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Patient Empowerment Program: A Rare Disease Podcast

n-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen)

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Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to nano-rare patients for free, for life. n-Lorem is a non-profit organization established to apply t ...
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In-depth conversations with top producers and directors in the Animation Industry. Join director / animator Scott Wiser on his journey toward directing his first animated feature film. See the originals at http://youtube.com/scottwiseranimation
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Chasing Edges

Brian Peters

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Interviews uncovering the edges incredible humans chase in human performance, perspective, and the art of living. Seeking the hacks, habits, and mindsets of high performers. Learn. Grow. Explore your potential. Live Harder. Chase Edges. | ChasingEdges.com | chasingedgespod@gmail.com
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show series
 
Take a glimpse behind the curtain as we offer you a sneak peek of the 2024 Nano-rare Patient Colloquium. We’re thrilled to welcome back longtime biotech journalist and current Features Editor of The Transmitter, Brady Huggett, to the podcast. In an interview with n-Lorem founder and CEO Stan Crooke, they preview the upcoming Colloquium, diving into…
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#203 Counting More Than Cash: Can CFOs Handle Human Value? with Arjan Udding and Werner Schouten https://open.spotify.com/episode/4XDwgSdG36iRyx8uhedCK4 In this episode of the GrowCFO Show, host Kevin Appleby engages in a thought-provoking discussion with Arjan Udding, Director Impact Institute, and Werner Schouten, Director Impact Economy Foundati…
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#202 How Does Corporate Legal Finance Work? with Jordan Licht https://open.spotify.com/episode/7gxFduDodLzWwcUMKr0rpV?si=nKOiLbeOT1m-TXDZ1wf7Xw In this episode of the Grow CFO Show, host Kevin Appleby sits down with Jordan Licht, the CFO of Burford Capital, to discuss the fascinating world of legal fundraising and litigation finance. Jordan Licht’s…
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Hongene Biotech is a producer of RNA building blocks – the first step for what’s possible in RNA drug-discovery and development. David Butler, Ph.D., Chief Technology Officer of Hongene, joins the Patient Empowerment Program to discuss why Hongene aims to help make RNA medicines accessible and affordable for patients everywhere, regardless of preva…
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#201 What Does a Best in Class Finance Team Look Like? with Sharon Barber-Lui, US CFO, Teva Pharmaceuticals https://open.spotify.com/episode/0VINqaQdff5glvnpFNcKm4 In this episode, we have the privilege of diving deep into the remarkable career journey of Sharon Barber-Lui, the US Chief Financial Officer of Teva Pharmaceuticals. Sharon’s path from …
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#200 The Profit-Boosting Power of Experiential Learning with Dan Wells https://open.spotify.com/episode/3ruJsTVOQGKn5VoiNSXXM4 In this landmark 200th episode of The GrowCFO Show, hosts Kevin Appleby and Dan Wells celebrate a remarkable journey that began in August 2020. Over the years, the podcast has grown into a key resource for finance professio…
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Originally Streamed on YouTube Live Sep 6, 2024. Audio edited by Kiara Horowitz. Ron Friedman and I had a wonderful conversation at the Salt Lake Animation Expo* BUT technology Failed us, so let's do it again!Let's talk about His Thirty Years as an animator on hand-drawn animated films such as The PageMaster and Swan Princess, which visual FX, vide…
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The concluding episode of the Knowledge is Power series. The knowledge we are gaining at n-Lorem has even more value than benefiting nano-rare patients and their families. These insights will enable scientists to discover new therapeutic targets for both common and rare diseases, fundamentally changing the way we approach health and disease. Survey…
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#199 How Do You Become CFO Ready? with Andrew Waters https://open.spotify.com/episode/1VgwKOgwM8Nf6gh90BXo6z In this insightful episode, Kevin Appleby sits down with Andrew Waters, the esteemed co-founder of Zanda, to delve into the dynamic evolution of the Chief Financial Officer’s role over the past four years. As businesses navigate a post-lockd…
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#198 How to Communicate with Confidence with Susana Serrano-Davey https://open.spotify.com/episode/7cr1nXHLEdnbZ08i4oExuQ Kevin Appleby and Susana Serrano-Davey, GrowCFO Mentor, dive deep into the topic of communicating with confidence in this insightful episode. Susana, who is writing a book on confidence, shares her own experiences of overcoming …
