20-year-old Emma & her 20-year ALS Warrior & Grandfather, "Grandy"

I'm Dying to Tell You

In this episode, I talk to Emma Terry who is a an ALS caregiver and a participant in the Miss America organization with her platform being ALS. I catch up with this college student at the University of Alabama at Birmingham who is an ALS advocate, caregiver and granddaughter of ALS warrior, Stewart Simpson. Emma recently turned 20 and her grandfather "Grandy" was diagnosed with ALS right before she was born. Emma has a special relationship with her Grandy as all she's known is a lifetime of ALS with him. Even as a full-time college student, she continues to be a caregiver for her Grandy. He is 84 years old and his ALS has escalated to the point where he is confined to a hospital bed in his living room. Although her Grandy cannot speak, he still has the ability to write. So I'm so grateful that he was able to be a part of this chat as well. You'll hear what advice he has after living with a terminal illness for 20 years. Emma is also a participant in the Miss America organization and recently was Miss Alabama's Outstanding Teen. Emma's platform is "Stomping Out ALS One Step at a Time" through which she raises awareness and funds to support the ALS fight. She is also a member of I AM ALS Legislative Affairs Community Affairs team. I love witnessing what life lessons Emma has learned through this incredibly difficult journey and the great love her and her Grandy have for each other. Listen in and enjoy. Hugs, Lorri

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