Raising Rare podcastit

Raising Rare julkinen

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Meghan Weaver

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6d ago6d ago

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Parenting tools and life hacks for raising a child with a rare diagnosis. Let’s get to the meat of it!

Raising Rare

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26d ago3w ago

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Imagine the excitement of becoming a new parent and then within hours finding out your child has a serious developmental disorder. That is exactly where Sanath Kumar Ramesh found himself in the summer of 2018. One year later, on his son’s first birthday, they found out that their son, Raghav, had an extremely rare mutation of the GPX4 gene. At the time, doctors told them that Raghav may be the only one on the planet with this genetic variant who had lived beyond one month of life. The progno ...

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I'm Aware That I'm Rare: the phaware® podcast

phaware global association

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7d ago0w ago

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Viikoittain

I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because ea ...

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The Starry-Eyed Podcast

Williams Syndrome Association

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13d ago1w ago

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Presented by the Williams Syndrome Association, the Starry Eyed Podcast will explore the joys and challenges of living with Williams syndrome, a rare genetic disability. Each episode will feature interviews with adults with WS and professionals and caregivers who are dedicated to raising awareness and resources.

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Empowered by Hope

Emily K. Whiting and Ashlyn Thompson

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3d ago3d ago

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You want the best possible quality of life for your child regardless of diagnosis or prognosis. Raising a child with medical complexities is often lonely, scary and overwhelming. Join two parents of amazing children with rare medical complexities, Emily K. Whiting and Ashlyn Thompson, to get help and grow with them into empowered advocates for our kids. Here you’ll find a community of support, encouragement, education and resources, equipping you to navigate your child’s medical complexities ...

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Raise the Line

Michael Carrese, Shiv Gaglani

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4d ago4d ago

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Join hosts Shiv Gaglani, Hillary Acer, Lindsey Smith, Caleb Furnas and Michael Carrese for an ongoing exploration of how to improve health and healthcare with prominent figures and pioneers in healthcare innovation such as Chelsea Clinton, Mark Cuban, Dr. Ashish Jha, Dr. Eric Topol, Dr. Vivian Lee and Sal Khan as well as senior leaders at organizations such as the CDC, National Institutes of Health, Johns Hopkins University, WHO, Harvard University, NYU Langone and many others.

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RARECast

RARECast

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4d ago4d ago

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Viikoittain

RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.

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I Care for Rare

Sandra Markus

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5M ago21w ago

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A podcast for parents and families of people living with rare diseases in Ontario. I Care for Rare is a social advocacy campaign, designed to give individuals, families and caregivers living with rare diseases a collective voice for system healthcare AND community support reform.

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CWF Presents CRPS/RSD is Real!

CRPS Warriors Foundation

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4d ago4d ago

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CRPS/RSD continues to be ranked higher than any other pain condition known to man, including childbirth and amputation, on the McGill Pain Scale! This poorly understood disease is so brutal it has earned the nickname ”The Suicide Disease”! Awareness is so important in the battle against this invisible illness! CRPS/RSD may be rare, but it is 100% REAL! You don’t have to see it to believe it! CRPS Warriors Foundation is dedicated to raising awareness and proving the undeniable legitimacy of t ...

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Jessica Davenport | Raising 6 Million Dollars

Jessica Davenport

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5+ y ago5+ y ago

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Kuukausittain

A rare disease mom on a mission sharing life’s chaos. In hopes to inspire others going through a tough time.

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Struggling to Thrive

Ashley Bergris

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8y ago8y ago

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This podcast is a "best of" lineup of the top posts on strugglingtothrive.com. All material except the introduction is also available on our website in written format.

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Don’t Give Up on Testicular Cancer

The Max Mallory Foundation - Joyce Lofstrom host

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27d ago3w ago

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Kuukausittain

This podcast is all about testicular cancer--the survivors, medical researchers, stories from caregivers, those who didn't make it, awareness advocates, and much more. It covers the whole subject with compelling stories about this cancer--which, though rare in general, is the number one cancer hitting young men. "Don't Give Up" fighting this wildfire-like form of cancer, because great strides have been made and with more awareness and effort, we can BEAT testicular cancer for good.

