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Living Well with Lipedema

Lipedema Simplified

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Lipedema, the disease they call fat, is a chronic fat disorder that affects 17 million women in the USA and as many as 350 million women worldwide. It is often mistaken for simple obesity. Generally under-recognized and misdiagnosed, symptoms include pain, swelling and weight gain disproportionately distributed in the thighs, buttocks, legs, and hips with a smaller upper body. Lipedema fat is resistant to diet and exercise and without intervention progresses and worsens over time. This flash ...
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Dive into the challenges, triumphs, and complexities of managing lipedema while balancing a full-time career, gaining insights and support from experts and fellow sufferers alike. Whether you're directly affected by lipedema or seeking to understand more about this condition, this podcast provides a compassionate and informative space to learn and share.
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Spotlight Lipedema

Lori Pellnitz

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Spotlight Lipedema focuses on bringing together people, mostly but not exclusively women, living with lipedema and lipo-lymphedema. We will share stories, what has helped and what has aggravated our lipedema. Spotlight Lipedema will also feature some lipedema and lymphedema experts from the community to help us learn more about current management techniques and what is happening with lipedema research.
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Welcome to today's episode where we explore groundbreaking research led by Melissa Garcia-Caballero and her team in Belgium, published in 2019. Their study highlights how elevating ketone bodies in the lymph, either through a ketogenic diet or supplementation, can promote lymph vessel formation and facilitate fluid drainage. This research holds sig…
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In this heart to heart conversation, Dr. Catherine Seo and Lisa Duerre share a deeply personal journey of navigating lipedema and central lymphatics, offering insights, hope, and community support. Reflecting on the metaphor of the Northern Lights, they discuss the importance of seeing beyond surface appearances and embracing the multifaceted beaut…
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Welcome to today's episode featuring excerpts from a Fireside Chat held within the Lipedema Simplified TRIBE in December 2022. Our discussion focuses on central lymphatic dysfunction, specifically addressing challenges within the trunk lymphatics. Join us as Kelly Bell shares his personal journey and insights into this condition, followed by Blanch…
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Welcome to today's episode where we explore groundbreaking research conducted by Rischelle Crescenzi and colleagues at Vanderbilt University. Their study investigates the accumulation of sodium in the skin and subcutaneous adipose tissue of women with lipedema. Join us as we delve into how tissue sodium levels could potentially distinguish lipedema…
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Welcome to today's episode, featuring an excerpt from Dr. Emily Iker's presentation at our Heart 2 Heart virtual event in October 2022. Dr. Iker, a distinguished physician specializing in lymphology based in Santa Monica, California, shares invaluable insights into the symptoms of lipedema and her innovative use of ultrasound to examine subcutaneou…
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Welcome to today's podcast episode where we delve into an intriguing article titled 'The Lymphatic Vasculature in the 21st Century: Novel Functional Roles in Homeostasis and Disease,' authored by Guillermo Oliver and Natasha Harvey, and published in July 2020 by Cell Press. Join me as we explore how lymphatics are reshaping our understanding of hea…
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In this episode, we present excerpts from a Fireside Chat held in the Lipedema Simplified TRIBE in December 2022. Several TRIBE members and Siobhan Huggins, share their personal experiences and practical tips for traveling with lipedema and lymphedema. These insights offer valuable advice for managing travel while dealing with these conditions.…
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In this episode, we share an excerpt from a presentation by Gail Straker at our Ketogenic Revolution for Lipedema & Lymphedema virtual symposium in April 2022. Gail, the Community Manager and Director of Coaching for Lipedema Simplified, discusses her approach to fasting. She explains the concept of "slowing down to fast" and shares how she began a…
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This episode discusses an article titled “The MMP14–caveolin axis and its potential relevance for lipoedema,” published in Nature Reviews Endocrinology in August 2020 by research groups in Germany and Texas. The study aims to uncover the root cause of lipedema and suggests a potential mechanism involving the dysregulation of the CAV1 protein and th…
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In this episode, we feature an excerpt from a presentation by Dr. Stanley Rockson at our Heart 2 Heart virtual event in October 2022. Dr. Rockson, the Allan and Tina Neill Professor of Lymphatic Research and Medicine at Stanford University School of Medicine, also serves as Chief of Consultative Cardiology and Director of the Stanford Center for Ly…
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Join Dr.Catherine Seo and Lisa Duerre in a heart to heart conversation about preventing burnout while navigating life with lipedema. In this episode, Catherine and Lisa share their own burnout experiences and how they each rebooted from burnout in their careers and when navigating the complexities and overwhelm that comes with lipedema. With burnou…
