For centuries, members of the B’doul Bedouin tribe lived in the caves around the ancient city of Petra, Jordan. Then, in the 1980s, the government forced the tribe to move in the name of preserving the geological site for tourists. But if the residents are forced to leave, and if their heritage has been permanently changed, then what exactly is being preserved? Learn about your ad choices: dovetail.prx.org/ad-choices…
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Sisällön tarjoaa Susie Singer Carter and Don Priess, Susie Singer Carter, and Don Priess. Susie Singer Carter and Don Priess, Susie Singer Carter, and Don Priess tai sen podcast-alustan kumppani lataa ja toimittaa kaiken podcast-sisällön, mukaan lukien jaksot, grafiikat ja podcast-kuvaukset. Jos uskot jonkun käyttävän tekijänoikeudella suojattua teostasi ilman lupaasi, voit seurata tässä https://fi.player.fm/legal kuvattua prosessia.
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Love Conquers Alz
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Sisällön tarjoaa Susie Singer Carter and Don Priess, Susie Singer Carter, and Don Priess. Susie Singer Carter and Don Priess, Susie Singer Carter, and Don Priess tai sen podcast-alustan kumppani lataa ja toimittaa kaiken podcast-sisällön, mukaan lukien jaksot, grafiikat ja podcast-kuvaukset. Jos uskot jonkun käyttävän tekijänoikeudella suojattua teostasi ilman lupaasi, voit seurata tässä https://fi.player.fm/legal kuvattua prosessia.
2024 #1 ALL TIME DEMENTIA PODCAST /GOODPODS and 2020 WINNER BEST PODCAST - New Media Film Festival. Caregivers have one of the hardest jobs in the world. Having both been caregivers for a family member affected with Alzheimer’s, Susie Singer Carter and Don Priess both know this is a disease that cannot be faced alone. In fact, their Oscar Qualified film based on Susie's Mother, MY MOM AND THE GIRL starring Valerie Harper in her final performance - has and continues to touch people all over the world. Their goal was to let others know they are not on their own and to help them find the JOY in the journey. And that's just what they do in their Podcast "Love Conquers Alz".
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Sisällön tarjoaa Susie Singer Carter and Don Priess, Susie Singer Carter, and Don Priess. Susie Singer Carter and Don Priess, Susie Singer Carter, and Don Priess tai sen podcast-alustan kumppani lataa ja toimittaa kaiken podcast-sisällön, mukaan lukien jaksot, grafiikat ja podcast-kuvaukset. Jos uskot jonkun käyttävän tekijänoikeudella suojattua teostasi ilman lupaasi, voit seurata tässä https://fi.player.fm/legal kuvattua prosessia.
2024 #1 ALL TIME DEMENTIA PODCAST /GOODPODS and 2020 WINNER BEST PODCAST - New Media Film Festival. Caregivers have one of the hardest jobs in the world. Having both been caregivers for a family member affected with Alzheimer’s, Susie Singer Carter and Don Priess both know this is a disease that cannot be faced alone. In fact, their Oscar Qualified film based on Susie's Mother, MY MOM AND THE GIRL starring Valerie Harper in her final performance - has and continues to touch people all over the world. Their goal was to let others know they are not on their own and to help them find the JOY in the journey. And that's just what they do in their Podcast "Love Conquers Alz".
