Putting The Pieces Together: Alanna's Revised Story

Endo Battery

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Ever wondered how a routine ER visit for kidney stones could change the course of someone's life? Join us as Chelsea sits down with Alanna to uncover her harrowing yet empowering journey with endometriosis and adenomyosis. From the early, often-misunderstood symptoms like frequent UTIs and painful periods to a particularly distressing experience just before her first wedding anniversary, Alanna's story sheds light on the critical need for accurate diagnosis and compassionate medical care.
Discover the emotional and physical rollercoaster of treatments Alanna has endured, from ineffective NSAIDs to misleading drugs. We'll uncover the debilitating impact of chronic pain and severe bleeding, ultimately discussing the weighty decisions surrounding hysterectomy and ovary removal. Alanna's personal narrative serves as a guide for making informed medical choices, highlighting the importance of patient education and the long-term effects of surgical interventions.
Navigate the complexities of managing hormone health and overlapping conditions such as hypermobile Ehlers-Danlos Syndrome (EDS) with us. Through the support of Endo Village, a nonprofit advocacy organization, we emphasize the importance of self-advocacy and community support. Using the metaphor of a six-inch dinner plate versus a ten-inch dinner plate, we illustrate the importance of managing one's limited capacity thoughtfully. Join us for part one of this insightful series as we share personal journeys and encourage ongoing advocacy for oneself and loved ones.

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1. Putting The Pieces Together: Alanna's Revised Story (00:00:00)

2. Navigating Endometriosis and Adenomyosis Stories (00:00:03)

3. Understanding Endometriosis Treatment Options (00:12:02)

4. Navigating Hormone Health and Chronic Pain (00:19:46)

5. Managing Chronic Illness Plate (00:32:32)