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Ubuntu: I Am Because We Are
Manage episode 324331413 series 3325673
Sisällön tarjoaa Laura Santini and American Society of Hematology. Laura Santini and American Society of Hematology tai sen podcast-alustan kumppani lataa ja toimittaa kaiken podcast-sisällön, mukaan lukien jaksot, grafiikat ja podcast-kuvaukset. Jos uskot jonkun käyttävän tekijänoikeudella suojattua teostasi ilman lupaasi, voit seurata tässä https://fi.player.fm/legal kuvattua prosessia.
Young individuals living with sickle cell disease eventually age out of the pediatric units and struggle as they transition to adult care. In this episode, we hear from Kyle, a person living with sickle cell disease, about his experience transitioning from pediatric to adult care. Dr. James Eckman and Dr. John J. Strouse explain the typical problems that arise with this transition and some possible solutions to the lack of adult care networks. Lastly, Dr. Titilope Fasipe shares valuable advice for young people living with sickle cell disease as they transition from pediatric to adult care. Resources for clinicians and patients individuals living with the disease are recommended.
Learn more about sickle cell disease (https://www.hematology.org/education/patients/anemia/sickle-cell-disease) and the ASH Sickle Cell Disease initiative by visiting https://www.hematology.org/advocacy/sickle-cell-disease-initiative. Additional SCD resources for clinicians are available via https://www.hematology.org/education/clinicians/clinical-priorities/scd-resources-for-clinicians. Access an SCD toolkit from the CDC at https://www.cdc.gov/ncbddd/sicklecell/betterhealthtoolkit/index.html. Learn more about the Sickle Cell Disease coalition at http://www.scdcoalition.org/transition/medical.html.
Music: "Envision" Kevin MacLeod (incompetech.com) Licensed under Creative Commons: By Attribution 4.0 License http://creativecommons.org/licenses/by/4.0/
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