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1 STEPHANIE DUNCAN‐PETERS & RICHARD JAMES:Life After an Alzheimer's Diagnosis & the Blue-Footed Booby Blues 41:42
What happens when a former federal judge faces an Alzheimer's diagnosis? For Stephanie Duncan-Peters and her husband Richard James, it becomes an opportunity to showcase remarkable resilience, joy, and a refreshing perspective on living with cognitive change. In Episode 105, Don and I have a deeply moving and uplifting conversation with Stephanie, whose impressive career spans nearly 20 years as a District of Columbia Superior Court judge appointed by President George H.W. Bush. Far from letting her diagnosis define her, Stephanie has recently published a children's book, " The Blue-Footed Booby Blues, " about a dancing bird who loves to travel—mirroring her own passions. The couple shares how they met through dance lessons 12 years ago and continue to dance together today, demonstrating how activities that build "cognitive reserve" can remain accessible and joyful despite Alzheimer's. Their calm, matter-of-fact approach to the diagnosis stems partly from Stephanie's previous experience supporting a Harvard Law professor friend through his Alzheimer's journey. We explore fascinating concepts like cognitive reserve—how certain skills and passions often persist longer in people with dementia—and the way Alzheimer's can paradoxically create what host I call "the ultimate state of Zen," fostering heightened presence and appreciation for the now. Richard offers valuable insights from the care partner perspective, discussing how unexpected connections in his community led to crucial support resources. Their story beautifully illustrates how love, resilience, and maintaining meaningful activities create a fulfilling life even when facing significant health challenges. Whether you're navigating dementia in your own family or simply seeking inspiration on facing life's unexpected turns with grace, this conversation will leave you with renewed hope and practical wisdom for the journey ahead. Listen now and discover how, as the podcast name suggests, Love truly Conquers Alz. :) Much Love, Susie Connect with Stephanie and Richard through Kayla Mancuso - kayla@ballastbooks.com Support the show Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information. YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE Purchase GERI-GADGETS® here . COUPON CODE: LCA20 for 20% Off No Minimum Learn more about Peter Istvan Photography here . Follow us on Twitter , FB , IG , & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love . 💜…
1 KRISTINA HAYES: Step by Step - Using Dance to Navigate Dementia 1:01:24
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Toista Myöhemmin Toista Myöhemmin Listat Tykkää TykättyIn this episode of Love Conquers Alz, Don and I sit down with Kristina Hayes , the inspiring founder of Waltz Through Life. Kristina shares her journey of using dance, movement, and creativity to support individuals and families navigating the challenges of aging, dementia, and caregiving. Through her unique approach, she brings joy, connection, and healing to those who need it most. We explore the power of music, movement, and mindfulness in transforming the caregiving experience. I know how powerful dance has been in my life. It truly is my form of meditation. The healing power of music and movement for people with Alzheimer's radiates through this heartwarming conversation. For 15 years, Kristina has witnessed firsthand how dance transforms seniors in memory care, creating magical connections when words fail. "Dancing to music is a shortcut to a person's heart and miracle medicine for Alzheimer's," Kristina explains, describing how residents who appear disengaged suddenly come alive when music plays. Her journey from ballroom dance instructor to therapeutic dance facilitator happened almost by accident, but has evolved into deeply meaningful work that challenges conventional approaches to dementia care. The conversation weaves through fascinating science about why music reaches people with cognitive decline—it lights up more regions of the brain than any other sensory input and remains accessible even in advanced stages of memory loss. Suzy shares poignant stories about singing with her mother, who responded to music when other forms of communication had slipped away. Beyond the therapeutic benefits, this episode explores larger questions about how society views aging and elder care. The hosts advocate for a movement that values and integrates older adults rather than marginalizing them. "We're all headed to the same place if we're lucky enough to live a long life," Kristina observes, making a powerful case for reconsidering how we approach our later years. This isn't just a conversation about dementia care—it's about reconnecting with what makes us human at every stage of life. Whether you're a caregiver seeking new approaches or simply someone interested in the healing power of movement, this episode will inspire you to turn up the music, move your body, and connect with others across all boundaries of age and ability. Subscribe, share, and keep dancing —it's good for your brain, body, and soul! Love, Susie xo Support the show Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information. YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE Purchase GERI-GADGETS® here . COUPON CODE: LCA20 for 20% Off No Minimum Learn more about Peter Istvan Photography here . Follow us on Twitter , FB , IG , & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love . 💜…
