Parhaat Longhauler Podcastit (2024)

1
152 - Jenny Adams - Embracing Self-Compassion: Navigating ADHD, Perfectionism, and Chronic Illness 54:34

1d ago54:34

54:34

Ever wondered how the traits of ADHD intersect with perfectionism and chronic illness? Jenny Adams returns to share her personal journey of healing from ME CFS and ADHD burnout, offering insights into the intricate dance between trauma, perfectionism, and health challenges. We unravel how ADHD manifests uniquely in women and discuss the crucial nee…

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151 - Dr. Lydia Knutson's Chiropractic Approach to Long Covid 57:59

8d ago57:59

57:59

What if a gentle touch could ignite your body's natural healing abilities? Join us as we sit down with Dr. Lydia Knutson, a pioneer in chiropractic care, to uncover the secrets of her Axial Stability Method (ASM) which marries low-force chiropractic techniques with Eastern energy medicine, offering new hope to those suffering from long COVID and ot…

1
150 - From Self-Blame to Self-Discovery 16:09

15d ago16:09

16:09

Could recognizing stress, perfectionism, and a relentless work ethic have unknowingly contributed to my journey with Long Covid? This episode, inspired by a listener's question, takes you through my personal exploration of self-blame and recovery, emphasizing the importance of acknowledging lifestyle factors that play into our health. We'll uncover…

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149 - Resilience and Recovery: Dr. Eleanor Stein on Navigating Chronic Illness and Long Covid 1:00:34

22d ago1:00:34

1:00:34

Dr. Eleanor Stein's journey is one of resilience and transformation and her story is both personal and powerful. Dr. Stein shares how her experiences have shaped her approach to patient care and education. Her insights into societal myths around illness & recovery offer a refreshing perspective, especially for those navigating the complexities of l…

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148 - Dan Neuffer - Balance, Resilience & how we can prioritise recovery 45:34

29d ago45:34

45:34

Episode 148 of the Long Covid Podcast is the second in this two-part series with Dan Neuffer. Dan is a coach working with people with Long Covid & ME/CFS. He is also an author of "CFS Unravelled" and has developed the "ANS Rewire" Program which has been mentioned by some others on the podcast previously. In this episode we dive into What does recov…

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147 - Dan Neuffer - How can we build & ensure resilience in our recoveries? 48:47

1M ago48:47

48:47

Episode 147 of the Long Covid Podcast is the first of a two-part series with Dan Neuffer. Dan is a coach working with people with Long Covid & ME/CFS. He is also an author of "CFS Unravelled" and has developed the "ANS Rewire" Program which has been mentioned by some others on the podcast previously. In this episode we dive into How is recovery pos…

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146 - Dr Becca Kennedy - Chronic Pain & Fatigue Doctor 52:07

2M ago52:07

52:07

In episode 146 I speak to the fabulous Dr. Becca Kennedy, a family medicine physician, who discusses her approach to treating chronic pain and fatigue using evidence-based neuroscience. She emphasizes the mind-body connection, explaining that many medically unexplained symptoms are due to brain signaling rather than structural damage. Kennedy highl…

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145 - Jenny Adams - Recovery from ME/CFS 50:03

2M ago50:03

50:03

Episode 145 of the Long Covid Podcast is a chat with Jenny Adams who is here to share her recovery story! We chat through her illness, the things that helped her and the lessons she has learned. We also discuss the work Jenny is doing now, and the links to work with her are below. Free workshop sign up: https://jenny-adams-f409.mykajabi.com/moreene…

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144 - Dr Sarah's Long Covid Recovery 53:08

2M ago53:08

53:08

Episode 144 of the Long Covid Podcast is a chat with Dr Sarah about her recovery from Long Covid. Sarah tells of her experiences with Covid and her route to Long Covid, as well as some of the things she found that helped. Sarah takes us through her "6 pillars of wellness" that she developed to help her recover - these 6 areas which she thinks are i…

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143 - David Joffe - Overcoming Sleep Challenges in Long Covid Patients 55:10

3M ago55:10

55:10

Unlock the secrets to better sleep and enhanced well-being in our latest episode featuring David Joffe, a leading expert in respiratory and sleep medicine. You'll gain valuable insights into the intricate roles of slow-wave and REM sleep, crucial for both physical restoration and cognitive functions like memory consolidation. David shares his exten…

