughts on this subject. Also, in this episode you will hear about "In Lupus Normal-Appearing Skin Is Not Normal and Shocking Mismanagement in Our Organ Donation System Is Causing Needless Death. Resource MedPage.com…

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Medical Gaslighting Nothing New to Women of Color 58:00

2+ y ago58:00

58:00

In this episode you will hear about Medical Gaslighting, NASH, Medical Errors and Know Who Is Operating on You. Resource MedPage Today

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Study Suggest Why Women Outnumber Men in Lupus 1:08:09

2+ y ago1:08:09

1:08:09

In this episode you will hear about two studies the first is Why Women Outnumber Men in Lupus and Mixed Results for Oral Lupus Drug in Phase II You will also hear about the current health challenges that I have been dealing with. Resource MedPage Today

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Doctor Sued Over Stem Cell Treatments/Case of Cannabis Doctor Goes Up In Smoke 47:07

3y ago47:07

47:07

In this episode you will hear the latest about my medical treatment, and my decision about a medication the doctor wants me on. Also, you will hear about a doctor who was stating that stem cell treatments could cure COVID-19. Resource MedPageToday

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HHS to Revise Doctor-Insurer Dispute Process Under No Surprises Act/Self-Efficacy’s Impact on Pain and Fatigue in Black Women with Lupus 41:14

3y ago41:14

41:14

In this episode you will hear about the No Surprises Act (Surprise Billing). Self-Efficacy Impact on Pain and Fatigue in Black Women with Lupus. And a subject near and dear to my heart Stem Cell Therapy. Check out one of my Youtube channels below that I talk about my journey and research on Stem Cell Therapy for Lupus. Resource lupus.org MedPage To…

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What Is Rheumatoid Arthritis? 51:31

3y ago51:31

51:31

In this episode you will hear about if RA is an overlapping condition to Lupus. Also, you will hear if Kidney Disease Gene Risk Info Aids Prevention in Primary Care. Resources MedPage Today

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Experimental Treatment Offers New Hope Against Lupus 21:30

3y ago21:30

21:30

You will hear about the trail for a new treatment for lupus, this information was published on May 26, 2021. For the phase 1 trial, the team recruited 31 patients with at least one of several autoimmune conditions, including systemic and cutaneous lupus. Resource U.S. News (27, May 2021) Experimental Treatment Offers New Hope Against Lupus.…

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PTSD May Play a Role in the Development of Lupus 42:26

3y ago42:26

42:26

In this you will hear what research state about PTSD in the development of lupus, also you will hear about my upcoming procedure. We also pay tribute to the first Africa American Doctor in Honor of Black History Month James Derham. Resource MedPage Today (18, February 2022) PTSD May Play a Role in the Development of Lupus.…

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The Most Common Neuropsychiatric Disorder People with Lupus Have 33:00

3y ago33:00

33:00

In this episode you will hear about the most common neuropsychiatric disorder people with lupus have. You will also hear the latest in lupus news. You will hear about African American women with lupus at higher risk for adverse perinatal outcomes. You will also learn a little-known Black History Fact. Resources Medline Plus (02, February 2022) SAD.…

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More Than 200,000 Americans Have Lupus? 39:41

3y ago39:41

39:41

In this episode you will hear research from 1 year ago that states the number of individuals with lupus is 200,000 and larger numbers have not been unverified. You will also hear how lupus can affect the heart. Resources John Hopkins (2022) How Does Lupus Affect The Cardiovascular System usnews.com (2022) More Than 200,000 Americans Have Lupus (Hea…

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Medical Marijuana and Lupus 28:42

3y ago28:42

28:42

In this episode you will hear why the use of Medical Marijuana has not been approved for the treatment of lupus, you will also hear about what CBD is, Cannabinoids. Find out why the use of Marijuana has been approved for epileptic seizures. Reference Yale Medicine - From "miracle drug" to medicine? Lupus Foundation - Medical Marijuana (cannabis) an…

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SLE and Lymphoma/Latest in Lupus Research 37:51

3y ago37:51

37:51

In this episode you hear the latest on my journey and how I've been doing. Also, I give a brief connection of SLE and Lymphoma. You will also hear the latest in Lupus Research. Resource Lupus Foundation of America American College of Rheumatology #lupus #lymphoma #lupusresearch #mystorylivingwithlupuspodcast…