1 DR. ALLEN POWER: Reimagining Dementia Care with Compassion and Community 1:10:29
1:10:29 Toista Myöhemmin Toista Myöhemmin Listat Tykkää Tykätty1:10:29
Toista Myöhemmin Toista Myöhemmin Listat Tykkää TykättyImagine your loved one living with Alzheimer's in a place where they could truly feel at home, free from the fear of wandering. This episode shares heartfelt stories of personal experiences, including my own mother's joyful time in a vibrant Los Angeles loft community. Join my co-host, Don Priess and I, as we welcome esteemed guest Dr. Allen Power , a renowned geriatrician, whose compassionate approach to dementia care challenges traditional methods and focuses on creating environments that foster contentment and security for those affected by Alzheimer's. We venture into the transformative journey of Dr. Power, who moved from general practice to become a leading advocate for non-pharmacological dementia care. Influenced by the Eden Alternative movement, he reveals his insights on the misuse of antipsychotic drugs and highlights the importance of communication and community integration. Our discussion sheds light on the experiences of families affected by medication misuse and calls for innovative care models that prioritize the well-being of individuals with dementia, emphasizing the power of love, companionship, and understanding. Explore how rethinking dementia care can enhance quality of life, balancing safety and freedom in care environments. Together with Dr. Power, we reflect on the power of intergenerational relationships and the vital need for societal shifts towards embracing diversity and supporting aging in place. With personal anecdotes and expert insights, we challenge misconceptions about dementia, highlighting the lessons of mindfulness and the importance of integrating people with dementia into communities, ultimately advocating for a more inclusive and compassionate approach to care. Thanks for watching, listening, and sharing! Much Love, Susie Dr. Allen Power is a board-certified internist, geriatrician, Schlegel chair in aging and dementia innovation at the Schlegel U Waterloo Research Institute for aging, a sought after speaker around the world, and a trained musician and songwriter with four recordings. Peter, Paul and Mary performed his song of elder autonomy, “If You Don’t Mind”, and Walter Cronkite used his song, “I’ll Love You Forever” in a 1995 Discovery Channel profile of American families. A recent project was composing music for Anne Hills’ latest album ( www.annehills.com ). Contact: DrAlPower@gmail.com Support the show Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information. YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE Purchase GERI-GADGETS® here . COUPON CODE: LCA20 for 20% Off No Minimum Learn more about Peter Istvan Photography here . Follow us on Twitter , FB , IG , & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love . 💜…
Finding the right elder care for your loved ones shouldn't be a stressful challenge. But for most of us it is. Elder care is EXPENSIVE! Yet, families everywhere grapple with the lack of reliable information. Imagine if booking elder care were as easy as booking a hotel. In this episode of Love Conquers Alz, we sit down with Daniel Clarke , the visionary founder of Elderado — which is not a Cadillac or a song by ELO, but rather the perfect name for a groundbreaking web platform designed to help families compare over 1,400 long-term care and retirement homes across Ontario. Daniel shares the story behind Elderado, his mission to bring transparency to the long-term care industry, and his ambitious plans to expand the platform to the United States and the world. Don and I, along with guest Daniel, discuss the essential role of transparency and compassion in finding suitable elder care. We explore the importance of reliable resources and personal experiences when navigating these complex decisions, highlighting the positive aspects of elder care while addressing systemic issues families face. Whether you’re searching for the right care home or advocating for change, this conversation is a must-listen! Learn More about Elderado Connect With Daniel Clarke Support the show Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information. YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE Purchase GERI-GADGETS® here . COUPON CODE: LCA20 for 20% Off No Minimum Learn more about Peter Istvan Photography here . Follow us on Twitter , FB , IG , & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love . 💜…
1 TIM AND TANNIS ROBERTS: Echos of Love - The Power of Preserving Memories & Safeguarding Stories with EchoBox Memory Vault 42:31