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The knowledge we are gaining at n-Lorem has even more value than benefiting nano-rare patients and their families. These insights will enable scientists to discover new therapeutic targets for both common and rare diseases, fundamentally changing the way we approach health and disease. Survey – Patient Empowerment Program PodcastRegister for the 20…
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#197 Data Challenges Facing The Finance Function with Adam Rakich https://open.spotify.com/episode/0MX8X2ihqTsMURRfQPBBiS Adam Rakich, the esteemed author of “The Business User’s Guide to Data Integration,” joins us for a deep dive into the pressing issues surrounding data integration in the finance sector. Adam is Senior Director, Strategic Allian…
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#196 The CFO Creating Culture in the Finance Function with Sam Divine https://open.spotify.com/episode/1PaK9XqCIqhS2zBH8bpuMq Sam Divine, Founder of GrowthXel, joins Kevin Appleby, to delve into the pivotal role of the CFO in shaping culture within the finance function. The conversation underscored the importance of treating everyone fairly and res…
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Paul Compton and his wife Andrea chose to start a family through adoption. Unknown to anyone, one of their adopted boys, Taeson, was the inheritor of DRPLA, a progressive brain disorder caused by a mutation in the ATN1 gene. Determined to find a treatment and advocate for their son and others with the disease, the Comptons established CureDRPLA. In…
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#195 How to Navigate Leadership with Catherine Clark, GrowCFO Mentor https://open.spotify.com/episode/08NTBddAgyn0WWqkJgKSy8 Catherine Clark, a seasoned GrowCFO mentor, joins Kevin Appleby to delve into the critical role of emotional intelligence in leadership. They explore how self-awareness is the foundation upon which successful leaders build th…
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Originally streamed on YouTube Live on Aug 2, 2024. Audio edited by Kiara Horowitz. Since Directing Animation Livecast Episode #2 starring Moonbot Co-founder Brandon Oldenburg, he has gone to develop Flight School Studio, The Immersive Department of Wonder, and now "InBetween" which got to show off development for it new feature film Bloom at Annec…
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#194 How Mozilla turns a profit and protects privacy with Eric Muhlheim https://open.spotify.com/episode/49z24QIGonruC0zt4g1lhC In this podcast episode, Eric Muhlheim, CFO, Mozilla, joins Kevin Appleby to provide a wealth of insights about the significance of being a thought partner to leadership, a role that transcends traditional financial oversi…
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Uploaded to YouTube July 24, 2024. Audio edited by Kiara Horowitz. Since interview Story artist, consultant, director Mike Morris, I've been amused by his contributions to "collaborative posts" on LinkedIn. Knowing these "articles" are used to train AI, he trolls them in the funniest way and ironically earned the "Top Animation Voice Badge" on his …
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Mutations affecting ion channels are the most common cause of 'applications for treatment' submitted to n-Lorem. These channels regulate the passage of essential electrically charged ions, like sodium, potassium, calcium, and chloride, into cells. Alas, ion channels pose a significant challenge in the ASO discovery process, as there is little room …
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#193 Navigating My First Fundraise as Group CFO with Vineta Bajajhttps://open.spotify.com/episode/11eo7ZWSRIHL77o1p1kWtXIn this episode, we are honored to have Vineta Bajaj, the Group CFO of Rohlik Group and former executive at Ocado, as our guest. Vineta opens up about her personal and professional experiences across diverse environments, stressin…
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#192 Is Confidence Overrated? with Susana Serrano Daveyhttps://open.spotify.com/episode/3AhymCRjlMx44VZFkFNdUuIn this latest episode, Kevin Appleby is joined by Susana Serrano-Davey, a renowned speaker and expert in personal development, to delve into the pervasive issue of confidence challenges that many individuals face in both personal and profe…
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The affected organs of our patients determine the route of administration for an ASO, as certain routes can better target specific organs and offer the best potency. The central nervous system (CNS) is the most common target we encounter, and for this, we dose intrathecally. Let’s dive into how this is done and the particulars of why this approach …
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#191 Rebuilding value after an administration with Oliver Leehttps://open.spotify.com/episode/4kj5iP83OcB12YfnrfDHqhOliver Lee, the CFO at Flash Pack, sits down with Kevin Appleby to discuss his career journey and the challenges of leading a travel start-up through the COVID-19 pandemic. The discussion begins with Oliver's background in public acco…
