First Nations data sovereignty | La souveraineté des données des Premières Nations

Info Matters

Dr. Jonathan Dewar is the Chief Executive Officer of the First Nations Information Governance Centre. Carmen Jones is Director of Research and Data Management, for the Chiefs of Ontario.

• The First Nations Information Governance Centre and its work [3:25]
• OCAP (ownership, control, access, and possession) and what the principles mean for data collection and information governance [5:20]
• The history of the OCAP principles and how they were developed [8:14]
• Truth and Reconciliation Commission findings related to data sovereignty [11:38]
• Understanding and enforcement of the OCAP principles [14:15]
• Privacy and OCAP [17:30]
• The tension between privacy rights as a collective concept and current Canadian privacy laws [18:30]
• Research and data governance agreements at the regional level [20:30]
• Integrating OCAP principles into research agreements to further community-based research [22:14]
• OCAP principles as an enabler of sound research, ethical data collection, and partnerships between researchers and First Nations communities [24:00]
• Empowering communities with the data they need to make positive change [26:50]
• Building trust and respectfully engaging with First Nations communities on research projects [28:59]

Resources:

• Report of the Royal Commission on Aboriginal Peoples
• Fundamentals of OCAP (First Nations Information Governance Centre, online training course)
• First Nations Data Governance Strategy (First Nations Information Governance Centre)
• First Nations surveys (First Nations Information Governance Centre)
• Institute for Clinical Evaluative Sciences (IC/ES)
• Truth and Reconciliation Commission reports and calls to action

Info Matters is a podcast about people, privacy, and access to information hosted by Patricia Kosseim, Information and Privacy Commissioner of Ontario. We dive into conversations with people from all walks of life and hear stories about the access and privacy issues that matter most to them.

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