Navigating the emotional labyrinth of Alzheimer's care can be both heartbreaking and frustrating, especially when personalized care falls by the wayside. Our journey begins with a relatable exploration of these challenges—stories of care facilities that miss the mark on truly understanding their residents, turning beloved family members into mere room numbers. We wrap this poignant narrative with a lighthearted twist, sharing personal anecdotes about how life’s quirks and ailments can be surprisingly comedic. Enter Tim and Tannis Roberts, the innovative duo behind EchoBox Memory Vault, who are reshaping person-centric healthcare with their groundbreaking tool. Neither were tech people, worked in healthcare, or had a business background. Yet both were moved to improve our care model by providing the comfort of a loved one's voice. EchoBox preserves cherished memories and stories, enriching family bonds and supporting those dealing with dementia and palliative care. Tim and Tannis share profound insights and personal stories that illustrate how capturing memories can provide lasting emotional benefits and a sense of belonging, transforming the caregiving experience. This episode celebrates the importance of personal connections and innovation in Alzheimer’s care. We discuss the powerful impact of EchoBox, a technology that helps preserve and share the stories of loved ones, offering caregivers the ability to provide individualized care. • Conversations surrounding the emotional challenges of caregiving • The dehumanization often faced in care facilities • Introduction to EchoBox and its founding story • How EchoBox captures memories and personalizes care • Real-world examples showcasing its effectiveness • Technical details on practically using the app • Insights on the growing adoption of EchoBox in care facilities • Encouragement for advocacy and connection in caregiving Support the show Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information. YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE Purchase GERI-GADGETS® here . COUPON CODE: LCA20 for 20% Off No Minimum Learn more about Peter Istvan Photography here . Follow us on Twitter , FB , IG , & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love . 💜…
1 MARTIN J. SCHREIBER: My Two Elaines: Learning, Coping, and Surviving as an Alzheimer’s Caregiver 1:08:35
1:08:35 Toista Myöhemmin Toista Myöhemmin Listat Tykkää Tykätty1:08:35
Toista Myöhemmin Toista Myöhemmin Listat Tykkää TykättyWhat better way to celebrate our 100th episode than with an interview that truly reflects the definition and the title of our show: Love Conquers Alz. Former Wisconsin Gov. Martin J. Schreiber is an award-winning crusader for Alzheimer's caregivers and persons with dementia and author of the best selling novel, My Two Elaines: Learning, Coping, and Surviving as an Alzheimer’s Caregiver . Since 2016, Marty has been campaigning unlike anything he experienced while in office. Rather than seeking votes, Marty now works to recognize and support Alzheimer’s caregivers – an unpaid workforce that now exceeds 16 million people nationwide. Schreiber's goal for caregivers (whom he calls heroes) is that they learn, cope, survive and even thrive during their difficult journey. All things that Marty learned caring for his beloved wife, Elaine. Imagine your spouse falling in love with you over and over again. Romantic, right? But what if they kept falling in love with you because every morning they woke up they’d forget who you were? The love story of Marty and his wife Elaine that began in the 1950s when they were high school freshmen began to take the cruelest of twists when Elaine, diagnosed with Alzheimer's, gradually transformed from the woman who had gracefully entertained in the Executive Residence to one who sometimes no longer recognized Marty as her husband. Yet, the two still found moments of joy which Marty lovingly talks about in his acclaimed My Two Elaines. We share insights from "My Two Elaines," a poignant memoir that highlights the emotional journey from partner to caregiver, offering practical advice on therapeutic fibbing and redirection. The episode underscores the importance of male caregivers seeking help and stepping away from outdated stereotypes, as we discuss the necessity of systemic reform in care facilities. Support the show Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information. YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE Purchase GERI-GADGETS® here . COUPON CODE: LCA20 for 20% Off No Minimum Learn more about Peter Istvan Photography here . Follow us on Twitter , FB , IG , & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love . 💜…
Betsy Wurzel started her career as a Talk Show Host at Passionate World Talk Radio and the name of her show was Chatting with Betsy . Betsy is also is an unwavering advocate for Alzheimer's caregivers who shares her own heartfelt experiences caring for her husband, Matt Sloan. Her stories are candid and passionate and truly exemplify the transformative power of love, humor, and community in the difficult landscape of dementia care. Shifting gears, we confront the murky waters of hospice care—a field riddled with misconceptions and often misunderstood protocols. Misunderstandings about hospice care and the rights of patients can lead to inadequate pain management, affecting the dignity and well-being of those with dementia. Through our unvarnished discussion, we unearth Betsy's personal story of advocacy, emphasizing the critical role caregivers play in ensuring comfort and respect for