The Covid-19 pandemic is a distant memory for many people, and it is not given much news coverage. Yet there is a growing number of people who have reported that symptoms never left them after contracting the virus; many of them have had these symptoms for years. The Office of National Statistics estimates that over 2 million Britons have Long COVID-19. You may have it or know somebody who is struggling with it. The number worldwide is unknown. My name is Paul, and long Covid has debilitated ...
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A podcast dedicated to Long Covid. Noreen Jameel and Emily Kate Stephens talk to fellow sufferers, doctors and experts searching for answers about this new, debilitating post-viral condition. So if you are one of the millions suffering from, or interested in, this new condition - tune in to our weekly podcast.
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The Pain Speak podcast is presented by Dr Deepak Ravindran, a full time NHS Consultant specialising in Pain, Anaesthesia, MSK and Lifestyle Medicine. Dr Ravindran is also the author of the book, 'The Pain Free Mindset'. In this podcast Dr Ravindran explores all things related to pain including physical, emotional and social issues. He also looks at the neuroscience of pain and the fantastic advances which have been made in this area of medicine. He also discusses the business of healthcare a ...
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Overcoming Pain - Diving deep into CRPS
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Dr. Ravindran's presentation, "Complex regional pain syndrome: Trauma informed CRPS Care An integrated approach," focuses on trauma-informed care for CRPS patients. This was presented at the UK annual conference organised by CRPS UK. This podcast was a summary of that talk and the source files used by Dr Ravindran for his presentation and generated…
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Overcoming Pain - Diving deep
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This presentation on Pain Management 101 is an overview of how to change the mindset across healthcare concerning chronic pain. Dr. Deepak Ravindran's presentation explains the biology of pain, chronic pain, and its treatment. Dr. Ravindran also examines how a history of adverse childhood experiences affects the likelihood of experiencing chronic p…
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17: "What happens if you get Covid again?"
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What happens when you find yourself facing long COVID for the third time, and the dread of uncertainty looms larger than ever? Join me, as I navigate my way through another bout of illness coinciding with my ill-health retirement. I found myself reflecting on the persistent fear of worsening symptoms and the isolation that comes with a healthcare s…
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16: "Are you still tired?"
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Can long COVID turn your life upside down? For me, Paul, it certainly did. Join me as I recount my deeply personal and ongoing battle with long COVID, an invisible illness that has forced me to retire prematurely from my role as a vicar. I recorded this on my retirement day, at the age of 52. Through the lens of my daily struggles with chronic fati…
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15: "if you could just fill in this form"
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The UK Government has recently once again made it clear that the national welfare benefit budget needs to shrink. What does it feel like for somebody with a chronic illness to apply? I share my deeply personal and often frustrating journey through the maze of seeking validation and support for a condition that many misunderstand. You'll hear about …
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14: "You are needed at the hospital urgently"
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What happens when you're grappling with the relentless symptoms of long COVID and suddenly your daughter is hospitalized? In this heartfelt episode, I share the raw realities of balancing my own health struggles while supporting a loved one in crisis. From the emotional and physical exhaustion to the spiritual toll it takes, I discuss the importanc…
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13: "When will this end?"
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What happens when you feel like your life has been put on pause indefinitely? Join me, Paul, as I share my raw and personal journey through the relentless battle of long COVID. In the chapter, 'When Will This End?', I open up about the emotional turmoil and physical setbacks that have marked over two years of my life. From fleeting moments of hope …
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Interlude: Your messages
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Thank you so much for your messages! Today, I felt like I had enough energy to go through some of them and record them for this special 'interlude'. Please continue to share what your life is like living with Long Covid, and I will do these catch-up interludes regularly. Watch out for the online forum to complement this podcast, which is launching …
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12: "You just need a good nights sleep"
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In this episode, I talk about sleep and how Long Covid affects it, plus some of the things I have found helpful. I give an update on a few products that seem to be working (links below) along with a negative experience I encountered whilst advertising the podcast. Herbal Health, who produce the fabulous 'Ninja Balm' in both regular strength and 'su…
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11: "I hope you had a nice holiday"
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I recorded this whilst still very weary after a holiday with the family. I reflect on my week away and the highs and lows of managing in a different environment. If you find this podcast helpful, do let me know. You can message me via the link below. Send Paul a text here Support the showKirjoittanut Paul Clarke
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10: "A holiday will do you good"
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I explore the summer holidays and the challenges of planning things with the family. Also, after being told my symptoms might now be permanent I try and explain how I am beginning to come to terms with this. Oh, and an update on a supplement that seems to be working a little bit! Send Paul a text here Support the show…
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9: "Well done, you are out!"
