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Sisällön tarjoaa n-Lorem Foundation and N-Lorem Foundation. n-Lorem Foundation and N-Lorem Foundation tai sen podcast-alustan kumppani lataa ja toimittaa kaiken podcast-sisällön, mukaan lukien jaksot, grafiikat ja podcast-kuvaukset. Jos uskot jonkun käyttävän tekijänoikeudella suojattua teostasi ilman lupaasi, voit seurata tässä https://fi.player.fm/legal kuvattua prosessia.
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Our Mission is Personal with Sarah Glass

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Manage episode 402128948 series 3349924
Sisällön tarjoaa n-Lorem Foundation and N-Lorem Foundation. n-Lorem Foundation and N-Lorem Foundation tai sen podcast-alustan kumppani lataa ja toimittaa kaiken podcast-sisällön, mukaan lukien jaksot, grafiikat ja podcast-kuvaukset. Jos uskot jonkun käyttävän tekijänoikeudella suojattua teostasi ilman lupaasi, voit seurata tässä https://fi.player.fm/legal kuvattua prosessia.

For n-Lorem’s Chief Operating Officer, Sarah Glass, the mission of n-Lorem is personal. Her son Ethan was diagnosed with a nano-rare mutation. A geneticist by training, she joined n-Lorem to oversee and direct the organization’s efforts to provide hope and potential help to those who need it most. It's more than just a job for her; she's powered by her son and the entire nano-rare community.

1:20 Sarah’s background, early life, and scientific interests

7:20 Thinking about the patient experience while at a Contract Research Organization

8:43 Rare disease trails are relatively new

10:54 Sarah’s son, Ethan, is a nano-rare patient

16:15 How long it took for Ethan to receive a diagnosis

21:35 Ethan's diagnosis and symptoms

25:55 How Sarah heard about n-Lorem

29:30 How does one come to terms with caring for a nano-rare child; How do parents continue looking for opportunities of hope when they may feel hopeless

32:58 What Sarah has learned while at n-Lorem

36:48 The biggest surprises Sarah has encountered during her journey at n-Lorem

  continue reading

50 jaksoa

Artwork
iconJaa
 
Manage episode 402128948 series 3349924
Sisällön tarjoaa n-Lorem Foundation and N-Lorem Foundation. n-Lorem Foundation and N-Lorem Foundation tai sen podcast-alustan kumppani lataa ja toimittaa kaiken podcast-sisällön, mukaan lukien jaksot, grafiikat ja podcast-kuvaukset. Jos uskot jonkun käyttävän tekijänoikeudella suojattua teostasi ilman lupaasi, voit seurata tässä https://fi.player.fm/legal kuvattua prosessia.

For n-Lorem’s Chief Operating Officer, Sarah Glass, the mission of n-Lorem is personal. Her son Ethan was diagnosed with a nano-rare mutation. A geneticist by training, she joined n-Lorem to oversee and direct the organization’s efforts to provide hope and potential help to those who need it most. It's more than just a job for her; she's powered by her son and the entire nano-rare community.

1:20 Sarah’s background, early life, and scientific interests

7:20 Thinking about the patient experience while at a Contract Research Organization

8:43 Rare disease trails are relatively new

10:54 Sarah’s son, Ethan, is a nano-rare patient

16:15 How long it took for Ethan to receive a diagnosis

21:35 Ethan's diagnosis and symptoms

25:55 How Sarah heard about n-Lorem

29:30 How does one come to terms with caring for a nano-rare child; How do parents continue looking for opportunities of hope when they may feel hopeless

32:58 What Sarah has learned while at n-Lorem

36:48 The biggest surprises Sarah has encountered during her journey at n-Lorem

  continue reading

50 jaksoa

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