their loved ones. This chapter serves as a poignant reminder that caregivers must be steadfast in their rights to demand the best care possible. Finally, we tackle the systemic challenges plaguing senior healthcare, from understaffing and inadequate training to the pitfalls of profit-driven care models. Betsy guides us through a sobering exploration of these issues, pointing out how they result in inconsistent care for vulnerable populations, like those with Alzheimer's. With a call to action for more compassionate and consistent caregiving, she stresses the importance of prioritizing people over profits, advocating for a system that values quality care above all. Through this inspiring episode, we aim to empower caregivers to fight for the dignity and quality care their loved ones deserve. Connect with Betsy: Email - Sloanbetsy31@gmail.com IG FB LinkedIn Support the show Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information. YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE Purchase GERI-GADGETS® here . COUPON CODE: LCA20 for 20% Off No Minimum Learn more about Peter Istvan Photography here . Follow us on Twitter , FB , IG , & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love . 💜…
1 DR. MARC ROTHMAN: Transforming Caregiving and the Perception of Dementia Through the Arts 1:20:58
1:20:58 Toista Myöhemmin Toista Myöhemmin Listat Tykkää Tykätty1:20:58
Toista Myöhemmin Toista Myöhemmin Listat Tykkää TykättyIn Episode 98, Don and I have a fantastic conversation with Dr. Marc Rothman, MD,founder and president of the Dementia Spring Foundation, a non-profit 501(c)(3) venture studio that invests in visual and performing artists and innovators who are changing the prevailing narrative of dementia and bringing joy and creativity to the dementia community through their work. Founded in 2020, the Artist Network now includes over 200 artists and innovators from around the world who are grappling with memory loss, Alzheimer’s disease and other dementias in their work. New artist Spotlights are shared every week on the Dementia Spring website. (Including our Oscar qualified short film, My Mom and the Gir l ,starring Valerie Harper in her final performance!!)Through the Foundation’s annual, competitive Dementia Arts Impact Award program, funding, technical & marketing support, and subject-matter expertise are provided to a select group of artists and innovators who are telling new stories of dementia and bringing theatre, dance, music, and other visual/performing arts programs to those living with dementia.And if that's not enough, Dr. Rothman is also the CEO of Lizzy Care , a company providing tools and resources for dementia care at home. Join us as our guest,Dr. Rothman, reveals his insights on harnessing artistic talents to enhance caregiving experiences. Discover how integrating art into dementia care not only brings joy and connection but also offers a holistic approach to treatment that blends medical and artistic perspectives, creating a more enriched life for both caregivers and individuals with dementia. Immerse yourself in discussions on the profound impact of music and visual arts on mental health and healing. We underscore the importance of preserving memories through photography and the ethical considerations that come with sharing such intimate moments. The episode also touches on the cultural shift required in our institutions to prioritize arts therapy, advocating for comprehensive care models that improve quality of life. With personal stories and innovative projects, including virtual reality and comedy, we demonstrate how creativity stands as a beacon of hope and connection for those affected by dementia. And that includes, Love Conquers Alz, of course! xoxo Susie Support the show Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information. YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE Purchase GERI-GADGETS® here . COUPON CODE: LCA20 for 20% Off No Minimum Learn more about Peter Istvan Photography here . Follow us on Twitter , FB , IG , & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love . 💜…
1 LIZETTE CLOETE: Have You Heard of Elopement in Dementia? What Caregivers Should Know. 1:12:01
1:12:01 Toista Myöhemmin Toista Myöhemmin Listat Tykkää Tykätty1:12:01
Toista Myöhemmin Toista Myöhemmin Listat Tykkää TykättyElopement usually conjures up visions of secret excursions or maybe even the Elvis Chapel in Las Vegas. But elopement is also used to describe what happens when someone with dementia or cognitive loss leaves a safe area, such as a home or care facility, without supervision or awareness of the potential dangers. In dementia care facilities, it is a heartbreaking reality that needs urgent attention. With over 30 years of experience as an occupational-therapist-turned-dementia-coach and 5 years of being a daughter-of-dementia, our guest, Lizette Cloete OTR/L, CADDCT, CDP, shares her first-hand, personal experience with elopement, how it can lead to accidents, injuries, and even death as a result of hypothermia, malnutrition, and weight loss, and why there is a huge need to protect vulnerable residents living in long term facilities. Lizette is the owner of “Think Different” Dementia, helping families navigate dementia together, using science-backed