Siirry offline-tilaan Player FM avulla!
IJLCD - 'Like going into a chocolate shop blindfolded': What do people with primary progressive aphasia want from speech and language therapy?
Manage episode 367802197 series 2863451
'Primary progressive aphasia (PPA)' is an umbrella term for a group of language-led dementias which leave people unable to communicate effectively with others. PPA can have a devastating impact on people's ability to function and socialise. Speech and language therapy offers a range of potential benefits to people with PPA. However, until now there has been little research asking them and their families about what help they would like from speech and language therapy. In this podcast we chat with Chris Hardy, Anna Volkmer, Jason Warren about their research (*and that of colleagues) about their research to answer that question.
The paper is:
‘Like going into a chocolate shop, blindfolded’: What do people with primary progressive aphasia want from speech and language therapy?
*Maria Loizidou, Emilie Brotherhood, Emma Harding, Sebastian Crutch, Jason D. Warren, Chris J.D. Hardy, Anna Volkmer
First Published:
30 November 2022
Useful resources:
Access the paper here:
https://onlinelibrary.wiley.com/doi/full/10.1111/1460-6984.12818
Further resources:
Rare dementia support
https://www.raredementiasupport.org/primary-progressive-aphasia/
A. Volkmer, J. Cartwright, L. Ruggero, A. Beales, J. Gallée, S. Grasso, M. Henry, R. Jokel, J. Kindell, R. Khayum, M. Pozzebon, E. Rochon, C. Taylor-Rubin, R. Townsend, F. Walker, S. Beeke & D. Hersh (2023) 'Principles and philosophies for speech and language therapists working with people with primary progressive aphasia: an international expert consensus' , Disability and Rehabilitation, 45:6, 1063-1078, DOI: 10.1080/09638288.2022.2051080
https://www.tandfonline.com/doi/pdf/10.1080/09638288.2022.2051080?needAccess=true&role=button
Marshall, C.R., Hardy, C.J.D., Volkmer, A. et al. Primary progressive aphasia: a clinical approach. J Neurol 265, 1474–1490 (2018). https://doi.org/10.1007/s00415-018-8762-6
https://link.springer.com/article/10.1007/s00415-018-8762-
NOTES:
For RCSLT members, access this paper by navigating to the IJLCD website from our A-Z journals list here. Also, if you would like further information on the research terms used in the podcast, or many other aspects of research design, please navigate to the ‘Sage Research Methods’ collection from the Research Methods page of the RCSLT website’.
The interview is conducted by Jacques Strauss, freelance producer, on behalf of The Royal College of Speech and Language Therapists.
Please be aware that the views expressed are those of the guests and not the RCSLT.
Please be aware that the views expressed are those of the guests and not the RCSLT.
Please do take a few moments to respond to our podcast survey: uk.surveymonkey.com/r/LG5HC3R
129 jaksoa
Manage episode 367802197 series 2863451
'Primary progressive aphasia (PPA)' is an umbrella term for a group of language-led dementias which leave people unable to communicate effectively with others. PPA can have a devastating impact on people's ability to function and socialise. Speech and language therapy offers a range of potential benefits to people with PPA. However, until now there has been little research asking them and their families about what help they would like from speech and language therapy. In this podcast we chat with Chris Hardy, Anna Volkmer, Jason Warren about their research (*and that of colleagues) about their research to answer that question.
The paper is:
‘Like going into a chocolate shop, blindfolded’: What do people with primary progressive aphasia want from speech and language therapy?
*Maria Loizidou, Emilie Brotherhood, Emma Harding, Sebastian Crutch, Jason D. Warren, Chris J.D. Hardy, Anna Volkmer
First Published:
30 November 2022
Useful resources:
Access the paper here:
https://onlinelibrary.wiley.com/doi/full/10.1111/1460-6984.12818
Further resources:
Rare dementia support
https://www.raredementiasupport.org/primary-progressive-aphasia/
A. Volkmer, J. Cartwright, L. Ruggero, A. Beales, J. Gallée, S. Grasso, M. Henry, R. Jokel, J. Kindell, R. Khayum, M. Pozzebon, E. Rochon, C. Taylor-Rubin, R. Townsend, F. Walker, S. Beeke & D. Hersh (2023) 'Principles and philosophies for speech and language therapists working with people with primary progressive aphasia: an international expert consensus' , Disability and Rehabilitation, 45:6, 1063-1078, DOI: 10.1080/09638288.2022.2051080
https://www.tandfonline.com/doi/pdf/10.1080/09638288.2022.2051080?needAccess=true&role=button
Marshall, C.R., Hardy, C.J.D., Volkmer, A. et al. Primary progressive aphasia: a clinical approach. J Neurol 265, 1474–1490 (2018). https://doi.org/10.1007/s00415-018-8762-6
https://link.springer.com/article/10.1007/s00415-018-8762-
NOTES:
For RCSLT members, access this paper by navigating to the IJLCD website from our A-Z journals list here. Also, if you would like further information on the research terms used in the podcast, or many other aspects of research design, please navigate to the ‘Sage Research Methods’ collection from the Research Methods page of the RCSLT website’.
The interview is conducted by Jacques Strauss, freelance producer, on behalf of The Royal College of Speech and Language Therapists.
Please be aware that the views expressed are those of the guests and not the RCSLT.
Please be aware that the views expressed are those of the guests and not the RCSLT.
Please do take a few moments to respond to our podcast survey: uk.surveymonkey.com/r/LG5HC3R
129 jaksoa
Kaikki jaksot
×
1 RCSLT News March 2025: impact of NHSE closing; curriculum and assessment review; campaigns and more 5:46


1 RCSLT News February 2025: waiting lists grow; key events in Scotland; Speech and language therapy issues across the UK 9:23


1 RCSLT news Jan 2025: 80th anniversary; Senedd event; Westminster debate; VoiceBox comp & more 10:36

1 How is AI being used to support people with aphasia - a language disorder which affects a person's ability to speak and understand? 28:21

1 RCSLT news Dec 2024: review of 2024; campaigns and how to get involved; news from around the UK 8:01

1 What is the role of Artificial Intelligence in Augmentative and Alternative Communication (AAC) 26:33

1 Using Generative AI in speech and language therapy: one therapist's journey from sceptic to advocate 32:53




1 IJLCD: Collaborative working with parents to support children with Developmental Language Disorder (DLD) 26:45

1 RCSLT News Sept 2024: Dysphagia event; Darzi review; Covid 19 Inquiry; news from across the UK 13:03

1 RCSLT News Aug 2024: influencing to Parliament; EDI; launch of Buddy Chat; Government in Wales 7:47
Tervetuloa Player FM:n!
Player FM skannaa verkkoa löytääkseen korkealaatuisia podcasteja, joista voit nauttia juuri nyt. Se on paras podcast-sovellus ja toimii Androidilla, iPhonela, ja verkossa. Rekisteröidy sykronoidaksesi tilaukset laitteiden välillä.