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BROKEN CATHOLIC – Live With Courage ™

Joseph Warren

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1d ago1d ago

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Viikoittain

★ #1 Apple Podcast for Protestants & Catholics! ★ Life is full of stressors, uncertainty, and risk. So is following Jesus. During hard times, many believers curl up in fetal position and quit. But courageous Christians get better. We thrive when exposed to shocks and pressure because we understand the SECRET: strength is perfected in weakness. We benefit and grow in the worst of times, building durability and perseverance. If you find yourself grappling with the challenges of your spiritual ...

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Love Needs No Words

Amy Wiltshire & Kirsty Panks

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4d ago4d ago

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A Podcast covering the highs and lows of parenting a child with Special Educational needs.

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The Business of the Business

The Creative Control Network

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6d ago6d ago

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Viikoittain

Welcome to The Business of the Business. This show will take a deep dive into the business of pro wrestling with Lavie Margolin (TrumpMania) and John Poz (Two Man Power Trip). Examining the business world of professional wrestling. Beyond the highest profile WWE stock earnings and reports, exists a fascinating business: the wrestling business. Every week, you'll learn about the less talked about stories on the national, international and local wrestling scene as well as hear from some intere ...

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Speak Up Kōrerotia

Sally Carlton

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29d ago4w ago

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“Speak Up – Kōrerotia” – a radio show centred on human rights issues. Encouraging discussion on human rights issues prevalent in both Canterbury and New Zealand, Speak Up – Kōrerotia offers a forum to promote the issues facing New Zealanders, providing a voice to affected communities. Engaging in conversations around human rights issues in our country, each show covers a different human rights issue with guests from or working with the affected communities. Analysing and asking questions of ...

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Apparel Success

Robert Prsa

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6d ago6d ago

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Viikoittain

Rob Prsa, Owner of Kay Bahd Apparel, shares actionable advice on how to successfully run a profitable clothing brand.

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Seth Godin's Startup School

Earwolf & Seth Godin

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12y ago12y ago

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Kuukausittain

Seth Godin is a thought leader in the marketing and business world. In this rare live recording, hear Seth as he guides thirty entrepreneurs through a workshop exploring how they can build and run their dream business.

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LEMS Aware

Catalyst Pharmaceuticals, Inc.

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6M ago24w ago

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Kuukausittain

Disclaimer: Opinions shared in this podcast may not reflect the opinions of Catalyst Pharmaceuticals, Inc. Let’s talk about rare diseases. The LEMS Aware Podcast lets you hear directly from people in the Lambert-Eaton myasthenic syndrome (LEMS) and other rare disease communities on topics that matter. We talk with patients and caregivers who want to share more than their story – they want to ignite conversations about LEMS and common rare disease experiences and needs. Join us as we talk abo ...

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360 with Katie Woolf

360 with Katie Woolf

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7h ago7h ago

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360 with Katie Woolf, weekdays 9:00am to 12:00pm

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If This Doesn’t Work…

Justin Anderson

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7d ago1w ago

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I’m just doing this podcast so people talk to me and I don’t become a domestic terrorist. It really doesn’t have a subject or through-line. It’s just chaotic rambling. Justin IG: thejustintimee

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Essential Middle East

Al Jazeera

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1+ y ago1+ y ago

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In the world of news, headlines are essential, but providing in-depth analysis of news and current affairs became rare. We analyze the news and simplify complex geopolitical realities of the Middle East and wider Muslim world. To help you make sense of it all, join our host Sami Zeidan.

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Beautifully Broken

Lori Rohlinger

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8M ago34w ago

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Lori Rohlinger is a former pastor's wife who has endured losing her husband to a rare disease but still remains positive that God has a plan for her widowed life. In her podcast, Lori shares her real life experiences from grief to joy and all the in-between. She is a single parent raising four children and learning what it looks like to move forward without the love of her life. Lori loves to share how good and faithful God has been to her, even in the midst of her Beautifully Broken life.

