Hypermobile Ehlers-Danlos Syndrome: An Invisible Condition

Patient Stories with Grey Genetics

Alexandra Parker is a senior student at Sarah Lawrence College. Alex describes her journey to a diagnosis of Hypermobile Ehlers-Danlos Syndrome and the skepticism that she faced from medical professionals. She had to adjust emotionally and physically following her diagnosis with respect to sports. Self-advocacy has become an important part of Alex’s day to day. She discusses the importance of “being believed” in a medical setting and encourages others to seek out different medical professional expertise when needed.

Alex was interviewed by guest host Kelsey Crocker, a second year genetic counseling student.

Links and Resources

The Ehlers-Danlos Society

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