Parhaat Sickle Cell Podcastit (2024)

1
Revving Up for Clinical Trial Awareness in the Motor City 46:54

6d ago46:54

46:54

On this episode of Cheat Codes: A Sickle Cell Podcast, we’re live in the Motor City: Detroit, Michigan. This live event featured Dr. Z and Dr. C interviewing a panel of esteemed guests including Davinna Christian, Dr. Alex Glaros and Clifton Kirkman, II discussing clinical trial awareness. We also hear from Dr. Wanda Whitten-Shurney at the end of t…

1
Women and Sickle Cell Disease 11:31

4M ago11:31

11:31

On this edition of Blood, Sweat and Cells: Real Talk About Sickle Cell Disease, We delve into the unique challenges women face when managing sickle cell disease, from menstrual issues to fertility concerns. Join us as we have a candid conversation with Dr. Sheinei Alan, an expert in sickle cell disease and its impact on women's health. Discover wha…

1
Sickle Cell Advocacy with Miss Teen Virginia, Ayana Johnson 32:09

4M ago32:09

32:09

On this episode of Cheat Codes: A Sickle Cell Podcast, we speak with Ayana Johnson. In addition to being a sickle cell warrior, Ayana is also Miss Teen Virginia ‘22, a teen ambassador of the SCDAA and founder of Ay’s Hope Cells. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are…

1
Sickle Cell + Bone Marrow Transplant 1:23:23

4M ago1:23:23

1:23:23

Featuring Christina Augustine and Dr. Alexander I. Ngwube, MD, this episode provides an comprehensive exploration on bone marrow transplant (BMT) for sickle cell disease, blending personal experiences with professional expertise. A huge thank you to Be the Match for Sponsoring this episode. For more information about Be the Match, visit: https://si…

1
Replay: International Legends of Sickle Cell: Professor Clarisse Lobo & Dr. Kleber Fertrin 32:05

6M ago32:05

32:05

This episode of Cheat Codes is our first bilingual podcasting experience. In the first half of the episode, Dr. Z and Dr. C speak with Professor Clarisse Lobo and Dr. Kleber Fertrin in English about their experience with sickle cell in Brazil. In the second half, we hear from them in their native Portuguese language. SHOW DESCRIPTION Cheat Codes is…

1
Regina Hartfield of the SCDAA 29:24

7M ago29:24

29:24

hhttp://On this episode of Cheat Codes: A Sickle Cell Podcast, we speak with Regina Hartfield, CEO of the Sickle Cell Disease Association of America, Inc (SCDAA). SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strive…

1
Blood, Sweat and Cells: Understanding The Sickle Cell Trait 12:22

8M ago12:22

12:22

This sickle cell awareness month, the Heart of Gold Sickle Cell Foundation of Northern Virginia invites you to discover the significance of knowing your sickle cell status. Our guest, Dr. Sheinei Alan, sheds a light on understanding the distinction between sickle cell disease and the sickle cell trait. We'll explore family planning for couples who …

1
REPLAY: RISE UP for Sickle Cell Disease - A Warrior Panel 47:16

8M ago47:16

47:16

http://On this episode, Dr. Z and Dr. C talk to a panel of Sickle Cell warriors who were part of the RISE UP campaign. RISE UP is the name of Agios’ phase two and phase three clinical trial for Sickle Cell Disease. The campaign itself was directed by the warriors to help the community know about the trial, to help educate, to help answer any questi…

1
Strength and Resiliency: Parenting A Child with Sickle Cell Disease 16:48

9M ago16:48

16:48

In this heartfelt episode, join host Valerie Bey and her guest Dr. Clarence Pearson as they dive into a deeply moving conversation with a courageous father who opens up about his journey of raising a daughter with sickle cell disease. Through his candid storytelling, listeners gain valuable insights into the profound challenges and triumphs faced b…

1
Cayenne Wellness 36:34

9M ago36:34

36:34

On this episode, Dr. Z and Dr. C talk to Dr. Carolyn Rowley and Elle Colle about Cayenne Wellness. Their mission is to increase the quality of life for individuals diagnosed with sickle cell disease in California by ensuring expert, unbiased, and comprehensive care.” Learn more about Cayenne Wellness at https://cayennewellness.org SHOW DESCRIPTION …