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142 - Jackie's thoughts of the day! 12:05

3M ago12:05

12:05

In episode 142 of the Long Covid Podcast, Jackie takes to the mic to explore her thoughts on Some Things, including almost 3 years since she started the podcast, why boundaries and self-care are so important and more. My youtube channel and the "Ask Jaxter" playlist Long Covid Breathing - see what I have created with Vikki and how you can join our …

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141 - Todd Davenport - a deep dive into Post-Exertional Malaise (PEM) 51:14

3M ago51:14

51:14

Episode 141 of the Long Covid Podcast is a chat with the fabulous Todd Davenport - physio & exercise scientist specialing in Long Covid, MECFS & Post-exertional Malaise. We take a dive into PEM, some of the science behind it and some things that can help avoid & mitigate it. Some useful links: Bateman Horne crash care plan Workwell Foundation Links…

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140 - Jess Dove London - Turnto - the app that aims to revolutionise healthcare 38:16

3M ago38:16

38:16

Episode 140 of the Long Covid Podcast is a chat with Jess Dove London, CEO of the startup "Turnto". Jess tells the story behind Turnto and how it's now helping people with ME/CFS & Long Covid. We talk about the app, it's main features and how it can help. Have you enjoyed the app? Let us know! https://turnto.ai/download Message the podcast! - quest…

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139 - Patrick Ussher & Peter Deen - Excessive Thirst in ME/CFS & Long Covid 47:47

4M ago47:47

47:47

Episode 139 of the Long Covid Podcast is a chat with Patrick Ussher and Peter Deen about excessive thirst in ME/CFS & Long Covid. We talk about what this is - and how it can be a very serious issue, as well as what brought Patrick & Peter together for the research they are now doing. The Survey mentioned is not quite ready yet - it will be added an…

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138 - Jules Rogers - Long Covid Recovery 47:27

4M ago47:27

47:27

Episode 138 of the Long Covid Podcast is a chat with Jules Rogers, who shares how she recovered from Long Covid. We chat through the things that helped - some of which made a little difference, some a lot. As with all recovery stories - this is one person's experience. We wouldn't recommend trying to replicate it, as no two people are the same. But…

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137 - Lorrie Rivers - What is EFT Tapping and how can it help me? 51:19

4M ago51:19

51:19

Episode 137 of the Long Covid Podcast welcomes back Lorrie Rivers to chat about EFT tapping, a technique that she's personally had good results with and now uses with her clients. EFT stands for Emotional Freedom Technique and can be a great way of gently helping us out emotionally, which can be difficult with health challenges such as Long Covid. …

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136 - Dr Meg Anderson - Movement in Long Covid - Part 2 - "how to" 53:04

4M ago53:04

53:04

Episode 136 of the Long Covid Podcast is a continuation of my chat with the fabulous Dr Meg Anderson about movement in Long Covid. In this episode, we talk more about what that movement might actually look like and how to tailor that. The previous episode, where we talk about "getting ready" for movement is definitely worth a listen HERE Links: Meg…

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135 - Dr Meg Anderson - Movement in Long Covid Part 1 - Getting ready 53:33

4M ago53:33

53:33

Episode 135 of the Long Covid Podcast is a chat with the fabulous Dr Meg Anderson about movement in Long Covid. This is part one of our chat where we talk about getting ready for movement, how to know you might be ready and kind of setting the scene. Watch out for part 2 next week, where we talk more about what that movement might actually look lik…

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134 - Vicky van der Togt & Jeremy Rossman - Research-Aid Networks 56:53

5M ago56:53

56:53

Episode 134 of the Long Covid Podcast is a chat with Vicky van der Togh & Dr Jeremy Rossman from Research-Aid Networks. We discuss what the organisation does, what brought Vicky & Jeremy together as well as their recently published hypothesis paper. Research-Aid Networks www.researchaidnetworks.org Pandemic-Aid Networks www.researchaidnetworks.org/…

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133 - A K Davidson - Long Covid Recovery 51:07

5M ago51:07

51:07

Episode 133 of the Long Covid Podcast is a chat with A K Davidson, author & poet, who has now recovered from Long Covid. We chat through her experience, how writing because so important as well as helping with recovery, although not always in the way she expected! As always - recovery stories are one person's experience! They can be useful for idea…