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SLE and Non Hodgkins Lymphoma 43:08

3y ago43:08

43:08

In this episode you will hear about my recent diagnosis of non hodgkins lymphoma, I will tell you the signs, you will also learn how B/T Cells play a role in non hodgkins lymphoma. You will also hear the latest in Lupus News. Resources MayoClinic Lupus Foundation of America #lupus #nonhodgkins #lymphoma #mystorylivingwithlupuspodcast…

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Elderly-Onset Of SLE 31:25

3y ago31:25

31:25

In this episode you will find what research states about elderly-onset of sle. Also you will hear about the Wide Differences in Thinking Skills and Abilities Linked to Cognitive Dysfunction in Lupus Patients. Did you know that individuals with sle are at a higher risk of cancer. You will also hear my health update and a tribute to my mother. Resour…

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Melissa Coulier 20:26

3y ago20:26

20:26

Melissa Coulier is a trailblazer in the field of photography, she is here to tell her story of living with lupus. Lifestyle Brand M/M melandmelco.com #melissacoulier #lupus #mystorylivingwithlupuspodcast

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Patti Kaye Bevilacqua 31:02

3+ y ago31:02

31:02

In this episode you will hear about the journey and triumphs of Patti Kaye Bevilacqua of living with MS. #ms #pattibevilacqua #chronicillness #mystorylivingwithlupuspodcast

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Medical Error What's That? 50:15

3+ y ago50:15

50:15

In this episode you will here how medical errors can affect your care, and what is considered a medical error. Also is Hypothyroidism-Depression Link as Strong as We Think? Suicides Rising for Black Girls. Latest in Healthcare News. #medicalerror #suicidesrisingforblackgirls #mystorylivingwithlupuspodcast…

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Christina Kantzavelos - Begin Within Today 32:39

3+ y ago32:39

32:39

In this episode you will meet Christina Kantzavelosa California licensed psychotherapist and writer, but most importantly she also suffers from chronic illness. We are discussing healing, your mind, body and spirit and living a positive life, and how journaling can help you do just that. Pick up your Begin Within - A Daily Healing Journal at: https…

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Clinical Challenge: Diagnosing Hidradenitis Suppurativa 33:32

3+ y ago33:32

33:32

In this episode you will hear the clinical challenges when it comes to diagnosing HS. Also, you will hear the latest in lupus news, along with the conclusion of Injecting Cocaine Into Your Spine for Science. Resources MEDPAGE TODAY (12, August 2021) Clinical Challenge: Diagnosing hidradenitis suppurativa MEDPAGE TODAY (22, July 2021) Injecting coca…

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Author Heather Rendulic 25:39

3+ y ago25:39

25:39

In this episode you will hear the amazing story of Author Heather Rendulic journey of living with Cavernous Angioma. To purchase her book Head Strong Through Life, Love and Brain Surgery. Go to her website- heatherheadstrong.com #cavernousangioma #headstrong #mystorylivingwithlupus.com

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Deceived From Within Author Darren Radke 34:37

3+ y ago34:37

34:37

In this episode Author Darren Radke discuss his journey of living with both APS an autoimmune illness that is more common in women. It is rare fewer than 200,000 cases per year in the United States. He also discusses his symptoms of lupus. To purchase this inspirational book go to: www.deceivedfromwithin.com. You wont be disappointed. #antiphosphol…

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How Men Can Cope with a Chronic Disease Like Lupus 30:51

3+ y ago30:51

30:51

In this episode men will learn some coping techniques on how to cope with lupus. Also you will hear how HCQ is associated with lower risk of developing endometriosis in women with lupus. Part 2 of injecting cocaine into your spine for science yes, doctors actually did this. And lastly you will hear why I have to have a biopsy performed. Resource Lu…

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Healthy Lifestyle Limits Lupus Risk? 41:27

3+ y ago41:27

41:27

In this episode you will hear what states about living a healthy lifestyle may limit the risk of an individual having lupus. Also you will hear about the importance of seeking help from a qualified mental health professional. Lastly it's story time, that's right story time. You will hear part 1 of injecting cocaine into your spine for science. Reso…

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New Testing Improves Disease Diagnosis and Helps Guide Treatment Decisions in Lupus 44:35