1
Reproductive Health in Sickle Cell 23:17

10M ago23:17

23:17

On this episode, Dr. Z and Dr. C talk to “The Avengers” of Sickle Cell Disease aka Teonna Woolford, Cassandra Trimnell and Rae Blaylark about reproductive health in sickle cell disease. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each epis…

1
Juneteenth and World Sickle Cell Day 10:03

11M ago10:03

10:03

In this podcast we delve into the intersections of Juneteenth and World Sickle Cell Day in highlighting health disparities and promoting equity in our community. In addition, we'll take you on a fascinating audio tour of the high-tech and innovative Adult Sickle Cell Center at Inova Hospital, providing you with an exciting glimpse into the latest a…

1
International Legends of Sickle Cell: Professor Clarisse Lobo & Dr. Kleber Fertrin 32:05

11M ago32:05

32:05

This episode of Cheat Codes is our first bilingual podcasting experience. In the first half of the episode, Dr. Z and Dr. C speak with Professor Clarisse Lobo and Dr. Kleber Fertrin in English about their experience with sickle cell in Brazil. In the second half, we hear from them in their native Portuguese language. SHOW DESCRIPTION Cheat Codes is…

1
Rising Stars in Sickle Cell: Dr. Oladipo Cole 33:43

1y ago33:43

33:43

On this episode, Dr. Z and Dr. C talk shop with a rising star in sickle cell disease. Dr. Oladipo Cole is a fellow at Washington University in St. Louis, MO. He also has sickle cell disease. Here he talks about his journey from child living with sickle cell disease to physician working in the disease state. SHOW DESCRIPTION Cheat Codes is a podcast…

1
Legends of Sickle Cell - Dr. Obiageli Nnodu 37:19

1y ago37:19

37:19

Dr. Z and Dr. C welcome “Sickle Cell Legend” Dr. Obiageli Nnodu to the program. Dr. Nnodu is the Director of Centre For Sickle Cell Disease Research & Training at the (CESRTA) University of Abuja in Nigeria. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with …

1
LIVE in New Orleans: A Red Cell Revolution 48:26

1y ago48:26

48:26

We're LIVE from New Orleans, Louisiana! Listen to our live podcast panel featuring members of the sickle cell, pyruvate kinase deficiency, and thalassemia communities and leading KOL's in each field. We are proud to introduce the Red Cell Revolution! The Red Cell Revolution is an Agios patient advocacy movement that is driven by a relentless desire…

1
Unboxing the future 8:12

1y ago8:12

8:12

How about the ability to predict a Sickle Cell crisis, and halt it, long before it had the chance to strike? Or perhaps take a pill that offers a cure by replacing the faulty gene with a new one? How about a potent drug made from African herbs proven to reduce pain or even specialised nutrition advice, medically proven to ensure a better quality of…

1
Finding Medicine with Dr Norris Igbineweka and Dr Mary Ansong 28:45

1y ago28:45

28:45

Health inequality is a major challenge both within and between countries, but what happens when the latest therapies are inaccessible to the countries that need them most? On this episode i'm joined by Dr Norris Igbineweka, a UK-based haematologist who's currently undertaking a PhD in gene editing for red blood cell diseases at Imperial University …

1
Sickle Cell and Love with Dr Olaniyi Owoeye 34:09

1y ago34:09

34:09

The theme of Sickle Cell and love is an unavoidable dilemma for many. On this episode, I caught up with Dr Olaniyi Owoeye, a consultant haematologist at the medical diagnostic company Synlab Nigeria. We explore his challenges on the theme and how advances in medicine could avoid heartbreak for many couples globally. *EVENT REGISTRATION* Join us on …

1
Lived experiences in Nigeria and the UK with Rochelle, Sonia and Chukwuma 35:25

1y ago35:25

35:25

In this episode, I catch up with Sonia, Rochelle and Chukuma on their experiences of living with Sickle Cell from the perspectives of the UK and Nigeria. We'll explore the good, the bad, and the ugly. *EVENT REGISTRATION* Join us on Rare Disease Day, February 28th 2023, for an online discussion and Q&A with some of the guests we’ve featured on the …