strategies, has become a sought-after speaker on dementia-related topics, both nationally and internationally. Her podcast, Christian Dementia Caregiving , is a key resource for connecting and sharing her valuable insights. In 2023, Lizette was awarded a grant to create an online education and coaching community for family care partners. She is truly a fount of information and support for our caregiving community. We recount personal stories, including a tragic incident from 1994, highlighting the dire consequences of inadequate staffing and training in these facilities. By sharing these narratives, we stress the critical need for improvements in care and safety measures to protect vulnerable individuals. The broader implications of facility understaffing reveal a pressing need for vigilance and proactive strategies to prevent similar tragedies. Understanding and managing dementia-related wandering is a complex challenge for caregivers and families. From unpredictable behaviors to ethical dilemmas around monitoring technology, we discuss real-life anecdotes that underscore the relentless nature of wandering. With hopes pinned on proactive engagement and innovative solutions, we aim to inspire meaningful change in caregiving practices, ensuring the safety and well-being of loved ones. Connect with Lizette: Think Different Dementia Christian Dementia Caregiving Support the show Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information. YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE Purchase GERI-GADGETS® here . COUPON CODE: LCA20 for 20% Off No Minimum Learn more about Peter Istvan Photography here . Follow us on Twitter , FB , IG , & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love . 💜…
1 AARON ADAMS: Caregiver and Author - A Son's Harrowing Journey Through Our Broken Healthcare System 1:06:01
1:06:01 Toista Myöhemmin Toista Myöhemmin Listat Tykkää Tykätty1:06:01
Toista Myöhemmin Toista Myöhemmin Listat Tykkää TykättyIn honor of Residents’ Rights Month, Don and I, along with our special guest-host, Producer Rick Mountcastle, the former US attorney famed for his role in the Purdue Pharma case, are highlighting the importance of listening to residents who live in our country’s nursing homes, assisted living and board and care facilities. In episode 96, our guest, AARON ADAMS, helps us explore the emotional labyrinth of healthcare navigation which in too many cases isn't always kind. Aaron is a son, author inventor and former caregiver for his father, Thomas Adams, was a robust 75-year old. After treatment for heart issues, Thomas was sent to an acute rehab hospital. Through Aaron's poignant personal story caregiving for his father, we unveil the harsh realities of seeking adequate medical care and the systemic flaws that many families encounter. From Aaron's fiery exchange with healthcare providers who underestimated his father's needs, to the desperate struggle of a family fighting against hospital bureaucracy to grant their father a peaceful end at home, these narratives underscore the dire need for advocacy and transparency. Rick Mountcastle lends his legal expertise, dissecting these challenges and providing a sobering perspective on patient neglect and the systemic issues at hand. In a world where medical decisions can feel like a battlefield, the emotional rollercoaster of advocating for loved ones becomes evident. As families grapple with complex treatments and the ethical dilemmas surrounding end-of-life care, they find themselves questioning the motivations of medical professionals and the adequacy of patient care. The stories shared here emphasize the importance of informed advocacy, the emotional toll of feeling sidelined, and the sacrifices made to ensure dignity and respect for loved ones. Join us as we unravel these deeply personal and universal struggles, offering insights and solidarity to those navigating similar journeys. Connect with Aaron Adams on Facebook . Buzzsprout - Let's get your podcast launched! Start for FREE Instacart - Groceries delivered in as little as 1 hour. Free delivery on your first order over $35. Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you. Support the show Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information. YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE Purchase GERI-GADGETS® here . COUPON CODE: LCA20 for 20% Off No Minimum Learn more about Peter Istvan Photography here . Follow us on Twitter , FB , IG , & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love . 💜…
1 JEN TREJO: The Power of Love and Advocacy - A Mother's Fight for Better Long-Term Care 1:07:43
1:07:43 Toista Myöhemmin Toista Myöhemmin Listat Tykkää Tykätty1:07:43
