S3E10: Making Policy: How to Advocate with The Bee Foundation

Making Headway

Intro

Have you ever thought about how the doctors know what treatments to use to diagnose and treat your brain aneurysm? Research obviously creates this but where does the money come from? A major source of funding comes through public policy and the federal government. The Bee Foundation has a strong presence on Capitol Hill through their work with Arnold and Porter. They are currently working on getting Ellie’s Law passed which would be a bipartisan effort earmarking $50 million dollars to go towards research. This funding could prevent others from having a rupture and lead to new treatments and rehab options. Learn how to support passage of this bill here.

Summary

In this episode of the Making Headway podcast, Alison speaks with Christine Kondra, Taylor Cazeault, and Michaela Stogsdill from the Bee Foundation about the critical issues surrounding brain aneurysms. They discuss the foundation's mission, the importance of advocacy and research funding, particularly through Ellie's Law, and the economic implications of brain aneurysms. Personal stories highlight the devastating impact of these conditions, while the conversation emphasizes the need for increased awareness, education, and community engagement to prevent future tragedies. The episode concludes with information on how listeners can get involved through political advocacy and upcoming events for Brain Aneurysm Awareness Month.

Keywords

The Bee Foundation, brain aneurysms, advocacy, Ellie's Law, research funding, awareness, healthcare, economic impact, personal stories, community engagement

Takeaways

· The Bee Foundation was started to honor those lost to brain aneurysms.

· Ellie's Law aims to increase federal research funding for brain aneurysms.

· Brain aneurysms affect 1 in 50 people, with a high fatality rate.

· Advocacy is crucial for raising awareness and funding for research.

· Personal stories of survivors highlight the urgent need for change.

· Economic costs of brain aneurysms are significant and preventable.

· Education for first responders is essential to improve outcomes.

· Bipartisan support is growing for brain health initiatives.

· Community engagement is vital for advocacy efforts.

· Upcoming events provide opportunities for public involvement.

Sound Bites

"This is going to be the last."

"We really wanted to focus on hope, prevention."

"Brain aneurysms are really prevalent."

Chapters

00:00 Introduction to the Bee Foundation

02:59 The Impact of Brain Aneurysms

06:11 Advocacy and Legislative Efforts

09:01 Ellie's Law and Research Funding

11:49 Economic Implications of Brain Aneurysms

15:00 Personal Stories and Experiences

18:00 The Importance of Awareness and Education

21:01 Bipartisan Support for Brain Health

24:09 Engaging the Community

26:54 Best Practices for Emergency Response

29:46 How to Get Involved

33:03 Upcoming Events and Initiatives

Reach out to

The Bee Foundation Website

Send a letter to your representatives seeking support or giving thanks using The Bee Foundation’s Toolkit

The Bee Foundation on IG @thebeefoundation

Christine’s email: [e-mail]

Taylor’s email: [e-mail]

Mikayla’s email: [e-mail]

Eryn on IG @eryn_makingheadwaypodcast

Alison on IG @alison_maknigheadwayodcast

MHP on IG @makingheadwaypodcast

Go to our website www.makingheadwaypodcast.com for full show notes and resources

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Patreon

Donate section on our website.