1
Unboxing the past and the present 6:55

1y ago6:55

6:55

From Water Clement Noel, a wealthy Caribbean student studying in America in 1904, to the metaphysical in Nigerian folklore, we explore the various explanations given to Sickle Cell over the years, and examine the latest treatments available today. *EVENT REGISTRATION* Join us on Rare Disease Day, February 28th 2023, for an online discussion and Q&A…

1
Replay: Legends of Sickle Cell. The Momma Bears 1:01:46

1y ago1:01:46

1:01:46

On this episode, Dr. Z and Dr. C talk to some very important advocates in the Sickle Cell community: “The Momma Bears”. Yvonne Carroll, Adrienne Shapiro and Pat Corley. Later in the episode we hear from Teonna Woolford, CEO of the Sickle Cell Reproductive Health Organization. Originally aired September 6, 2022. SHOW DESCRIPTION Cheat Codes is a pod…

1
Coming up on Sickle Cell Unboxed 3:55

1y ago3:55

3:55

Sickle Cell Unboxed launches on February 6th! Coming up on this series... Episode 1: Unboxing the past and the present Episode 2: Lived experiences in Nigeria and the UK with Rochelle, Sonia and Chukwuma Episode 3: Sickle Cell and Love with Dr Olaniyi Owoeye Episode 4: Finding Medicine with Dr Norris Igbineweka and Dr Mary Ansong Episode 5: Unboxin…

1
Getting to Know Doctors Ahmar Zaidi & Mike Callaghan 37:14

1+ y ago37:14

37:14

On this episode, we’re turning our attention to our hosts: Dr. Ahmar Zaidi and Dr. Mike Callaghan. We’ll get to know them a little better and learn about their journey into medicine and sickle cell disease. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with c…

1
Biba Tinga, Sickle Cell Disease Association of Canada 32:28

1+ y ago32:28

32:28

Dr. Z and Dr. C are back! On this episode they speak with Biba Tinga, President & Executive Director of the Sickle Cell Disease Association of Canada. They also discuss the care of her son Ismaël who was diagnosed with the rare disease. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segment…

1
A What Just Happened Episode of Cheat Codes with the Sickle Cell Consortium - Part 2 1:00:23

1+ y ago1:00:23

1:00:23

Sharonda Sikes of the Sickle Cell Consortium will provide a recap of The Sickle Cell Warriors Convention with guests Dr. Lametra Scott, Dr. Simone Uwan and Francine Baker. The Sickle Cell Warriors Convention is a national community gathering, created and organized entirely by sickle cell patients and caregivers. Each year the Convention is hosted b…

1
A What Just Happened Episode of Cheat Codes with the Sickle Cell Consortium 39:21

1+ y ago39:21

39:21

Sharonda Sikes of the Sickle Cell Consortium will provide a recap of The Sickle Cell Warriors Convention with guests Dr. Tomia Austin and Mia Robinson. The Sickle Cell Warriors Convention is a national community gathering, created and organized entirely by sickle cell patients and caregivers. Each year the Convention is hosted by a partnership of s…

1
Legends of Sickle Cell. The Momma Bears 1:01:46

1+ y ago1:01:46

1:01:46

On this episode, Dr. Z and Dr. C talk to some very important advocates in the Sickle Cell community: “The Momma Bears”. Yvonne Carroll, Adrienne Shapiro and Pat Corley. Later in the episode we hear from Teonna Woolford, CEO of the Sickle Cell Reproductive Health Organization. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community t…

1
Follow Your Heart 22:40

1+ y ago22:40

22:40

The final episode of Bringing Sickle Cell Disease to Life explores the concepts of putting research into practice, implementation science, and advocacy. Dr. Wally Smith hears from sickle cell pioneer and researcher Dr. Marilyn Hughes Gaston about early research with hydroxyurea. Sickle cell disease (SCD) provider and warrior Dr. Titilope Fasipe tal…