Toista Myöhemmin Toista Myöhemmin Listat Tykkää TykättyHow can a system meant to care for our most vulnerable turn into our worst nightmare? Join us as we kick off a special series of Love Conquers Alz episodes, inspired by our soon-to-be-released documentary, "No Country for Old People." We’re honored to have Rick Mountcastle, former U.S. attorney and co-producer of our documentary, with us. Rick offers his eye-opening experiences prosecuting nursing homes for fraud and abuse. Together, we hope to shed light on the urgent need for public awareness and collective action to combat the systemic neglect rampant in the long-term care industry. In this series, we will present personal narratives that serve as powerful calls to action, urging us to demand better care standards and advocate for systemic change. In this episode, we feature the poignant account of Jen Trejo, who faced unimaginable hardship after her son Christopher (whose story was featured in the Netflix limited series "Painkiller") was prescribed OxyContin. From a mother's gut-wrenching moment of signing surgery papers for her son, to the neglect suffered within skilled nursing facilities, her story uncovers the severe failings of our profit-driven healthcare system. Jen shares the struggle of finding appropriate care for a loved one with a history of drug addiction and the frustrations of a system that prioritizes financial considerations over patient care. Jen also talks about the poor conditions in certain facilities and the lack of support for patients with more intensive care needs are also examined. We also explore the transformative power of love and advocacy in these challenging times and how collective efforts have sparked progress, especially in addressing the opioid crisis and improving caregiving standards. From the emotional toll of dealing with addiction and inadequate medical care, to the relentless pursuit of improvement despite resistance, this episode underscores the importance of empathy, persistence, and the human spirit in driving change. Tune in and join us in our mission to make a real difference. FACEBOOK Instagram Support the show Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information. YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE Purchase GERI-GADGETS® here . COUPON CODE: LCA20 for 20% Off No Minimum Learn more about Peter Istvan Photography here . Follow us on Twitter , FB , IG , & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love . 💜…
1 HOSPICE NURSE PENNY HAWKINS SMITH: UNRAVELING HOSPICE CARE & NORMALIZING DEATH AND DYING ONE VIDEO AT A TIME 1:24:39
1:24:39 Toista Myöhemmin Toista Myöhemmin Listat Tykkää Tykätty1:24:39
Toista Myöhemmin Toista Myöhemmin Listat Tykkää TykättyWhat if the shift towards for-profit hospice care models is compromising the quality of your loved one's final days? In this episode, Don and I have a robust conversation on hospice with Penny Hawkins Smith , BSN, RN, CHPN. Hospice Nurse Penny , as she is known to her millions of social media followers, is a nationally certified hospice and palliative care registered nurse with over 17 years of experience with a passion for hospice advocacy and normalizing death and dying. Have you ever wondered how hospice care is funded and what services are actually covered? We break down the often-misunderstood world of hospice care funding, highlighting the system used by nonprofit agencies and detailing the array of services provided under this model, as well as the hidden truths behind the financial practices of many hospice agencies and their unsettling impact on patient care. We confront the alarming rise in Medicare spending and the exodus of physicians from the field. The episode also tackles the aggressive marketing strategies in the industry and the emotional turmoil families face when navigating palliative and hospice care. From the importance of clear communication and family advocacy to the systemic hurdles within end-of-life care, this conversation offers insights and personal stories that resonate deeply. Navigating the maze of hospice care decisions can be daunting, especially when facing ethical dilemmas and advocating for compassionate treatment. We explore the critical role of hospice advocacy, the rights of patients and families, and the often-overlooked challenges of caregiving in nursing homes. Through personal anecdotes and professional insights, we shed light on the importance of respecting patient dignity and goals, and the necessity for better education and support in end-of-life decisions. Join us as we call for empathy, open dialogue, and a more humane approach to hospice and elder care. Follow Hospice Nurse Penny on TIKTOK Support the show Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information. YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE Purchase GERI-GADGETS® here . COUPON CODE: LCA20 for 20% Off No Minimum Learn more about Peter Istvan Photography here . Follow us on Twitter , FB , IG , & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love . 💜…
1 TEACE SNYDER: Filmmaker/Artist - Exploring Human Connection and Voluntary Euthanasia 1:02:36
1:02:36 Toista Myöhemmin Toista Myöhemmin Listat Tykkää Tykätty1:02:36