1
132 - Rosalba Courtney & Hadas Golan - Dysfunctional Breathing in Long Covid 52:49

5M ago52:49

52:49

Episode 132 of the Long Covid Podcast is a chat with the wonderful Hadas Golan & Rosalba Courtney. Hadas and Rosalba have been collaborating on working with people with Long Covid and have recently published a series of case studies detailing their successes. We take a deep dive into my favourite subject - breathing - discussing some of the underly…

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131 - Dr Wes Ely - What is Immuno-modulation & how could it help with Long Covid? 40:47

6M ago40:47

40:47

Episode 131 of the Long Covid Podcast is a chat with the wonderful Dr Wes Ely, internist & pulmonologist, clinical triallist & also author & Long Covid advocate. We chat through some of his experiences with Long Covid patients as well as the clinical trial of baricitinib for Long Covid which is enrolling very soon. ICUdelirium.org Stat News - "Don'…

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130 - Dr Marco Leitzke - Using Nicotine Patches for Long Covid 38:55

6M ago38:55

38:55

Episode 130 of the Long Covid Podcast is a chat with Dr Marco Leitzke who has been exploring the use of Nicotine Patches to help with Long Covid. We discuss what Nicotine is, why it can help and how this could be something incredibly useful. Links to Dr Marco's work & social media etc: https://linktr.ee/marcoleitzke A blog written on "Health Rising…

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129 - Lily Spechler - The Long Covid Dietitian 56:07

6M ago56:07

56:07

Episode 129 of the Long Covid Podcast is a chat with Lily Spechler, a registered dietitian who is working with people with Long Covid following her own experience with it. We chat through some of the trends she is seeing and some pointers for people to follow. Lily's Instagram: https://www.instagram.com/longcoviddietitian/ The Energy Expansion Proj…

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128 - Nigel McCracken & Sean Knight - Research into T-Cell Exhaustion 51:27

6M ago51:27

51:27

Episode 128 of the Long Covid Podcast is a chat with Nigel McCracken, COO of Virax Biolabs & Sean Knight, Clinical research fellow at the University of Manchester. Nigel and Sean are working together in collaboration on a study to dive deeper into T-Cell exhaustion in people with Long Covid. We take a deep dive into T-Cells, immunology and the ques…

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127 - Rachael's Long Covid Recovery Story 46:50

7M ago46:50

46:50

Episode 127 of the Long Covid Podcast is a chat with Rachael Heath-Porsz about her recovery from Long Covid! We chat through her experience - the things that helped, the things that didn't and what life looks like now. We also chat a bit about what Rachael is doing now - helping people with Long Covid to return to movement in a safe & supported way…

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126 - Joshua Roman talks about Long Covid, Music, Vulnerability & Connection 46:09

7M ago46:09

46:09

Episode 126 of the Long Covid Podcast is a chat with Joshua Roman - Cellist, Composer & Curator, as well as Longhauler. We chat through some of the things that he experienced, learned and some of the incredibly inspiring work he is now doing to help others with Long Covid as well as heal himself. Links: Joshua Roman Website "Immunity" Project Your …

1
125 - Peter Burt - Man Stuck on Desert Island! 55:46

7M ago55:46

55:46

Episode 125 of the Long Covid Podcast is a chat with Peter Burt. Peter has found himself "washed up on a desert island" after floating around in the sea of Long Covid for a couple of years. We talk through a lot of fascinasting stuff, the idea of "not feeling like a man" and how difficult but extremely important it is to ask for help - and then rec…

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124 - Dr Elizabeth So - East Asian Medicine & Acupuncture 57:52

8M ago57:52

57:52

Episode 124 of the Long Covid Podcast is a chat with Dr Elizabeth So about East Asian Medicine. We take a deep dive into what EAM is and some of the background to it, as well as how it can help with conditions such as Long Covid - and why! This was such a fascinating discussion - we could have carried on for hours - and one of the biggest takeaways…

1
123 - Jackie's Reflections on 4 years since "The Beginning" & Long Covid Awareness Day 17:35

8M ago17:35

17:35

Episode 123 of the Long Covid Podcast falls on Long Covid Awareness Day, and also 4 years since I first became unwell. This is my reflections on the last 4 years - Long Covid & beyond. I also did a video for youtube which might be of interest here Episode 94 - my recovery story Message the podcast! - questions will be answered on my youtube channel…