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In this discussion, we delve into a paper by Anne Williams published in 2019. Williams reviewed 10 studies from 2006 to 2019 to evaluate the outcomes of liposuction for women with lipedema and Dercum’s disease. She notes that while liposuction is not a cure and may not be suitable for everyone, it is frequently considered when symptoms become sever…
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In this episode, we present an excerpt from Dr. Stefan Rapprich's presentation at the Heart 2 Heart virtual event held in October 2022. Dr. Rapprich is a renowned dermatologic surgeon, dermatologist, and phlebologist in Germany, with extensive experience in treating lipedema patients through liposuction. In this segment, he provides an in-depth loo…
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Today I’d like to tell you about an open-access paper titled, Proposed Framework for Research Case Definitions of Lipedema It was published in Lymphatic Research and Biology Volume 22, Number 2 in March 2024. This work aims to describe the clinical, instrumental, and blood test results of a large population of women affected by lipedema in the lowe…
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- The first article, titled “Liposuction is an Effective Treatment for Lipedema – Results of a Study with 25 Patients,” was published in the *Journal of the German Society of Dermatology* in 2010 by a group of surgeons in Germany. - Their objective in developing and using this questionnaire was to objectively quantify lipedema symptoms before and a…
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- Today, Mende Staggs shares her four essential rules for starting a ketogenic eating plan and discusses how to measure your success. - Mende began her keto journey in August 2016, inspired by the first Keto for Lipedema webinar. - After a lifetime of unsuccessful dieting and a recent lipedema diagnosis, she was initially skeptical about dietary ch…
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In this heart to heart conversation, Dr. Catherine Seo and Lisa Duerre reflect on their journey so far as co-hosts of this series, discussing the invaluable insights shared, the inspiring community engagement, and their own personal takeaways from the April Lipedema Simplified’sHeart to Heart Virtual Event Conference. Among the topics discussed, th…
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This episode talks about an article titled “Lipedema in Patients after Bariatric Surgery” was published in the journal Surgery for Obesity and Related Diseases in 2016. This is a case study report from several surgeons at hospitals in New York, including John Bast, Leaque Ahmed, and Ryan Engdahl. The authors report on two women who underwent weight…
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This episode talks about an article titled “Aldo-Keto Reductase 1C1 (AKR1C1) as the First Mutated Gene in a Family with Nonsyndromic Primary Lipedema” which was published in the International Journal of Molecular Sciences in August 2020 by a group of researchers in Italy. This study analyzed the genetic profile of three women with lipedema from the…
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- The title of this article is Effect of a low-carbohydrate diet on pain and quality of life in female patients with lipedema: a randomized controlled trial. - It was published in the peer-reviewed journal Obesity in April 2024. - This paper describes the completed RCT, focusing on evaluating the effects of a low-carb diet (LCD) compared to a stand…
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Carrie holds a bachelor's degree in Nutritional Medicine from Paramount College in Western Australia, where she graduated at the top of her class. She is also qualified in Functional Nutrition and Lifestyle Medicine through the Functional Nutrition Alliance in the United States and is a certified Keto Coach. Residing in sunny Western Australia, Car…
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Join hosts Dr. Catherine Seo and Lisa Duerre and their guest Crystal Elligson, a fierce advocate for those living with lipedema. Crystal shares her personal lipedema journey, the challenges she faced in getting her condition recognized, and her ongoing legal battle in Nova Scotia for lipedema removal surgery coverage. Her story underscores the impo…
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Today, I’m sharing an excerpt from an interview with Dr. Paula Stewart from our 2017 Lipedema & Keto Worldwide Summit. Dr. Stewart, board-certified in Physical Medicine & Rehabilitation, specializes in general physical rehabilitation, neurologic rehabilitation, and comprehensive care for patients with cancer and lymphedema. In this excerpt, Dr. Ste…
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Today, I’m sharing an excerpt from an interview with Dr. Joanna Dudek, a psychologist and researcher in Poland, recorded at the 2016 Lipedema Worldwide Summit. Dr. Dudek, known for her groundbreaking research on lipedema, discusses the challenges of loving one’s body and the practice of acceptance. She explains how this acceptance can enhance quali…
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The International Lymphatic Disease and Lymphedema Patient Registry & Biorepository plays a crucial role in advancing lipedema research and raising awareness about the condition. Overseen by the LE&RN Board of Directors and the Institutional Review Board of Stanford University, led by Dr. Stanley Rockson, the registry aims to expand our understandi…
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Today, Dr. Carol Rowsemitt discusses Famine Response Hypothyroidism, its impact on women with lipedema, and its effects even when following a keto diet. Carol “Rosey” Rowsemitt, PhD, RN, FNP, was a practicing scientist studying ecological physiology (BA in chemistry, PhD in biology) before becoming a family nurse practitioner. Specializing in weigh…
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- Today I’d like to tell you about a study by Dr. Ahmet Karacalar, a plastic surgeon in Turkey who performs liposuction on patients with lipedema. - He wrote this book during the lockdowns in 2020 and was published in May 2023. - The title of his book is Lipoedema: An Evolutionary Mismatch. - He presents archaeological evidence that lipedema is an …