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#190 Developing the next generation of leaders with Dan Silberberghttps://open.spotify.com/episode/7ja9iPmnDeQpkhwe4YHNXD?si=GfH_5NNjRSmJFa3cBzQ_4QLeadership development is crucial in today's rapidly changing business landscape. Guest speaker Dan Silberberg, CEO and Founder of ENTELECHY.Al, a premier provider of customized leadership development pr…
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Konstantina Skourti-Stathaki leads the n-Lorem research team behind the design and discovery of ASOs. Nadina, as we at n-Lorem call her, has a passion for helping patients and an excitement for science that is contagious. She joins the Patient Empowerment Program podcast to discuss her day-to-day activities as n-Lorem’s Director of ASO Design and D…
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Kevin Appleby and Rachel Anevski discuss the importance of collaboration between the CFO and HR departments for organizational development and infrastructure. Rachel emphasizes the crucial role of HR in providing fractional human resource executives to support business growth. They also cover the roles of CFOs and CHROs in managing people and payro…
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Kevin Appleby and Lee share their insights on navigating the sales world, emphasizing the importance of listening, enthusiasm, and adaptability. They discuss their career paths and the value of relating to customers and understanding their needs. The conversation also covers the evolution of invoicing from traditional methods to digitalization, the…
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Posted on YouTube June 14, 2024. Audio edited by Kiara Horowitz. Met Eli Harris at the Salt Lake Animation Expo and he is a professional in every sense of the word, nicknamed "The Image Maker" because of the inspiring passion that comes from his voice acting. His advice, tips, and experience were fun topics for discussion! From his LinkedIn bio:I a…
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Posted on YouTube May 31, 2024. Audio edited by Kiara Horowitz. At DrawingFORCE.com, Mike Mattesi, author of the FORCE drawing books and creator of the FORCE drawing theory teaches his drawing approach. Scott Wiser sat down with Mike at the Salt Lake Animation Expo for this challenging conversation about navigating the industry as an artist and abo…
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We’re recapping the 2023 Nano-rare Patient Colloquium in this special “Best of” episode. For the Colloquium, we gathered the nano-rare community under one single roof for a full day of presentations and panels with experts, partners, supporters, and patients. So, we are bringing some of the top moments directly to your speakers. Discover the origin…
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Kevin Appleby and Alan Gonsenhauser discuss the importance of collaboration between CMOs and CFOs in aligning metrics and growth strategies. They emphasize the need for a common understanding of modern marketing and its value to the organization, as well as establishing a customer culture within the business. They also discuss the importance of usi…
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Kevin Appleby and Bill Genovese discussed the convergence of digital technologies between the CFO and CEO/IO roles, emphasizing the importance of collaboration between these two roles. Kevin Appleby and Bill Genovese later discussed the importance of cost avoidance, cybersecurity, and cultural change in navigating digital transformation, highlighti…
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What's preventing insurers from covering the specialized care of patients with nano-rare mutations, thereby expanding access to available treatment options? Is it the population size, cost, or perceived risk? Given that the initial discovery of nano-rare mutations is relatively recent, paving the way for this population requires a nuanced approach …
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Greg Kautz and Kevin Appleby discussed the challenges of lease accounting and the need for technology to streamline these processes. Greg highlighted the benefits of automating lease accounting, while Appleby questioned the need for separate accounting rules for lessees and lessors. Later, the pair discussed the benefits of leasing assets for busin…
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Catherine Clark and Kevin Appleby discussed the importance of addressing personal and professional growth through holistic mentoring, emphasizing the role of emotional intelligence in decision making and relationship dynamics in business. Catherine is head of mentoring at GrowCFO. She frequently supports her mentees when they need to have a difficu…
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Stan Crooke speaks with Sonja Kampfer and Dr. Neil Shneider, associate professor of motor neuron disorders at Columbia Medical School, about Sonja’s daughter, Anna. Anna was diagnosed with an aggressive, fatal form of ALS at the age of 16. ALS is rare in teenagers, and this form of ALS is the worst of the worst. Sonja tells Anna’s story initial sym…