1
Connections Across the Globe 24:14

1+ y ago24:14

24:14

Sickle cell disease (SCD) affects people all over the world. In this episode, Dr. Wally Smith interviews Dr. Russell Ware, an SCD provider and researcher who assembled an international team of experts to participate in global clinical trials. International SCD researcher Dr. Solomon Ofori-Acquah shares the story of how he got into research and how …

1
Legends of Sickle Cell - Dr. Charles Jonassaint, Jude Jonassaint & Cassandra Trimnell 41:10

1+ y ago41:10

41:10

On this episode, Dr. Z and Dr. C speak with Cassandra Trimnell of Sickle Cell 101, Dr. Charles Jonassaint & Jude Jonassaint. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and …

1
Everyone Has a Place 14:33

1+ y ago14:33

14:33

Not enough hematologists specialize in sickle cell disease (SCD) to reach all the people who need care. Host Dr. Wally Smith talks with Dr. JJ Strouse about outreach programs he has developed to reach individuals in rural communities. SCD expert care provider and researcher Dr. Michael DeBaun describes how he involves physicians from many other dis…

1
Love + Sickle Cell Trait (Feat. Abisola and Seyi Shof) 58:13

2y ago58:13

58:13

For the month of July, we are bringing awareness to sickle cell trait. Abibat Oshiobugie Suleiman is the host for today's episode. Abi talks with special guests Abisola and Seyi Shof, also known as “the Shofs” on social media, about their involvement in the sickle cell community, their love story with SCT, the challenges they had to face with telli…

1
Home Is Where the Care Is 21:25

2y ago21:25

21:25

Researchers, patients, and providers discuss the importance of a quality “medical home” for people living with sickle cell disease (SCD). ASH Research Collaborative Community engagement Manager Shauna Whisenton, an SCD warrior, describes the benefits she experienced once she found a medical home. SCD experts share their experiences creating treatme…

1
Legends of Sickle Cell - Russell Ware, MD, PhD 44:18

2y ago44:18

44:18

On this episode, Dr. Z and Dr. C talk to Sickle Cell Legend Russell Ware, MD, PhD SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, an…

1
RISE UP for Sickle Cell Disease - A Warrior Panel 47:16

2y ago47:16

47:16

On this episode, Dr. Z and Dr. C talk to a panel of Sickle Cell warriors who were part of the RISE UP campaign. RISE UP is the name of Agios’ phase two and phase three clinical trial for Sickle Cell Disease. The campaign itself was directed by the warriors to help the community know about the trial, to help educate, to help answer any questions the…

1
Fighting Racism From the Lab Bench to the Patient Bedside in Sickle Cell Research 17:40

2y ago17:40

17:40

Translational research discoveries have been critical in improving care for people living with sickle cell disease (SCD). In this episode, Dr. Courtney Fitzhugh shares her passion for translational research and how it can directly help individuals living with SCD. Kyle Smith describes how acute chest syndrome impacts his day-to-day activities. Dr. …

1
Improving Emergency Care: The Painful Truth 17:23

2y ago17:23

17:23

Emergency departments (ED) are inevitable for people living with sickle cell disease (SCD). Many clinicians in the ED, however, misunderstand the disease and perceive patients as drug seekers. This episode explores how education can help shift attitudes and how proper data and support can improve clinics. Shauna Whisenton describes an experience th…

1
Waiting for Mercy 22:37

2y ago22:37

22:37

Structural racism and implicit bias are prominent in the care of people living with sickle cell disease (SCD). Dr. Marilyn Hughes Gaston shares how she unwittingly showed bias early in her career and learned from her mistake. Host Dr. Wally Smith talks to several people living with SCD who have experienced bias first-hand, including ASH Research Co…

1
Chwechweechwe: Relentless Perpetual Chewing 29:33

2y ago29:33

29:33

Severe pain, which is the most common complication for people living with sickle cell disease (SCD), severely affects their quality of life. This episode starts with a passage about the excruciating pain a person living with SCD endures read by SCD care and research pioneer Dr. Marilyn Hughes Gaston. Host Dr. Wally Smith talks to Kyle Smith, an adv…