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In January 2017, Dr. Melissa Garcia Caballero joined Prof. Peter Carmeliet's prestigious laboratory in Leuven, Belgium, to investigate the therapeutic role of ketone body supplementation in lymphedema. The exciting findings from this study garnered interest among clinicians and led to the initiation of a collaborative translational clinical Phase I…
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Join Dr. Catherine Seo and Lisa Duerre in a deep dive into the intersection of lipedema, work, and self-care. In this enlightening heart-to-heart conversation, they share personal experiences and insights on managing the demands of lipedema alongside professional and caregiving responsibilities. From the importance of personalized nutrition to the …
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Today, Dr. Siren Nymo discusses the LIPODIET study conducted in Norway and its remarkable results. Dr. Nymo is an authorized clinical nutritionist with a PhD in obesity and metabolism from the Norwegian University of Technology and Science (NTNU). She is currently an associate professor at the university and is pursuing a post-doctorate at Nord-Trø…
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Today, I’m sharing an excerpt from an interview with Dr. Stanley Rockson from our Lipedema Worldwide Summit in 2016. Dr. Rockson is the Director of the Stanford Center for Lymphatic and Venous Disorders, Chief of Consultative Cardiology, and Professor of Lymphatic Research and Medicine at Stanford School of Medicine. In this excerpt, Dr. Rockson de…
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Today, we explore research conducted by Joanna Dudek and colleagues from Poland, published in 2018. The authors suggest that because lipedema is a chronic condition, it can lead to feelings of helplessness and depression. Their findings indicate that both appearance-related distress and depression significantly impact the quality of life. This impo…
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- Today’s episode features an excerpt from an interview with Kim Duren, recorded during our Lipedema & Keto Worldwide Summit in 2017. - In this segment, Kim recounts her lifelong struggle with weight since high school and how traditional methods failed her. - She explains how her life transformed after discovering her lipedema diagnosis and adoptin…
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- Today, Mende Staggs shares her ketogenic diet plan and the foods she enjoys. - Mende began her keto journey in August 2016 after attending the first Keto for Lipedema webinar. - After a lifetime of unsuccessful diets and a recent lipedema diagnosis, she doubted that changing her diet would help—but she was pleasantly surprised. - Living on a smal…
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- Today I’d like to tell you about a study by several researchers and clinicians in Italy, including Roberto Cannataro, who spoke at one of our previous H2H events. - The title of this article is Observational Study on a Large Italian Population with Lipedema: Biochemical and Hormonal Profile, Anatomical and Clinical Evaluation, Self-Reported Histo…
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- Today’s episode features an excerpt from an interview with Dr. David Amron, recorded during our Lipedema Worldwide Summit in 2016. - Dr. Amron, a Beverly Hills-based plastic surgeon specializing in liposuction for lipedema, shares his expertise. - In this segment, he discusses the Roxbury Institute, regenerative medicine, stem cell therapy, and t…
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In this heart to heart discussion, Lisa Duerre and Dr. Catherine Seo dig into the importance of advocating for oneself, particularly in the workplace and healthcare settings. Reflecting on personal experiences living with lipedema and navigating a career, they discuss the challenges of recognizing and addressing pain, the stigma surrounding body si…
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- Today’s episode features an excerpt from an interview with Dr. Aylah Clark, recorded during our Lipedema & Keto Worldwide Summit in 2017. - Dr. Clark, a naturopath based in Connecticut, USA, shares her insights. - In this segment, she details her approach to treating lipedema patients in her practice.…
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- In today’s episode, we feature an excerpt from an interview with Dr. Georgia Ede, recorded during our Lipedema & Keto Worldwide Summit in 2017. - Dr. Ede, a Harvard-trained psychiatrist with a focus on nutrition, shares her expertise. - Visit her excellent website at diagnosisdiet.com. - In this segment, Dr. Ede explores the connection between ch…
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- Today's episode features a highlight from my presentation at the Heart 2 Heart virtual event held on March 31 through April 2, 2023. - In this segment, I discuss Complete Decongestive Therapy (CDT), the premier approach for the conservative treatment of lipedema and lymphedema.Kirjoittanut Lipedema Simplified
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Today, Gail Straker shares her keto journey and the numerous health improvements she has experienced. As a dedicated teacher, Gail has always embraced learning and sharing her knowledge with others. She has guided over a dozen loved ones to take charge of their health, lose weight, and reduce medications through dietary changes. Gail continues to h…
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Today, we explore a groundbreaking research paper published in JCI Insight by Ma and colleagues in June 2020, titled “Platelet factor 4 is a biomarker for lymphatic-promoted disorders.” The study, which included contributions from Dr. Stanley Rockson at Stanford University and Dr. Guillermo Oliver at Northwestern, aimed to identify a biomarker for …
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