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I talk with my wife, Rachel, about visiting a local festival using mobility aids. We also chat about a recent occupational health review. We also chat through how by being honest, we can manage my condition together. Send Paul a text here Support the showKirjoittanut Paul Clarke
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8: "When are you going back to work?"
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In this episode I explore my experienes of attempting to work with Long Covid and the concequences. Hank the Cavalier King Charles makes a contribution, and even barked at himself upon playback! Send Paul a text here Support the show
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7: "It's all in your head"
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In this episode, I talk about how Long Covid affects my mental health and the things that I do to help. Maisie the dog makes a brief appearance. I found this a difficult episode to record, as I was feeling down at the time and it is a very emotional topic. As always though, I decided to present it 'as is' so that you can at least get a feel of how …
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I want this podcast to show the highs and lows of living with Long Covid. Today is a low, and I decided to record this short audio to try and describe it. Reach out : lifewithlongcovid@icloud.com Send Paul a text here Support the show
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6: "This is the best thing I have ever tried"
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In this episode, I talk about my journey of introducing supplements and how it eventually led me to realise that I was looking for answers in the wrong place. I mention a few that I have tried; Krill Oil (for the ultimate in fishy breath!) NADH (warning: massive tablets) Vitamins C, D, B12 CBD Oil, balms and capsules (and chocolate, gummies,
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5: "You just need to do some exercise"
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In this episode, I talk about my experiences with various medical professionals and their reactions to my illness. I recorded this whilst having a tired and emotional day. I thought about re-recording it, but in the end, I believe it is important that you hear me on the not-so-good days as well. Let me know your experiences, email: lifewithlongcovi…
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4: Sunday afternoon "Walk" & talk
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My plan was to do a short walk and record how I was feeling. In reality, it turned into a 'wheel' and talk with my wife, Rachel! Join us on a Sunday afternoon wheel/walk as we discuss my use of a wheelchair, people's perceptions of my illness and how Rachel has had to change her life. Send Paul a text here Support the show…
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3: "Everybody gets tired"
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Living with Long COVID means constantly feeling tired, but it is likely that other people won't understand. In this episode, I delve deeper into fatigue and some of the coping strategies I have developed along the way. It would be great to hear from you if you have any tips or comments, email me: lifewithlongcovid@icloud.com For more information ab…
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Long Covid is hard to understand at the best of times, so no wonder people do not know how to respond to our illness. In this episode, I talk about how I deal (or find it hard to deal) with comments on our disability. Guest starring Maisie the Pomeranian, who barks at the wind in the background! Send Paul a text here Support the show…
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Episode 78: Benjamin Krishna - Interferon Gamma
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Dr Benjamin Krishna and the Virology & Immunology team at Cambridge University have identified a protein, elevated in the blood of Long Covid patients, that could act as a potential biomarker for the condition. This week, we spoke to Dr Krishna about their study, published in Science, which sampled the blood of Long Covid patients across several ye…
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In this episode, Paul introduces himself and the series. Send Paul a text here Support the showKirjoittanut Paul Ian Clarke
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Episode 77: Dr Theoharis Theoharides - The Mast Cell Master
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Dr Theoharis Theoharides, aka “The Mast Cell Master”, has been exploring the world of Mast Cells, their influence on our bodily functions, neurology and genetic make up, for over half a century. The Director of the Center of Excellence for Neuroinflammation Research and Professor at the Institute for Neuro-Immune Medicine at Nova Southeastern Unive…
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Episode 76: Conor Browne - biorisk consultant
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Conor Browne, an independent Biorisk Consultant, analyses biosecurity risks for governmental bodies, commercial enterprises and NGOs, aiding with business continuity, forecasting and policy. He understood that Covid-19 was airborne in February 2020 but, he says, “it’s the first message that sticks”. In this week’s episode he discusses how our gover…
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Episode 75: Prof. David Cutler - the economics of Long Covid
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David Cutler, Professor of Applied Economics at Harvard University, has spent his career assessing the economics of healthcare. Over the past four years he has applied his skills to assessing the cost of Covid, and subsequently Long Covid, on the U.S. economy. His original analysis, published in JAMA in 2022, suggested that Long Covid would cost th…
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Episode 74: Nancy Klimas M.D. - Neuroimmunology