3+ y ago44:35

44:35

In this episode you will hear about the newly published research that further demonstrates the effectiveness of the lupus diagnostic test known as the AVISE Lupus Test. Also you will hear about the Urban Institute study on the outcomes of black and white patients. Resource Lupus Foundation of America (14, July 2021) AVISE Lupus Test Improves Diseas…

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Slow Steroid Tapering Succeeds in SLE/Fibromyalgia likely the result of autoimmune problems/ Nurse Suspended Over TikTok Videos About Patients 38:54

3+ y ago38:54

38:54

In this episode you will hear how steroid tapering is safer for patients with SLE. Research shows that fibromyalgia is a result of autoimmune problems. You will hear what I have been diagnosed with now and lastly a nurse is suspended over her TikTok videos about patient, but she stated that the only thing that is hurt are feelings.Go and leave a re…

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In Lupus Keep BP Below 130/80 39:52

3+ y ago39:52

39:52

In this episode you will hear why researchers believe it for individuals with lupus maintain a lower BP. Also in this episode you will hear about Tumid Lupus Erythematosus, Signs, Symptoms and Treatments and lastly What Is Whole Persons Health, Is it Physical, Mental, Environmental? Resource MedPage Today (19, June 2021) In Lupus, Keep BP Below 130…

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Latest in Health Care News 39:41

3+ y ago39:41

39:41

In this episode you hear about a black doctor who won a $2.75 million verdict, and you will never guess what the judge in the case did. Also you will hear about association of California's prescription drug coupon ban with generic drug use. And lastly Houston Methodist sued over vax mandate. Resource MedpageToday (01, June 2021) Houston Methodist S…

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When Hyperactive Proteins Trigger Illnesses/Plant-Derived Compound May Help Treat Chronic Pain 36:02

3+ y ago36:02

36:02

In this episode you will hear how hyperactive proteins trigger illnesses, also do you think that plant-derived compounds could help treat chronic pain? Also you will hear how doing some exercises can help with chronic pain management. If you are listening on Applepodcast please subscribe, rate and leave a review. Resource Medical News Today (09, Ju…

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For Lupus Mental Health, Physical Activity Matter/ Lung Hemorrhage In Lupus: Which Patients Die? 45:25

3+ y ago45:25

45:25

***Disclaimer Discretion Advised*** In this episode you will hear what researcher state how inactivity in individuals with lupus causes depression. Also you will hear about Lung Hemorrhage in, Lupus, risk factors include older age, longer disease duration, infection and certain treatments. Also, if you listen to me on Appledpodcast, please go and f…

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What Connects Lupus And Diabetes? 25:11

3+ y ago25:11

25:11

In this episode you will hear what really connects lupus and diabetes is it caused by the medication that we take for lupus? Is the connection based on antibodies? Or is it both? You will find out! Resources MEDPAGE TODAY (23, May 2021) Op-Ed: Diabetes Is Not An Equal Opportunity Killer---Policy change and community intervention can help fight disp…

1
Lifestyle Management 52:48

3+ y ago52:48

52:48

In this episode you will hear steps to help you manage your lifestyle while living with Lupus. Also Bettie Harvey tells her story about her journey of living with Lupus. Resource Lifestyle Management - The Lupus Initiative - Self Management Bettie Harvey - Tells her story about her journey of living with lupus #lifestylemanagement #lupus #mystoryli…

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Latest in Health Care News 38:53

3+ y ago38:53

38:53

You will hear the latest in Healthcare News which was retrieved from MedPage Today, from Kickbacks to Report: Worst Hospitals for Unnecessary Procedures — Lown Institute says report is the first to name hospitals with high rates of overuse. Neurosurgeon Settles Kickback, Unnecessary Spine Surgery Charges — Allegedly performed unnecessary procedures…

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Warrior Mindset! 12:00

3+ y ago12:00

12:00

May represents Lupus Awareness Month. In this episode I give my own take on what I believe is a Warrior Mindset.

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Coexistence of sickle cell disease and systemic lupus erythematosus 29:53

3+ y ago29:53

29:53

Lupus and sickle cell are two diseases that turn the body against itself. You will hear about how sickle cell and lupus are to distinct chronic conditions sharing clinical manifestation. Coexistence of these two diseases is rare. Also you will hear the latest in healthcare news/ Resource National Library Of Medicine ( 12, April 2021 ) [Coexistence …

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