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Living With PSC

PSC Partners Seeking a Cure

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2M ago9w ago

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Kuukausittain

Primary sclerosing cholangitis (PSC) is a rare disease that affects the bile ducts inside and outside of the liver. There is no cure, and no treatments exist to slow the progression of PSC. This podcast, moderated by Niall McKay, explores the latest research and knowledge about PSC: from patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has it all! PSC Partners Seeking a Cure is a nonprofi ...

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Proactive - Interviews for investors

Proactive

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4h ago4h ago

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Welcome to the Proactive podcast channel – the destination for breaking news on growth companies and up to the minute market coverage. Here we plug you into what’s new and exciting in the world of business.

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BDA Baby (Before, During and After Baby)

Katherine Schwarzenegger Pratt

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4d ago4d ago

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BDA Baby™ (Before, During & After Baby) is an interview-based series hosted by New York Times bestselling author, mother, wife and advocate, Katherine Schwarzenegger Pratt. Each week, Katherine has meaningful conversations with experts, notable specialists, and friends, covering topics that resonate with the BDA Baby community surrounding pregnancy, sex, partner relationships, birth experiences, fertility challenges, health and wellness, and so much more.

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HOLY YES

Victoria Washington

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9M ago40w ago

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Viikoittain

Holy Yes Podcast is the home for creative, faith-based entrepreneurs raising a hand to deepen their relationship with God, blaze forward in their wealth identity, and build a legacy of impact. Hosted by wealth activator, business wizard, creative director, Victoria Washington brings forward The Holy Yes Podcast. She’s the Founder of The House of Wealth Embodiment®, a global community and brand that has rapidly become the go-to space for entrepreneurs to develop their wealth identity, deepen ...

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The Factor Care Podcast

Produced By Rhea Media Group

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21d ago2w ago

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Kuukausittain

At Factor Care RX, their commitment to individuals with hemophilia is deeply rooted in empathy and understanding. They recognize the unique challenges and obstacles that come with managing this complex condition and approach each interaction with care and compassion. Whether it's assisting with medication access, navigating insurance complexities, or simply providing a listening ear, Factor Care RX is there every step of the way.

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What you go through...You grow through. #ConversationsWithMySon

André and Velrita Barrett

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3+ y ago3+ y ago

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André and Velrita are doing this podcast, to raise awareness of the realities of being a carer for a loved one and living with a rare misunderstood chronic condition. Who knew that becoming a mother for the first time, twenty-seven years ago would be one of the best experiences of her life? no matter how rewarding it was, she knew it would not be easy especially as a single mother. So, imagine one day, when your child is only four years and has a stroke. Without any warning, overnight both o ...

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FT Irreverent Questions with Mrs Moneypenny

Financial Times

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8y ago8y ago

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Mrs Moneypenny, beloved Financial Times columnist, and her editor interview the world's most successful people in business, media, arts, entertainment, finance, academia and politics. Like Sir David Attenborough, the intrepid duo ventures to their subjects’ natural habitat. In their quest to figure out how this rare species of homo erectus lives and works they corner plutocrats at Davos parties and hitch a ride with America’s most famous living feminist. Fielding irreverent questions about s ...

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Twenty Something Conversations

Amelia Buxton

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5y ago5y ago

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Twenty Something Conversations unearths and explores the trials, tribulations and triumphs of people in their twenties.

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Village Global Podcast

Village Global

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2M ago9w ago

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The Village Global podcast takes you inside the world of venture capital and technology, featuring enlightening interviews with entrepreneurs, investors and tech industry leaders. Learn more at www.villageglobal.vc.

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Yours Truly, Hiddenukht

Amina Kassouri

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2y ago2y ago

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A place we talk about a vast array of raw and real topics concerned with the Muslim woman's experience. From intricacies of identity, marriage and motherhood, to the vast ocean of discussion on mental health and relationships, we aim to delve into it all! Instagram: @hiddenukht_ Email: yourstrulyhiddenukht@gmail.com

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Raising Rare podcastit

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