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Dr Nancy Klimas, Director of the Institute for Neuro-Immune Medicine, Nova Southeastern University, is an immunologist internationally renowned for her work in multi-symptom illnesses. In this week’s episode she explains her work, from HIV through ME/CFS and Gulf War Syndrome, that has led to her having insight and an amazing team to channel effort…
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Episode 73: Dr Rob Wüst - Post-exertional Malaise (P.E.M)
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Dr Rob Wüst, Assistant Professor in the Faculty of Movement and Behaviour Sciences, is an expert cardiac and skeletal muscle metabolism and mitochondrial function. He and the team at Vrije Universiteit, Amsterdam, published the “PEM study” in Nature Communications, which investigated the muscular changes in Long Covid patients who experience post-e…
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Episode 72: Dr Thomas Chelimsky - autonomic dysfunction, migraine and trauma
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Dr Thomas Chelimsky, Professor of Neurology and Director of VCU’s autonomic laboratory, is a specialist in autonomic dysfunction and a vocal advocate for considering the mind and body as one cohesive system. He, along with his team at the VCU clinic, take a unique brain-body approach to treating Long Covid patients, with success. In this week’s epi…
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Episode 71: Dr Andrew Klein - Iron and B12 deficiency
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Dr Andrew Klein, an anaesthetist at the Royal Papworth Hospital Cambridge, runs the Cambridge Iron Clinic where he treats people with Iron and B12 deficiencies. Since the start of Covid he has seen an increase in people with these deficiencies, many of whom have been diagnosed with Long Covid. In this episode Dr Klein talks us through the overlappi…
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Episode 70: Benjamin Abramoff, M.D. – Serotonin Depletion
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Physiatrist Benjamin Abramoff, M.D. is the Director and Co-founder of the Post Covid Assessment and Recovery Clinic at the University of Pennsylvania, Philadelphia. An Assistant Professor in Physical Medicine and Rehabilition, Abramoff used his expertise to co-author the study, published in Cell, that found that serotonin depletion is prevalent in …
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Episode 69: Prof. Tim Henrich - Viral persistence and T cell dysregulation
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Tim Henrich is a Professor of Medicine and expert in infectious diseases, focused on chronic viral infections at the University of California, San Francisco. He is another member of the titan Long Covid research team who have tracked patients since the beginning of the pandemic (LIINC study) and are making roads into understanding the mechanism of …
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A supplement to Episode 68 - Consultant Neurologist Steven Allder of Re:Cognition Health explains what tinnitus is and why we are experiencing it in Long Covid. Living with Long Covid? How was your week? Website - https://www.tlcsessions.net/ Twitter - @SessionsTlc https://twitter.com/sessionstlc Insta - @tlcsessions https://www.instagram.com/tlcse…
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A supplement to Episode 68 - Consultant Neurologist Steven Allder of Re:Cognition Health discusses the way that injury to the brain causes anxiety and depression in Traumatic Brain Injury and could explain some of the mental health impact of Long Covid. Living with Long Covid? How was your week? Website - https://www.tlcsessions.net/ Twitter - @Ses…
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Episode 68: Dr Steven Allder - Re:Cognition Health
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Consultant Neurologist Steven Allder of Re:Cognition Health has applied his wealth of experience investigating Traumatic Brain Injury (TBI) and Functional Neurological Disorder (FND) to understanding the impact of Long Covid on the brain. In this week’s conversation we discuss inflammation of the brain of Long Covid patients which is visible using …
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Episode 67: Prof. Andrew Shaw – Antibody gap
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Professor Andrew Shaw, University of Exeter, believes that he has devised a diagnostic test for Long Covid. His company, Attomarker, have developed a test which can reveal a gap in a patient’s antibody spectrum – their response to acute SARS-COV2 from a finger prick of blood. This gap, he says, has lead to a viral residue that causes the chronic sy…
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Episode 66: Prof. Danny Altmann Returns
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Imperial College Professor of Immunology, Danny Altmann recently published “The immunology of long COVID”, a fantastically comprehensive overview in Nature Reviews Immunology. In this week’s episode Altmann, to whom we first spoke in the summer of 2021, talks us through some of the highlights of the work he's reviewed - serotonin depletion, gut bio…
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Episode 65: Dr. Amy Proal - PolyBio
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Dr. Amy Proal is the President and Research Director of PolyBio Research Foundation, a non-profit organisation that brings together some of the brightest scientific minds to research how infection-associated chronic conditions are studied, diagnosed and treated. Their work into Long Covid is bringing together some of the leaders in the field to acc…
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Episode 64: Michael Peluso, M.D. – Viral reservoirs and Monoclonal Antibody treatment trial
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Michael Peluso M.D., an HIV and infectious disease specialist at UCSF, has been studying Long Covid patients since April 2020 (LIINC Study). This, along with his history of working with HIV and other viruses, has given him the knowledge and methods to make some break-throughs into Long Covid pathogenesis, effects and, potentially, treatments. He, a…