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Stephen Campbell, founder and chief solution architect at MacroFin, joins Kevin Appleby to discuss best practices for ERP implementation success. They share their experiences transitioning from accounting to technology consulting and implementation. Key topics covered include:Common challenges clients face when outgrowing systems like Xero and the …
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Timothee Clement. USA Country Manager at Agicap joins Kevin Appleby on the GrowCFO Show as they discuss the business case for introducing specialist cash flow forecasting technology. Timothee is a returning guest, he discussed implementing cash flow forecasting in episode 119. In this episode he discussed the business case for investing in cash flo…
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Motherhood is a journey filled with challenges, but every step is worth it for the love and joy it brings. Zoe Hummel joins the show in this special Mother’s Day episode to discuss her son Mostyn’s emotional story to diagnosis, and the unique challenges and triumphs of being a nano-rare mom. Order your Mother's Day card by May 6, 2024! All proceed …
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Randy Wootton is an experienced technology executive with over 20 years of experience in corporate leadership roles. He joins Kevin Appleby as a guest on the GrowCFO Show ahead of appearing as a panellist at the GrowCFO Global Finance Summit. He has served as CEO of three startups: Rocket Fuel, Percolate, and Maxio. Randy spent 8 years in the U.S. …
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Chris Tredwell joins regular host Kevin Appleby on the GrowCFO Show. Chris is the Chief Sales Officer at ERP software provider Aqilla. Chris leads GrowCFO's Future of the Finance Function series of webinars and will be presenting the opening keynote at the upcoming Global Finance Summit on 15-16 May 2024. Aqilla is a mid-market, Cloud-based, Accoun…
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Research physicians and their associated institutions are monumental to the mission of the n-Lorem Foundation and are truly transformational to the lives of the nano-rare patients they treat. Olivia Kim-McManus, M.D., was one of four physician panelists at our first Colloquium who participated in "A Physician's Perspective on n-Lorem and Nano-rare"…
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Anthony Perrozi is an independent finance transformation advisor, author and coach. Anthony shares his vast experience and practical insights on how finance teams can evolve from mere reporters of results to crucial drivers of business value. He stresses the importance of mindset in transforming finance teams and lays out how to establish a project…
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Remote working is becoming ever more popular. Besides the trend of working from home, existing workers may want to move to other countries, either for a short period or long term, and the business may want to take advantage of the skills pool available by recruiting further afield. While there are many advantages of remote work, it also opens up ne…
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Genetics can be intricate, no doubt. With millions of mutations present in every human, one might wonder why not everyone is impacted by pathogenic diseases. The Patient Empowerment Program aims to assist you in grasping the fundamental concepts of various mutations and how they function, paving the way for you to enhance your understanding of gene…
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In the final part of the series on scaling FP&A, Catherine Marks brings together her old team from Virgin Media O2 to discuss the merger of the two organisations and what this meant for the finance teams within each merged company. Regular podcast host Kevin Appleby chats with Catherine, formerly Head of Group FP&A at Virgin Media O2 and now FP&A a…
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Each time one of the cells in your body divides to form a new cell, 3 BILLION genetic letters must be accurately duplicated. That’s a big number and mistakes DO happen in everyone. That’s right, if you’re reading this, you have a genetic mutation. On This Episode We Discuss: Your genetic alphabet – nucleotides How to think about DNA Replication Typ…
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In the second of a 3 part series on scaling your FP&A capability, Paul Barnhurst, the FP&A Guy, and Catherine Marks, head of FP&A and team training at GrowCFO, join Kevin Appleby to discuss FP&A tools. They discuss scaling finance operations with a focus on infrastructure and choosing the right FP&A tools for growing organizations. Paul is a Financ…
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In the first of a 3 part series on scaling your FP&A capabilities, we're looking at developing the FP&A team. GrowCFO Show host Kevin Appleby is joined by Jane Riley, Director at executive recruitment specialist Zanda, and Catherine Marks FP&A lead at GrowCFO.Catherine and Jane discuss building a scalable FP&A team to support rapid business growth.…
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