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Hypohidrotic Ectodermal Dysplasia With Rebekah From Oregon
Manage episode 434649250 series 3485028
Sisällön tarjoaa Joanna. Joanna tai sen podcast-alustan kumppani lataa ja toimittaa kaiken podcast-sisällön, mukaan lukien jaksot, grafiikat ja podcast-kuvaukset. Jos uskot jonkun käyttävän tekijänoikeudella suojattua teostasi ilman lupaasi, voit seurata tässä https://fi.player.fm/legal kuvattua prosessia.
Join me as I talk with Rebekah about her child Mason's diagnosis with HypoHidrotic Ectodermal Dysplasia. Mason is now years old and he is already advocating for his health with his mother's help. HypoHidrotic Ectodermal Dysplasia is a rare genetic condition characterized by the bodies inability to sweat, sparse hare, tooth loss and ear, nose and throat issues. Mason is missing all except 2 of his natural teeth and so he has to wear dentures to be able to eat and carry on a conversation. This condition involves a lot of therapy with both speech theraoy and therapists that specialize in feeding.
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