Toista Myöhemmin Toista Myöhemmin Listat Tykkää TykättyCan human connection and dignity survive in a profit-driven healthcare system? On this episode of "Love Conquers Alz," we are joined by the talented artist and filmmaker Teace Snyder, who introduces his thought-provoking film " Hold Me ." The film explores the emotionally charged and controversial topic of voluntary euthanasia, focusing on a woman whose job is to comfort individuals in their final moments. Teace shares the poignant inspiration behind the film, highlighting the ambiguous professional role of a "holder" and how the film raises essential questions about human connection, grief, and end-of-life care. Our conversation with Snyder sheds light on the delicate balance between personal choice and ethical implications in these profound moments. Our discussion expands to the broader issues of systemic neglect and the isolating experiences of the elderly and sick in our healthcare system, especially during the COVID-19 pandemic. We draw parallels to solitary confinement and critique the pervasive influence of money in healthcare, particularly within the hospice system. Through a candid examination of systemic corruption and the hidden influence of the nursing home lobby, we aim to inspire grassroots movements and honest conversations. Our goal is to foster empathy and prioritize human dignity in a system too often driven by profit. Join us as we navigate these complex topics with hope and a commitment to meaningful change. Support the show Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information. YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE Purchase GERI-GADGETS® here . COUPON CODE: LCA20 for 20% Off No Minimum Learn more about Peter Istvan Photography here . Follow us on Twitter , FB , IG , & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love . 💜…
1 POETRY FOR THE DEMENTIA JOURNEY: Marianne Sciucco, Ann Campanella Sue Fagalde Lick 1:13:55
1:13:55 Toista Myöhemmin Toista Myöhemmin Listat Tykkää Tykätty1:13:55
Toista Myöhemmin Toista Myöhemmin Listat Tykkää TykättyIn Episode 92, Don and I talked with three prolific writers who have made profound literary contributions to the Dementia community and now pooled their talents and love of poetry to launch a beautiful anthology, “ Poetry For the Dementia Journey ”, that sprung from an online event featuring over 30 poets. (This just may be one of my favorite episodes!!) Marianne Sciucco is not a (dementia) nurse who writes but a writer who happens to be a nurse. Her novel, Blue Hydrangeas, an Alzheimer’s Love Story, is a testament to the power of love in the face of this heart wrenching disease. She has since launched her own podcast “ Untangling Alzheimer’s and Dementia: An AlzAuthors Podcast ” and is the Co-founder of the non-profit AlzAuthors.com , a global community of over 300 dementia-centered writers. Ann Campanella is the manager/director of AlzAuthors and is a former magazine and newspaper editor. She is the author of two award-winning memoirs and four collections of poetry. Her first memoir, Motherhood: Lost and Found , tells the story of her mother’s descent into Alzheimer’s and was named “One of the best Alzheimer’s books of all time,” by Book Authority two years in a row. Sue Fagalde Lick has been nomi Support the show Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information. YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE Purchase GERI-GADGETS® here . COUPON CODE: LCA20 for 20% Off No Minimum Learn more about Peter Istvan Photography here . Follow us on Twitter , FB , IG , & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love . 💜…
1 HEATHER FINK: COMEDIAN/FILMMAKER/CAREGIVER - Surviving Quicksand 1:01:55
1:01:55 Toista Myöhemmin Toista Myöhemmin Listat Tykkää Tykätty1:01:55
Toista Myöhemmin Toista Myöhemmin Listat Tykkää TykättyComedian/Filmmaker/Caregiver HEATHER FINK came to filmmaking from comedy. She has been making funny videos since she was a kid growing up in small town New Jersey. After earning a Philosophy degree from The George Washington University, she began NYU's Grad Film program as Writer/Director. Heather has gone on to direct over 35 comedy short and has been featured on MTV, Dr. Phil, TV Guide Magazine and The Washington Post, to name a few. Most currently, she was featured in the LA Times with, as she said in her post on X, her “my most depressing interview and pull quotes ever!” talking about the residual affect ion her career following the SAG-AFTRA and WGAstrikes in 2023. She currently pays the bills as a Sound Person for film and tv, including Marvel’s “Daredevil” and Hulu’s “The Dropout.” Heather came to caregiving after her beloved father had a paralyzing stroke. Now, she is taking her life-altering story to the stage with her one-woman show, Quicksand, that chronicles how she navigated her role as a young caregiver after her dad’s stroke and the challenges she faced trying to keep herself from sinking. As Heather says, “From caregiving to death and the midlife crisis, QUICKSAND is a storytelling and clown exploration of the realest sh*t we face.” We chatted with Heather about the importance of creating a supportive community and shared our personal experiences with grief and loss, and the challenges of balancing personal storytelling with the need to connect with a wider audience in documentary filmmaking. Don and I had a truly fantastic, funny, and heartfelt exchange with this incredible lady and are sure you are going to enjoy our conversation with the one and only Heather Fink. Support the show Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information. YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE Purchase GERI-GADGETS® here . COUPON CODE: LCA20 for 20% Off No Minimum Learn more about Peter Istvan Photography here . Follow us on Twitter , FB , IG , & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love . 💜…
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