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122 - Professor Louise Cummings - Research into Cognitive & Linguistic Difficulties in Long Covid 52:35

8M ago52:35

52:35

Episode 122 of the Long Covid Podcast welcomes back the wonderful Professor Louise Cummings to talk about her follow-up study into the cognitive & linguistic difficulties in adults with Long Covid and also looking at employment outcomes for those people. This is a hugely enlightening discussion, covering a lot of information - I hope you enjoy it a…

1
121 - Pamela Rose - Difficult Conversations in Chronic Illness 54:16

8M ago54:16

54:16

Episode 121 of the Long Covid Podcast is a chat with Fatigue Coach Pamela Rose about those difficult conversations that can come up time and time again. We chat through some of her experiences and how they have led her to be able to work with & help people. And we also dive into those difficult conversations - which ones tend to come up most often,…

1
120 - Dr Mark Faghy - Research update & first Long Covid anti-viral trial in UK! 55:34

8M ago55:34

55:34

Episode 120 of the Long Covid Podcast welcomes the wonderful Dr Mark Faghy back to the podcast for a long awaited catch-up on all the research he's been involved in at Derby Uni, but also info on the first anti-viral Long Covid clinical trial - in the UK, if not the world! https://www.derby.ac.uk/research/showcase/long-covid-research/ Episode #103 …

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119 - Daniel Gomez & Ewa Beldzik - MRI imaging study 49:22

9M ago49:22

49:22

Episode 119 of the Long Covid Podcast is a fascinating discussion with Ewa Beldzik and Daniel Gomez about the Long Covid study they are doing involving MRI and mapping the brain during tasks. We dive a load into the study and it's absolutely amazing! A link to enroll in the study And their email for any questions: MGHLCOVID@MGB.ORG Message the podc…

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118 - Dr Sarah Myhill shares her experience of treating ME/CFS & Long Covid 50:45

9M ago50:45

50:45

Episode 118 of the Long Covid Podcast is a chat with Dr Sarah Myhill about her experiences of working with people with ME/CFS and now Long Covid. We chat through her treatment protocol and some ideas to help that are practical & cheap - an important factor! Dr Myhill's website Books: - chronic fatigue book - paleoketogenic diet - ecological medicen…

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117 - Leela O'Brien - Navigating Long Covid & finding meaning in life 47:47

9M ago47:47

47:47

Episode 117 of the Long Covid Podcast is a chat with the wonderful Leela O'Brien about her experiences with Long Covid and what she has learned about herself in the process. A big takeaway from this is the "what can we do" and that we don't need to wait to be healed before trying to find ways to enjoy life, even if they are not what we wanted or ex…

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116 - Dr Claire Taylor - GP & expert advisor in Long Covid 51:39

9M ago51:39

51:39

Episode 116 of the Long Covid Podcast is a chat with the fabulous Dr Claire Taylor. We take a dive into her previous experience which led her to Long Covid, and also to some of the common trends & useful strategies she is seeing with her patients. Claire Taylor Twitter Claire Taylor Website Claire Taylor Instagram Message the podcast! - questions w…

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115 - Lauren Stiles - a deep dive into Dysautonomia Research 51:27

10M ago51:27

51:27

Episode 115 of the Long Covid Podcast welcomes back CEO of Dysautonomia International Lauren Stiles to chat about research into Dysautonomia, and how this is relevant to Long Covid. This is a fascinating discussion, which dives back into research pre-Covid that is (or should be) informing research happening now. We also take a look at trials and st…

1
114 - Sarah's story of Long Covid Recovery 54:48

10M ago54:48

54:48

Episode 114 of the Long Covid Podcast is a chat with Sarah about her recovery from Long Covid. Sarah is a yoga teacher who is now teaching yoga classes to help people with Long Covid, as well as running her own podcast focused on recovery stories. We chat through Sarah's experiences, what helped her to recover and what life looks like now. http://w…

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113 - Long Covid Creativity 2023 51:15

11M ago51:15

51:15

Episode 113 of the Long Covid Podcast is an incredible showcase of creativity inspired by Long Covid. These wonderful talented people have shared so many different varieties of creativity and it was such a joy to witness. Links to all the participants are below - please do check them out - and all the visual elements - paintings, collages, crochet …