1
Legends of Sickle Cell - Dr. Michael DeBaun & Shamonica Wiggins 1:00:13

2y ago1:00:13

1:00:13

On this episode, Dr. Z and Dr. C debut a series about the “Legends of Sickle Cell”. They interview Dr. Michael DeBaun and patient legend Shamonica Wiggins. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need t…

1
Making the Leap From Physician to Researcher 21:20

2y ago21:20

21:20

In the final episode of Season 1, Dr. Courtney Fitzhugh encourages medical students interested in sickle cell disease to get involved and reach out to a mentor. She shares her journey to becoming a physician scientist with a lab at the National Institutes of Health where groundbreaking research is translated into patient care. Learn about joining A…

1
Finding a Purpose Through Sickle Cell Disease Research 19:32

2y ago19:32

19:32

In this episode, Dr. Betty Pace explains her path to conducting research in sickle cell disease. As a clinician and researcher, she shares how she was able to bring the clinical perspective to the lab. Learn some important techniques to secure an independent investigator status and overcome challenges including concerns about financial security. Le…

1
Ubuntu: I Am Because We Are 22:17

2y ago22:17

22:17

Young individuals living with sickle cell disease eventually age out of the pediatric units and struggle as they transition to adult care. In this episode, we hear from Kyle, a person living with sickle cell disease, about his experience transitioning from pediatric to adult care. Dr. James Eckman and Dr. John J. Strouse explain the typical problem…

1
Hot Topic 🔥 Family Planning + "Genetic Incompatibility" 38:37

2y ago38:37

38:37

The first of our Hot Topic 🔥 series. Hosts Stephen and Cass have THAT conversation about two individuals wanting to have children but are faced with a chance of having a child with sickle cell disease. Do you believe people who are "genetically incompatible" (like AS and AS) should have children? Send in your responses to podcast@sc101.org --- Supp…

1
An Unpredictable Childhood 22:56

2y ago22:56

22:56

In the past, children with undiagnosed sickle cell disease were at risk of dying in as little as nine hours of sepsis. In this episode of Bringing Sickle Cell Disease to Life, we hear more from Kyle, an individual living with sickle cell disease. Dr. Wally Smith interviews Dr. James Eckman about the importance of newborn screening. Dr. Russell Ware…

1
Progress Over Decades: We’ve Come a Long Way 24:15

2y ago24:15

24:15

In the first episode of Bringing Sickle Cell Disease to Life, Kyle Smith, an individual living with sickle cell disease and a leader in community advocacy, will share his story with us. Our host Dr. Wally Smith interviews a legend in the field Dr. Clarice Reid on the history of sickle cell disease. She describes two events that helped launch sickle…

1
Coming Soon: Bringing Sickle Cell Disease to Life 1:47

2y ago1:47

1:47

Coming soon: This podcast, hosted by Dr. Wally Smith of Virginia Commonwealth University, features interviews of diverse leading experts including researchers, physicians, and individuals living with the disease, exploring the history of the disease, the global impact and need for additional providers, disparity and bias in sickle cell disease, and…

1
2021 SCAY Award Winners + Their Stories, Their Work (Feat. Biba Tinga, Siliana Coelho, and Sarah Masamba) 57:37

2y ago57:37

57:37

Cass chats with the 2021 Sickle Cell Advocates of the Year (SCAY) Award recipients about how they got involved and what they’ve achieved. This episode features: Biba Tinga - Sickle Cell Advocate of the Year Siliana Coelho - Digital Sickle Cell Community Advocate of the Year Sarah Masamba - Sickle Cell Healthcare Profession (HCP) Advocate of the Yea…

1
#48 - “Soaring to the Sky” How Patient Navigators are Changing Sickle Cell with Dr. Wally Smith 44:20

2+ y ago44:20

44:20

Dr. Z and Dr. C talk shop with Dr. Wally Smith on how Patient Navigators are changing sickle cell disease. Show Notes: Episode Sponsor: Novartis, For 40 years Novartis has been committed to helping individuals living with sickle cell disease. Through research, educational resources and access programs, we will continue our efforts to support patien…

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