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Episode 63: Eric Topol, M.D – Cardiologist and prolific Long Covid author
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Eric Topol must be one of the leading voices in Long Covid advocacy. Cardiologist, scientist, author, editor-in-chief of Medscape, and founder of the Scripps Research Translational Institute, Topol has written about Long Covid in publications from The Lancet and Nature, to The Washington Post. As a clinician a large proportion of his patients are n…
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Episode 62: Prof. Harlan Krumholz - Vibrations, LISTEN, and Paxlovid studies
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Harlan Krumholtz, cardiologist and Professor of Medicine at Yale University, is attempting to move the needle when it comes to patient-centric care in Long Covid and beyond. Working closely with immunologist Akiko Iwasaki, Krumholz not only looks at the heart when it comes to his research into Long Covid. Together this Long Covid power couple are t…
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Episode 61: Dr Leo Galland - A functional approach
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Credited as being the founder of functional medicine, Dr Leo Galland has spent the past 40 years trying to create a patient-centred version of healthcare. Using pharmaceuticals, supplements, lifestyle and complimentary therapies he has drawn on his vast knowledge of patients and holistic healing, to create a comprehensive protocol for Long Covid pa…
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Episode 60: Research-Aid Networks – all about the acid-base
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Researcher Vicky van der Togt and virologist Dr Jeremy Rossman have spent the past 2.5 years trying to help Long Covid patients and research via their organisation Research-Aid Networks. Their latest paper, published in Frontiers, hypothesises that it is an acid-base disruption that drives the symptomatology of Long Covid. In this week's episode we…
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Episode 59: Dr Wes Ely - Treating with humanity
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Dr Wes Ely, a pulmonary and critical care doctor, has built a remarkable resource for Long Covid sufferers within the Critical Illness, Brain Dysfunction and Survivorship Center at Vanderbilt University Medical Center in Nashville, Tennessee, of which he is co-director. A professor, using his knowledge of his clinical knowledge and his extensive re…
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Episode 58: **Exclusive** Breakthrough Biomarker?
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Molecular Virologist, Bhupesh Prusty, promised to reveal more when we last spoke, four weeks ago. Here he presents what he believes to be a biomarker for Long Covid, explaining the mechanism, its similarity to ME/CFS, what his research and findings have proven, and how we might take this research forward to develop further understanding and treatme…
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Episode 57: Lavanya Visvabharathy - Publishing the science
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Lavanya Visvabharathy, a T cell immunologist at Northwestern University, Chicago, has led extensive studies into Long Covid, but we learned that some of those studies, despite their merit and rigour, were proving hard to publish in top tier medical journals. In this week's episode we lift the lid on the process of scientific publishing, talking thr…
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Episode 56: Dr Jim Jackson - Neuropsychology and Cognitive Rehabilitation
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Dr Jim Jackson, research professor of Medicine and Psychiatry at Vanderbilt University Medical Centre, does not believe that Long Covid is all in your mind, but he has found that treating the brain, as if it has a brain injury, can help Long Covid recovery. In this week’s episode Dr Jackson explains his clinical experience of the neurological impac…
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Episode 55: Dr Raouf Gharbo - HRV, breathing and sleep
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Dr Raouf (Ron) Gharbo has spent many years treating those with brain injury and autonomic disorders using Heart Rate Variability (HRV) metrics. Physical medicine and rehabilitation specialist, and Director of Autonomic Rehabilitation at VMU Health, Dr Gharbo this week explains the sympathetic and parasympathetic nervous systems, the metrics he uses…
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Episode 54: Dr Bhupesh Prusty - Molecular Virologist
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Dr Bhupesh Prusty believes that he has found 'the switch'. A molecular virologist from the University of Würzburg, Germany, he has turned his work looking at ME/CFS to look at Long Covid, and believes that viral reactivation in both diseases could hold the key. It’s this viral reactivation that, rather than causing a detectable elevation of somethi…
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Episode 53: Prof. Jack Lambert - LDN protocol
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In this week's episode we receive no-nonsense, practical advice from Prof. Jack Lambert, a consultant in infectious diseases at the Mater Hospital in Dublin. He has been monitoring long term recovery following COVID-19 since he saw the first patients in Ireland in March 2020. He has used his knowledge of chronic conditions caused by other infectiou…
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Episode 52: Patient Led Research Collaborative – Hannah Davis and Lisa McCorkell
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If you’re looking for an overview of all of the research into Long Covid, this Nature review, undertaken by Patient Led Research Collaborative (PLRC) under the guidance of the cardiologist Dr Eric Topol, is a great place to start. A collation of the findings from almost 300 biomedical research papers on Long Covid, it sets out the major findings, m…
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