1
112 - 2023 Reflections 21:05

11M ago21:05

21:05

Episode 112 of the Long Covid Podcast is my 2023 reflections. A lot of look back on, be grateful for and certainly a lot that I've noticed - about myself and the world! Of course this isn't medical advice - just my own observations. Links mentioned: Episode 94 - my recovery story Last year's episode - 2022 Reflections More info about Breathing for …

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111 - Sophie Reynolds - Recovery from ME/CFS 49:37

11M ago49:37

49:37

Episode 111 of the Long Covid Podcast is a chat with Sophie Reynolds who has recovered from ME/CFS and is now using her experiences to help people through Pilates, which was one of the things that helped her so much. We chat through her experiences as well as what helped, and what she has learned from the experience to take forward into her life no…

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110 - Lisa, Gina & Hannah from Patient-Led Research Collaborative 51:12

11M ago51:12

51:12

Episode 110 of the Long Covid Podcast is a chat with Lisa McCorkell, Gina Assaf & Hannah Davis, co-leads & co-founders of the Patient-Led Research Collaborative. We chat about how Long Covid & the Body Politic Slack community brought them all together, and how the organisation has progressed and flourished from there. Website: patientledresearch.co…

1
109 - Julie Black - Long Covid recovery 58:33

12M ago58:33

58:33

Episode 109 of the Long Covid podcast is a chat with Julie Black about her recovery from Long Covid. We speak through her illness, what she found that helped as well as other observations she has. As with all recovery stories - this is just one person's experience. No two recovery stories are likely to be carbon copies of each other. **transcript n…

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108 - Dr Vass & Dr Vicky - Cardiologists & Long Covid Researchers 53:34

12M ago53:34

53:34

Episode 108 of the Long Covid Podcast is a chat with Cardiologists and researchers, Vassilios Vassilou & Vicky Tsampasian. We discuss cardiac-related things they have seen in Long Covid patients as well as their research into risk factors of Long Covid and why this is important. https://journals.plos.org/globalpublichealth/article?id=10.1371/journa…

1
107 - Raelan Agle - the Importance of Sharing Recovery Stories 46:33

1y ago46:33

46:33

Episode 107 of the Long Covid Podcast is a chat with the fabulous Raelan Agle who has recovered from Chronic Fatigue Syndrome and is passionate about sharing both her own recovery story and those of others. We chat through her own recovery and some of the themes and highlights of people she has spoken to on her channel. This is so full of hope and …

1
106 - Dr Taylor Krick - the Autoimmune Doc 49:43

1y ago49:43

49:43

Episode 106 of the Long Covid Podcast is a chat with Dr Taylor Krick from the Washington Wellness Centre and also the host of the "Autoimmune Doc Podcast" We chat through his experiences with patients with autoimmunity both before Covid and since Long Covid came along, as well as some of the patterns he is seeing. www.autoimmunedocpodcast.com @auto…

1
105 - Dr Calum Carson - Inclusive Remote & Hybrid Working Study 44:40

1y ago44:40

44:40

Episode 105 of the Long Covid Podcast is a chat with Dr Calum Carson, Senior Research Associate at Lancaster University about the Inclusive Remote and Hybrid Working Study which he is involved in. Participate in the study Project website Previous study The changing workplace: Enabling disability-inclusive hybrid working - Lancaster University Messa…

1
104 - Alison Larkman - "I would be here if I could" 37:55

1y ago37:55

37:55

Episode 104 of the Long Covid Podcast is a chat with artist, Alison Larkman, about her project "I would be here if I could" which is currently in progress. We chat about the inspiration behind the project, and Alison's experiences with ME which really resonate throughout the project. More information, or participate! www.IWouldbeHereIfICould.com Me…

1
103 - Dr Amy Proal - Viral Persistence in Long Covid 59:13

1y ago59:13

59:13

Episode 103 of the Long Covid Podcast is a chat with the fabulous Dr Amy Proal, a microbiologist researching viral persistence in Long Covid. We chat through what brought her to this research as well as taking a bit of a deep dive into the topic. Review Paper: https://www.nature.com/articles/s41590-023-01601-2#MOESM1 PolyBio Research Foundation rec…

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